Getting better

[buildmygallows]

Going through a lot of mixed emotions and feelings

Going cold turkey 2/3 weeks now looking for light at the end

Crazy feelings not good

is the way forward live without these tablets has anybody tried alternative remedies do they work

[Starry]

What medication have you come off? And have you done it with the help of your GP, did they say how long withdrawal will take ?

Take care of you xx

[buildmygallows in reply to Starry]

Hi yes I spoke with the doctor mostly this blew up because of the level of creative in my system

So I made a effort to come off the lot spoken to the doctor and the advice was if you want to do that carry on so o have

Coming off pregablin oramorph amatriptamime slow release morphine

Getting better a lot of weird sensations but doing it

[Starry in reply to buildmygallows]

Well done. Having a love hate relationship with pregabalin atm. It made a massive difference at the start in calming my system down but I inadvertently ramped it up too high and now getting bad side effects.

[Hidden]

I've not taken any prescription meds as I always seem to get bad effects of anything. Also, I've no faith in my GP doing anything to help me.

I take an Ayurveidic med each day, designed more for arthritis symptoms but I think it helps.

Also turmeric, Selenium and vitamin D. Magnesium spray on feet and legs.

Perskindol gel and Salonpas patches when necessary.

The only pain killer I've found that works on my head and neck pain is soluble paracetamol with caffeine. I react badly to cocodamol and regular paracetamol does nothing.

Then the usual heat, rest etc... Walk my dogs every day, sometimes it's not very far but most days I can do 1-2 miles.

[mcglada0]

I’m trying to get off pregabalin and Tramacet ( tramadol and paracetamol) . I have started taking CBD oil. I now don’t take pregabalin during day and working down with the night dose . Last night I slept sound for over 8 hours so down to 100mg tonight. Fingers crossed. I was on 300 mg morning and evening. I’m still on Tramacet morning and evening for pain but hope as the CBD oil gets into my system that it will also help with the pain. It’s supposed to help anxiety, pain , you name it without all the nasty side effects. You must be going through hell just now but well done for doing it and I hope that you find a natural way to help your symptoms. Xx

[NickP1 in reply to mcglada0]

Hi.

Came off tramacet last year. It’s different for everybody but for me it took about two months to go through complete withdrawal and I was not on a high dose.

But, and it’s a huge but, it is hugely worth the effort. Tramadol and tramacet is terrible stuff. I would recommend it only as a last last resort. The pain is no different with or without.

[mcglada0 in reply to NickP1]

Thanks for your reply. Yes I wonder if my worsening fatigue has anything to do with the Tramacet. Thanks for your advice. I am at moment taking one and a half Tramacet morning and evening. I’m going to try cutting down to one then half and hope I can get off it without too much pain. How do you manage your pain now? X

[NickP1 in reply to mcglada0]

I’ve had muscle and skeletal pain since my teens. So I sort of got used to it over time. It was eventually diagnosed as fibro along with a pinch of sciatica a sprinkle of scoliosis and a dash of spondylitis. I think it was described as growing pains when I was a kid. Growing pains my ass, I couldn’t sleep with the pain, used to cry with it.

There were times when I’d had enough. Usually when I had time to myself.

I used to think, if this is how it’s going to be for the rest of my life I’m done. But those moments were brief. I gave myself a slap and got on with life.

The pain is part of me and who I am. it’s driven me on, made me more resilient and tenacious I think.

[mcglada0 in reply to NickP1]

What a fantastic positive attitude! I hope that I get to your way of thinking. I can usually push the pain to the back but it’s the fatigue that floors me. But I’ll try to follow your example and get on with life. Great to read such an uplifting post.

[NickP1 in reply to mcglada0]

To be honest the years of pain were easier to deal with than the absolute mess that is the method of dealing with the medication for those without a thyroid or issues with hormone replacement. This i've been struggling with since 2015, when I had my thyroid removed and its still not right..

[mcglada0 in reply to NickP1]

I’m so sorry to hear that you’ve got this to contend with as well as pain. I agree that the side effects of meds can cause as many issues as the actual problem. Look after yourself and I hope that you find some way to deal with the mess that you have to take. X

[NickP1 in reply to mcglada0]

Hi Mcglada.

Here’s a story of true positive attitude.

There for the grace of god go I.

imgur.com/gallery/8RSZq

[mcglada0 in reply to NickP1]

Wow! What a very courageous young girl! Inspiring story that makes us think that maybe we don’t have as many problems. Thank you for sharing. X

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I have hun BUT I did it whilst reducing some meds-cold turkey-- you are very brave I,d be taken away in the yellow van by now!! (yellow van takes people away who go crazy)

[Lulububs]

Hey

Well done u!! I took the decision to come of all meds about year ago( i have other issues aswell).

I now feel better, i didnt realise the constant groggy foggy tired lethargy was worse with meds then without.

Im now more brighter more alert, i can walk more and seem to do more then sitting in a cloud of fog.

I take cbd oil, 2000mg of glucosamine. Coq10, msm vit c and d. Also magnesium.All to do with healing ur body and ur muscles. I do pilates and yoga to stretch them muscles which helps massively and i walk alot.

I have good and bad days , i learnt if there bad i sleep it off if it good make most of it...

I see it as i only have one life! I want to live it, im not dying, i live with pain but i wont let it rule my life il rule it...

do things u enjoy, surround urself with people u like and have some fun...

I spent years missing my best friends weddings, christening there children, partys mainly coz i was to out of it to go..

Now i go even if it just a hour or two i go i enjoy and i laugh!!