On and on and on: Having a prolonged... - Fibromyalgia Acti...

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On and on and on

pollydee29
pollydee29
•30 Replies

Having a prolonged flare up with nothing really touching the pain; paracetamol, tramadol, deep heat! If anyone has anything else that really helps them, then would love to know!! Ty xxx

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NurseGladys123
NurseGladys123

Hi from nurse Gladys Emanuel ( Openall hours ) I've only been terrible twice I presented at A&E both times and waS infused with a strong paracetamol only available in hospitals,,it was on these occasions I was referred to rheumatologist and a physio who specializes in fibro..I got involved in his hydrotherapy..I go every week at weekend I go to local pool that has a Jacuzzi. Heated wAter around 30..32 degrees has been a godsend I would recommend you try to get some sessions and I the meantime find a nice Jacuzzi for long soak..my home bath was not the answer as I struggled to get out...hope u find some quicker relief don't be Afraid of A&E that's what they are there for

2 likes
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Jenwen74
Jenwen74

Hey there... sorry you are feeling so much pain. The only thing that eases my pain at the moment is solpadeine Max and heat pads and rest when possible. Bless you I feel you x

1 like
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Hidden
Hidden

You are not taking much pain killer apart fro tramadol which is morpheme There are other alternative drugs such as pregablin and cocodamol from your doctor You can also get Fenbid forty gel 500 mg to rub into pain

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Susat80
Susat80
in reply to Hidden

Tramadol is a very mild synthetic opiate based tablet. Far from morphine. Unfortunately I know about drugs and am not drug seeking only wanting a more active and pain reduced outcomes if fibromyalgia is diagnosed. I have access to many drugs in the top shelf levels but don't want to become a slave to them again. (My choice previously)

Just hoping things might improve so I can leave this country and relax in a beautiful setting.

Hugs and positive thoughts to everyone.

Eyes are getting worse. Is that normal and a lot of headaches.

Am going to try and sleep now not lie thinking.

Half a valium. 😎😎

Peace out y'all from London

1 like
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Hidden
Hidden
in reply to Susat80

Tramadol is great for pain but it is morpheme based , its addictive when you off it you will get cold turkey 🦃 I used to take but not no more

1 like
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ruthmel1
ruthmel1
in reply to Hidden

Its an opiate but doesnt have Morphine as we know it in it.Its the highest tablet before you progress to Morphine proper.

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Hidden
Hidden
in reply to ruthmel1

I don’t go any we’re near morpheme that’s the way forward I believe My pain is hell though xx

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Hidden
Hidden
in reply to ruthmel1

My doctor advised me tramadol was morpheme based was she wrong ?

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Mdaisy
MdaisyAdministrator
in reply to Hidden

Tramadol is an opiate but not considered as strong as Morphine as far as I am aware, I would speak to your pharmacist and GP again for more information especially if it worked for you. Pregabalin that we've been discussing on the other post can also has withdrawals if stopped abruptly as body becomes dependent on it. Dependence that is different than addiction although the media has reported that Pregabalin is being abused, so can be addictive too but I think any drug can be if abused.

Medications should be taken as prescribed, I've been taking Pregabalin and Tramadol Sustained Release for over 10 years now with no problems and my pain is manageable on the whole with bouts of severe pain/flares etc. I think it might be wise for you to discuss your medications with your GP and/or ask for a pain clinic referral.

All the best

Emma :)

1 like
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Susat80
Susat80
in reply to Hidden

I didn't mean to say you were wrong only that it is an opiate but chemical one. Withdrawal symptoms are bad.

Accept my apologies IF I

offended you.

Good luck with everything.

Yesterday I took no painkillers ( oxycodone )

The day was BAD and today I can hardly move so am trying to take less but I have things to sort out of importance. Does the pain in general feel less and movement slightly easier as the day goes on?.

Would really appreciate an answer if possible, also eyesight getting worse on small things, this phone ect.

Best wishes to y'all.

