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Blood pressure

67im profile image
67im
6 Replies

Does anyone else contend with fluctuating blood pressure? I have such a problem with it. It can be as low as 92/50 to 195/85.

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67im profile image
67im
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6 Replies
Mdaisy profile image
Mdaisy

Hi 67im

My first thought is it sounds quite similar to symptoms of dysautonomia or POTS. Please see this link for your information only;

nhs.uk/conditions/postural-...

Is your GP aware of these symptoms? I gather s/he or a nurse has taking these reading unless you have a home monitor. I would consider speaking with your GP about this so they can look at your medical history and examine you to provide you with a diagnosis.

If they do suspect POTS then you may be referred from a Tilt Table Test.

Hope this helps

Emma :)

in reply toMdaisy

Hi I was thinking the same too, in fact I have a Tilt Table Test next Thusday..I really thought nice consultants were none existent but he was fab, apart from when he said 'you dont look ill', but everyone is allowed one mistake!!

Evaibrahim60 profile image
Evaibrahim60

Hi 67im yes mine too does there was once when it reached 250/140 and been told I have to resume taking my high blood pressure medications after stoping fo about 3 years because it was very low most of the time and it used to get to normal after 4:00 pm. However when I resumed it did it again and because I felt like going to faint most of the time I stopped it again but I do take it if it got high again but doctors don’t like that. I heard about a medication (France)just to be taken if it’s high but my doctors here (Australia) didn’t hear about it!

mand65 profile image
mand65

Hi 67im i have been suffering fluctuating blood pressure for a few months now , when im resting / sat it is high but when i stand up it drops a lot making me dizzy and nauseous so far i have had ultra sound on my heart, heart montor for 24hrs and due a CT scan next wk , i should be seeing the consultant for the outcome in a few wks. I have been off work for 4mths so far , attending occy health assessments is not helpfull and talk of ill health retirement.The stress makes the fibro pain and fatigue much worse, not sure of the way forward.

Hope you get it under control x

Mdaisy profile image
Mdaisy in reply tomand65

Sounds like it might be POTS a form of Dysautononmia too, as you are have postural drop in BP. It might be worth reading up on this out of interest, just in case after tests they diagnose this condition. I believe that people with chronic illnesses like Fibro often say they have this too, myself included. Jennifer Brea director of Unrest the award winning film about ME says she has this also.

67im profile image
67im

Thanks everyone for your input. Having fibro is always so challenging. My PC doc and cardio doc both know about this, and keep increasing my meds, which I don't take because it doesn't help or it's so low that I can barely function. I've never heard of POTS or Tilt Table Test, but I will be checking into it now.

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