Stopped Benefits: Too ill to go for the... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Stopped Benefits

regthebarber profile image
20 Replies

Too ill to go for the medical assessment, my feet were twice the size they should be and very painful. Was told by benefit agency to get a taxi, my feet were so bad I could just about stand, never mind put on shoes. They wanted me to go in my bare feet. Even though I told them over the phone and wrote to them before my appointment, they stopped my benefits, first time I have ever missed an appointment. I now have to fight to get them back.... UNBELIEVABLE

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regthebarber profile image
regthebarber
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20 Replies
Robbie138 profile image
Robbie138

Omgoodness, they can’t get away with that, get in touch with whoever it is that deals with this plus your MP how are you meant to live ? and pay bills.

Gentle hugs 🤗🤗

regthebarber profile image
regthebarber in reply to Robbie138

Hi Robbie, I'm not allowed to speak to the people that make these desisions was told to write in and ask for a reconsideration which can take 2 months. They stopped my benefits on Monday and I was due to get paid Wednesday how do they think people manage.

Robbie138 profile image
Robbie138 in reply to regthebarber

As if your not unwell enough without putting this on you I suppose it’s a mandatory reconsideration, how long do these take. Do you have a partner ? to make sure you survive this appalling system. I’d be exposing them to the press it’s getting beyond a joke now.

rosewine profile image
rosewine

I must admit I think I would have shamed them and took a taxi and walked in my bare feet having done a photo of them first with a paper showing the date next to them. I feel so angry on your behalf.x

regthebarber profile image
regthebarber in reply to rosewine

If I could have been able to stand, I would have. It was just too painful x

Did you take photos of your feet to prove it to them?third tight rats

regthebarber profile image
regthebarber in reply to

I did and I had also sent photographs months ago of times before when they had swollen. It was only 2 years ago I had a home visit ( from a so called medical proffesional )and they could see for themselves the state my feet get in.

Mark8 profile image
Mark8

That not ment to stop your money until a reconsidering is be made you have made me worrie I was ment to go to one 9 days ago and normally here back in 24 hours but heard nothing I told them 3 weeks ago I was not fit anoth to tend these and I wanted them to come to my home they ask did I go to hospital appointments I said yes because I have to because there trying to get me well again I also said wen I do go it puts me in bed for 3 days after I said with there appointments they want me to travel 13 miles I have to rely on someone else to help me they want me there 20 minutes before so they can watch me and after that there give me no points and ignore all the prof I have brought from all the experts and a lot of time lie me personally have had anoth of being treated this way we live in a messed up world that wants to punish us for being unwell if they stop my money then so be it then I starve I lose my place to live and then this will cost them more I told them there makeing me more u well and if 1 day I do take my life I will let the world no what they have put me thru don't worrie I am not about to before people think that just totally fed up with a failing system I wish you all the luck in the world and hope it all works out don't let these people win do they really think we want to be on benefits and in pain all day every day I have been bad the last 3 days so not been able to get to the bank to see if they stopped my money thankfully I get pip now so at least I have something where before I would have nothing take care x

regthebarber profile image
regthebarber in reply to Mark8

Mark, they just want us to do what we are told. they need to be seen to be doing something. They always pick on the wrong ones. I know a couple of people, there is nothing wrong with them yet they get more benefits than me, or should I say they get more benefits than I use to. I will some how fight this to the end ( on my goodish days) I have wrote to my M.P. lets see if she can do anything.

Mark8 profile image
Mark8 in reply to regthebarber

Good luck I went with all that and it never made much difference hope you win and they have to back date it there people that don't believe fibromyalgia even is a real life thing so sometimes you feel your banging your head against a brick wall I am sure they just want to push us over the edge don't let them win and don't let them take you sanity keep strong and win x

That's just disgraceful of the DWP telling you to go n in bare feet. I would get some help reinstating your benefits.... I really am disgusted at how they have treated you. Good luck x

Mdaisy profile image
Mdaisy

Did the GP or a nurse see your feet? If so, this all goes towards proving why you couldn't attend the appointment. I would also speak with the FMAUK Benefits Advisor about this situation, here's a post with her contact details

healthunlocked.com/fibromya...

I hope you get them reinstated as this does seem very unfair, how on earth could you walk with swollen legs and feet? Honestly the stories you hear get worse and worse.

All the best

Emma :)

regthebarber profile image
regthebarber in reply to Mdaisy

Thank you for that, I will get in touch with FMAUK X

ruthiepooh profile image
ruthiepooh

Disgusting way to be treated in a "civilised country". The country seems to be regressing Why? partly because of benefit cheats we come to this situation. That said you would think there would be some common sense applied and humanity. Hope you get things sorted.

Louinpain profile image
Louinpain

Thats terrible. Why do they think tbey can treat people this way its so unfair. Fingers crossed you get it sorted soon. Xx

justmai profile image
justmai

they can't ask you to come in bare feet what if you trod on some glass etc did you get Drs confirmation that your feet were that bad. hope you get it sorted soon

regthebarber profile image
regthebarber in reply to justmai

I recently moved house to be closer to my family as I live on my own, so had to get a new doctor. Even though the new doctor issued me with my monthly medication he said because he did not have my medical records there was nothing he could do. So I have now moved to yet another doctors who did not see my feet when they were swollen. I explained this to the benefits agency and asked if they could contact my original doctor from my old address ( who was willing to give them whatever info they needed) they said they could not do this (and would not accept info from a doctor I was no longer with). as they had already contacted my 1st new doctor but he did not have any info about how my illnesses affect me. As I am no longer with this doctor he will not tell the benefits agency about my feet. It's just crazy x

casper99 profile image
casper99

You want to email your MP about them telling you to come in bare feet. It's ignorant and insensitive. Heads should roll for it xx

releasethemagic profile image
releasethemagic

On the Capita PIP website it says

"Please contact Capita's enquiry centre on 0808 1788 114 to discuss the possibility of re-arranging your appointment.You will only be permitted to cancel an appointment once."

I would imagine Independent Assessment Services (ATOS) are the same, although their website does not say.

The law actually says DWP can re-arrange appointments where the claimant has good reason for not being able to attend. So if Capita or Atos say No, you can ask DWP to over-rule their decision.

regthebarber profile image
regthebarber

A bit of good news, wrote to M.P. on Friday 27/7/2018 got a call this morning 30/7/2018 from M.P. She is going to look into it.. considering it was the weekend, brill service from my M.P. Thank You ... fingers crossed she can do something.

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