Fibromyalgia : When people ask me about... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Fibromyalgia

valerienesbitt91 profile image
8 Replies

When people ask me about my illness I tell them they different kind of fibromyalgia specially if the weather is cold and hot or warm I find the weather for me is all the same my bones are so sore all time and tablets take edges of the pains but pains don't go away

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valerienesbitt91 profile image
valerienesbitt91
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8 Replies
DottyDotty profile image
DottyDotty

I find when it is cold my fibromyalgia is absolutely terrible. really flares.

Annmurry profile image
Annmurry

I tell people it feels like the flu. That's how it feels to me. I no longer know if I have the flu or it's a normal day.

DottyDotty profile image
DottyDotty in reply to Annmurry

I would say the flu but like a million times worse and for me without the runny nose!! Lol

Annmurry profile image
Annmurry

Who would want flu all year round. That s worse enough for me 😀

DottyDotty profile image
DottyDotty in reply to Annmurry

No thanks I think i will pass on that one!

Annmurry profile image
Annmurry in reply to DottyDotty

Haha. Yeah I do agree fibro is worse. But it's extreme flu then lol.

I tell people its a type of arthritis thats gets the tips of the muscles first wher they meet the joints and cause weakness and horrendous pain, this goes on 24/7 and stops you sleeping, a viscious circle that nobody has found an answer to- mention Lady gaGa career has been affected by it badly she cancels numerous concerts because of fatigue that comes with the illness.

DottyDotty profile image
DottyDotty

It is horrendous Nurse I totally agree it has me in tears some days! Hard when at work when I want to cry coz of the pain and not smudging my make up!

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