Severe skin pain: HI This is my 1t... - Fibromyalgia Acti...

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Severe skin pain

Babylons profile image
15 Replies

HI

This is my 1t time on this forum, just wondering if anyone else has really severe skin Pain through there fibromyalgia?

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Babylons profile image
Babylons
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15 Replies
Mandypandy1969 profile image
Mandypandy1969

yes. my skin feels very sore especially on my back. feels like sunburn. I get the feeling in my face, eyelids and forehead. xx

Dinkie profile image
Dinkie

Some get sunburn like pain but I just get intense itching which can get quite embarrassing when out in public and you just have to scratch that itch!

oben5 profile image
oben5 in reply to Dinkie

i get this intense itching as well been to dr to many time to remember had goodness knows how many creams strong antihistamine and still know better went to Dr last and i going back tomorrow as it is effecting my day to living

Dinkie profile image
Dinkie in reply to oben5

if you ever find anything that works please post!!!!!

Babylons profile image
Babylons in reply to Dinkie

The only thing that did help was Amitryptiline but I could not take it for the side affects 😂

Dinkie profile image
Dinkie in reply to Babylons

I can't take prescription meds of any description - they all seem to do me more harm than good :(

uggycat profile image
uggycat

Hi Babylons think this might be nerve ends being sensitive x

Yvonnekate profile image
Yvonnekate

Yes. The last 3 days it hurts to touch my skin , even clothes hurt. sleeping is a nightmare. My doc said nothing they he can do about it . Our youngest granddaughter have me a hug yesterday and said sorry because she could see i was in pain. 😢

Babylons profile image
Babylons in reply to Yvonnekate

I know exactly how you are feeling Yvonnekate, I have a 5 year old daughter and having to explain to her that Mammys skin is so sore for her to touch or hug is heart wrenching, My doctor says it’s Allodyne which is a side affect of Fibro the only thing that helped me was Amitrytiline but unfortunately the side affect was to much and I had to stop taking them, now all they do is keep increasing my Gabapentin and Tramadol which is not helping 😭

Sandcastle27 profile image
Sandcastle27

Yeah, all the time. Feels like a really bad sunburn.

WorldOHurt profile image
WorldOHurt

Absolutely, only the sunburned feeling has only happened to me 3-4 times, and lasted about 10 days each time. Each time it was only in one quadrant of the body.

mouse2 profile image
mouse2

Yes, I get it spasmodically. Sometimes it is in big patches in different parts, other times it is all over and it hurts to wear clothes. I go to a local Fibro group and they say dont touch unless you know its ok or have permission!

ruthmel1 profile image
ruthmel1

Hi babylons .Yes I have had it very badly but its much less now. Its called Allodynia. I was prescribed Pre GAbilin which is for Neuropathic pain. It really helped.

I'm on a crusade here but CBD oil is becoming marvellous for all my types of pain. I wont harp on as I'm becoming a one trick pony!!! But please look in to it. Theres already lots of questions and answers on here.

Babylons profile image
Babylons in reply to ruthmel1

Thanks for the info, yes that’s what my doc said it was, the only think that helped was Amitripryline but I could not take it for the side affects now all he does is increase my Gabapentin and Tramadol which does not seem to help......this CBD oil where do I get it from and what is it exactly?

ruthmel1 profile image
ruthmel1 in reply to Babylons

CBD oil is Cannabinidiol oil. It is derived from the Cannabis/Hemp plant. BUT there is minimal THC, the hallucinogenic, in it so it doesnt get you high and is perfectly legal in the UK.

We all have an Endocannabinoid system which affects every system in the body. PAin, Mental health, digestion etc. The CBD oil combines with the Endo C receptors and helps kick start them into doing whatever they do.

You can buy CBD oil from many reputable web sites. Dont go for AMazon or Ebay as there are some scrupulous sellers who will sell you Hemp cooking oil!. Look for the sites Lab reports.

Some recommended ones are Simply CBD, CHeds, CBd Bros, Love Dutch CBD.

It can be administered under the tongue, by spray, capsules (which are the worst for absorption), Vaping.

There is a way to start CBD oil and rules for medication interaction but I'll let you search this web page.Theres loads of advice. If you're on FB the join CBD users UK

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