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Hidden
Hidden
in reply to Susat80

All the medication has after effects Susa xx

1 like
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Hidden
Hidden
in reply to Hidden

You didn’t offend me all ok x

1 like
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Hidden
Hidden
in reply to Susat80

Susa are you I The UK?

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Hidden
Hidden
in reply to Susat80

Your not far from me in London I’m in Essex 8 miles out of the City 🌃

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Susat80
Susat80
in reply to Hidden

I'm in Kilburn North West London

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Hidden
Hidden
in reply to Susat80

O the business area of London Well If you ever want to meet up let me know

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moo196
moo196

I found tramadol made me much worse and would advise against it personally. The addictive nature was also worrying.

The best thing I ever did for my pain was to give up diet coke and anything else with artificial sweeteners. Worth a try?

Good luck!

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sammy5504
sammy5504

Hi. I suffer from arthritis & was prescribed Tramadol 100mgs x 4 times a day & Co-Codamol 30/500mgs x 4 times a day. They were no good. I've tried herbal remedies & they were no good. I am waiting from bio-freeze gel coming, i have it ordered. I was told it was good for pain relief. Hope you find ease soon.

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ruthmel1
ruthmel1

Research CBD oil. Theres loads of posts on here about it.\its marvelous for pain alongside your meds. I've been on it 3 1/2 months now, reduced my Morphine from 160mg to 80mg a day and my pain levels are moslty much, much lower than they were.

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Hidden
Hidden

Hi I have been cbd oil and hemp patches as I'm still in constant pain with tramadol so far the results are blowing me away I have been able to get up like a normal person and pain is at a minimal I have even dropped the dosage of tramadol pls look into these xx

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06hollyberry
06hollyberry

CBD oil ? I've found only co-codamol with a few drops of 'blue' CBD oil, heat pads, Salonpas patch ( all together) works.

I don't take any prescription meds due to side effects.

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Hidden
Hidden
in reply to 06hollyberry

I also purchased the hemp patches from bio energiser they have been working great so far 😊😊😊😊😊

1 like
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Hidden
Hidden
in reply to 06hollyberry

Holly have you been diagnosed with Fibromyalgia I take coda-mol along with other drugs but could not survive on CBD Oil and codamol alone

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Mdaisy
MdaisyAdministrator
in reply to Hidden

Hi Chromedome,

As mentioned before we are all different and symptoms vary too. It seems what works for one may not work for another. The majority of people on the community have been diagnosed with Fibro, think they may have it or live with chronic pain and share their ways of dealing with the pain experience they have daily in the hope it will help others. I remember my pain initially being far less than it is now, so Its good to realise that everyone experiences of Fibro are different and therefore respond differently to medication or complementary therapies etc.

Unfortunately you seem to experience a lot of Fibro pain and Fibromyalgia has many symptoms that can affect us all in different ways. How others cope with symptoms that is beneficial to them can be different to another persons living with Fibro.

Do speak with your GP again as you may be able to find a better way to deal with your pain.

Emma :)

1 like
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06hollyberry
06hollyberry
in reply to Hidden

Yes, 2 rheumatologists several months apart came to the same conclusion. I've had dreadful reactions to prescription meds in the past so don't take any. I try lots of little things, which I hope combined will help. Often one painkiller alone won't do anything but adding in the CBD oil, heat, pain patches, a tens machine ( anything I can think of !) often helps to reduce the pain enough to sleep.

1 like
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Hidden
Hidden

Hi yeah u can buy cbd oil in Holland and Barretts does help a lot

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E3178
E3178

Hi, Cbd oil works for me. Helps at night with sleeping too.

Be careful to buy from a reputable company such as Cbd brothers as cheaper ones are too weak to do any good and they will probably make you think there is none that work.

Good luck

1 like
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Patches12
Patches12

Hi polly im on strong tabs but i dont get any relief .i can barely walk i have severe pain 24hrs .if you find any relief let me know .the pool is nice but gettin ready after is a no no to painful and need help good luck x

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