still in limbo....

[jebus3rd]

morning all, hope you are all well, or as well as can be expected.

I haven't been here for a few weeks, been busy with work and family issues, but thought I would drop back in again for an update and advice if possible?

so I don't have arthritis - good news, but my pain is getting worse.

the cold weather we have had seems to have destroyed my knees and the pain is really bad. I had been taking naproxen but turns out this has destroyed my stomach lining and ended up at the hospital (more due to waiting time for the docs than because it was an actual emergency) , so for now im on zero pain meds - I don't like pain meds anyway, I dunno whether to keep taking the legs and chest pains (also headaches the last few days and odd purple vision) or to try and find some meds..... its a quandary.

I have been recommended CBD oil from a friend, but im not sure whether this is a good idea or not, my main question is if anyone here has experience with this stuff?

I was given a steroid injection a few weeks ago as a longer term anti inflammatory, and for two days I could stretch again, it was glorious, I just did it when ever I felt like it, just for fun. I was loving life. now the injection was supposed to last for 6 weeks but after a few days it was basically back to normal (except for my skin which is still in a good condition thankfully) and I could no longer stretch and my knee was sore again, so not sure if it was actually effective or if it was some form of placebo effect.......

I dunno what to do now. the doc said keep a diary, which I have but it just reads like im a moaning face, I dunno what to do...... my mother in law is battling cancer, so im keeping all this from my wife as much as possible because her plate is overflowing as it is, but I need advice please.

sorry for moaning, im actually in good spirits, just no point coming here to sing I suppose.

[Hidden]

I've reacted badly to every prescription med I've ever had so I've not tried any of the prescription pain killers.

I use soluble paracetamol with caffeine--- ones without caffeine don't work. CBD oil helps, I bought from CBD brothers, blue oil. Best thing I've tried is a tens machine from Lloyds Pharmacy. It was so helpful I recommended it to a friend who has terrible knee and hip pain. For c£20 it might be worth a try.

I also take turmeric tablets. I tried a month without them to see if they were having any effect and I stiffened up badly.

Magnesium oil also helps relax muscles. In the absence of strong painkillers I try all the little things which, added together, do make a difference.

[jebus3rd in reply to Hidden]

hmmm interesting stuff, no idea what the machine does, but I do like the idea of the cyborg route (joke)

I have heard people mention turmeric but never magnesium oil, ill need to look into that.

thanks for the advice batman

[mcglada0]

CBD oil users UK and CBD Users UK are two very good sites to get information on CBD products and how to use them. If you are going to try them start low and slow. They take a while to get into your system . This is what I’ve learned from these sites. I am going to give them a go after I recover from this bout of extreme pain and nausea. Hope this helps and I’m really sorry that life is not easy for you. You sound a wonderfully upbeat and positive person. X

[jebus3rd in reply to mcglada0]

I will take that advice seriously, thanks for that.

ha ha I doubt my kids would agree with the upbeat and positive claims but thanks very much. I hope you feel better, that does not sound like much fun at all.

[mcglada0 in reply to jebus3rd]

Thanks

[Kitten-kat23]

I am so sorry. Please don't keep it to yourself, you will make yourself worse. Please talk to us on here. At least it won't be pent up inside of you.

[jebus3rd in reply to Kitten-kat23]

no need to be sorry, I know you guys are here, you all welcomes me before and tis good knowing I have somewhere to turn.

im not keeping stuff pent up, I don't tend to let stuff like this eat me up inside, dismissing stuff from my net like brain is a good talent so im doing good on that front, but yeah, better to be talking to you guys as opposed to nobody.#

thanks for the response.

[Ramjets]

I was taking Naproxen at one time but my doctor also prescribed me Omeprazole to take with it to protect my stomach. However I was concerned about the long term effects of taking both so I eventually stopped taking them as they were not that effective anyway. I've never had to resort to steroid injections but my mum used to have them and they were often just a short term boost. With regards to CBD Oil, again I have never sampled it personally but have read mixed reviews about it. However like many things with fibro what works for some has no benefit for others so sometimes you just have to suck it and see for yourself. (I believe Holland and Barratt have been selling it half price recently so don't know if this is still available). Have you tried any alternative therapies such as physio or hydro-therapy? I went through physio and although painful at first it did get easier and it has definitely helped me.

The diary will prove useful even if you think it is a bit of a moan-fest, the whole point is to pinpoint your bad episodes so by definition it will be a record of misery lol.

Sorry to hear about your wife's dad, I understand why you don't want to burden her further so don't hesitate to turn to the forum for a moan, vent or ask advice (and we do actually have the odd laugh too). Take care. x

[jebus3rd in reply to Ramjets]

yeah was omeprazole they gave me at the hospital to counter it, worked quite will but have now stopped both.

im not clear what I should include in the diary lol, at the moment its an app on my phone (I have a star trek phone and love any reason to use some of its functions) and consists of basically the date and list/ severity of symptoms.

but I don't even know which ones are relevant (or real) I keep seeing purple, which is every bit as odd as it sounds. lol

tis my wifes mum, my wifes dad is a whole other story lol (double amputee with dementia, suffered a few strokes and is generally a stereotypical cantankerous old fart) , thanks for the thoughts though we are hopeful she can handle the rest of the chemo, but ill keep my ills to myself for now.

good to know you lot are here though,

[Ramjets in reply to jebus3rd]

Sorry I did read it was your mum-in-law but my foggy brain put dad! I normally check over my posts a few times to pick up on my little errors but must have missed this one. Anyway sounds like your wife has a lot on her plate to deal with, bless her.

When I kept a diary I did it in the form of a schedule with times showing for the day. So I would record in bullet points what time I went to bed/got up, what I ate and when, what activities I did etc and what and where if any pain occurred which I would grade on a scale of 1-5, 1 being a twinge and 5 being howl inducing. I also used little symbols to reflect my mood for the day, e.g. a little sun if I was feeling alright, black cloud when feeling down, lightening strike when felling anxious etc. Bit cliche but my doc wanted me to record this as well so it saved writing lots of stuff. I'm afraid I didn't have a Star Trek Communicator and had to use good old pen n paper lol.

[jebus3rd in reply to Ramjets]

cave person !!!! lol

sorry I am a bit immature, but why not?

you only live once at a time.

that's good advice, maybe I should beef it up a wee bit.

my moods are generally upbeat so hopefully that doesn't change but I think that might be optimistic seeing how it usually goes on here, that's what worries me most.

[Ramjets in reply to jebus3rd]

P.S. Meant to say earlier that I notice you haven’t locked your post. You don't have to but many of our members are not too keen on responding to unlocked ones therefore you are likely to receive more replies if you do, as it stops the whole thread being read by internet search engines. Instructions on how to do this can be found on the link below but if you get stuck please don’t hesitate to ask for help.

healthunlocked.com/fibromya....

[Ramjets]

I'm not a complete troglodyte, I do utilise technology sometimes lol. Having a naturally optimistic nature and a sense of humour will stand you in good stead. The forum is a safe haven for a lot of members to come and have a good old moan, rant or little cry which they don't necessarily do in their "real" lives so you can get the impression that people are constantly in the doldrums. However we could all do with a laugh now and then so feel free to share your upbeat moods and cheer us up! x

[jebus3rd in reply to Ramjets]

grand, thanks for that, and u did tell me about locking posts before I think I just forgot this time

DOH!!