Morning everyone : Hi all Iโ€™m new to... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Morning everyone

โ€ข28 Replies

Hi all Iโ€™m new to group I have never posted before just read I was diagnosed with fibromyalgia this year ๐Ÿ˜ข๐Ÿ˜ข just really wanted to know if any of you felt like you just want to crawl out your body because of the pain?? Pain is so bad at moment!! Hope you all have a lovely painish free day!!

28 Replies
โ€ข
Maureenclayton profile image
Maureenclayton

Hiya Rachel pleased to talk with you, wouldn't it be lovely to be pain free even just for one day. I also have fibro and just at the moment mine is concentrating on my left arm right shoulder my right leg and feet, it just likes to hop about all over so I can't catch it. Yes I would love to crawl out of my body too Rachel it's no fun is it, but even crawling at the moment I would find difficult, had my second knee replacement this year so I can't even manage the crawl lol. I also have lung problems but that's another story, I've been up all night with my breathing last night but my husband who has back problems has had to do several trips downstairs for me for medication and cups of tea bless him as I couldn't hardly walk either, started physio last week and I thought I had really done well till the next day and it felt like I'd run a marathon lol, never mind there only here to help us but I'm not going to make it this morning. I take morpheme for the pain Rachel it helps me more than what I used to take which was tramadol they used to make me very sick I don't know what your GP has given you but you really need something quite strong to help with this type of pain. I wish you good luck and hope you have a little peace from your pain today. Love Maureen x

โ€ข in reply toMaureenclayton

Hi Maureen thank you for your reply sorry to here you have had a rubbish night too mine doesnโ€™t seem as bad as yours tho, yes I agree donโ€™t think I could crawl either ๐Ÿ˜Š๐Ÿ˜Š have just got myself up the pain is in my arms shoulders back hands and my knees at present hope you manage to get some pain free time so you can rest sending hugs x x

rosewine profile image
rosewine

Welcome to the group. We can all commiserate with you. I found my first 18 months the worst with flare after flare and very few even average bits in between. Eventually I found out more of the things that aggravated the pain and those that lessened it. Unfortunately, we are all different so what suits one doesn't suit another. Have you asked to be referred to a Pain Clinic as they are the experts and might be able to help with advice but often it is the way in to other therapies such as hydrotherapy or acupuncture. Hope you will be feeling a bit better soon. Look forward to your future posts.x

โ€ข in reply torosewine

Hi thank you ๐Ÿ˜Œ๐Ÿ˜Œ yes I feel that way at the moment having more bad days/weeks I have just got over pleurisy and Doctor thought with that was making the pain worse and for me to go back if still the same but not sure about yourself but hate going back as if they donโ€™t believe me!! Iโ€™m on co codamol and naproxen but they are doin nothing for the pain sorry I goin on now lol sending you pain free hugs x x x x

rosewine profile image
rosewineโ€ข in reply to

Pleurisy can give you a tremendous amount of pain around the back and rib area. I think you will find any infection unfortunately aggravates fibro. If the pain is different from your fibro pain I would certainly go back but like you if I never saw another doctor again it would be too soon, lol. I'm wondering whether you have ever tried Gabapentin or Pregablin as they can help with the neuropathic type of pain that many of us fibromites get? Hope you will be feelings but better soon.x

โ€ข in reply torosewine

Lol Iโ€™m with you on that one hate having to go!! No I havenโ€™t but will mention it thank you so much for replying makes me feel like Iโ€™m not the only one and that Iโ€™m not losing my mind yet lol hope you have a lovely day x x

Miss68 profile image
Miss68

Welcome to our lovely friendly group rachel36. I'm so sorry that you're in pain Hun. Yes I definitely agree that it would be lovely to crawl out of my body due to the pain. I agree with maureenclayton, you definitely need to see your gp so you can sort out your pain relief. I hope you get some relief soon hunny. Take care and stay wrapped up warm and sending you lots of gentle hugs xx

โ€ข in reply toMiss68

Thank you miss68 itโ€™s definitely made me feel Iโ€™m not a lone I have the heating on full will not be doing much today I really canโ€™t the pain is too much sending gentle hugs back Hun hope your day is good and your not in too much pain x x

Miss68 profile image
Miss68โ€ข in reply to

You're definitely not alone Hun. I'm in a lot of pain. I'm still recovering from my grandson's naming ceremony on Saturday. It was only on for approximately 3-4 hours but just getting ready for it, the very slow walking around and then recovering from it for the rest of the day really took it out of me. It didn't help that I hadn't slept the night before. I took a sleeping pill last night so today I'm in pain and quite drowsy, so it's taking me forever to read through this site, in between dozing off etc. It's such hard work!!!!!! So like you I won't be doing much partly because my body isn't letting me lol ๐Ÿ˜๐Ÿ˜•๐Ÿ˜ฌxx

โ€ข in reply toMiss68

O no Iโ€™m sorry to here your not that good either hope you have managed to get some sleep Hun ๐Ÿ˜”๐Ÿ˜” x x

Miss68 profile image
Miss68โ€ข in reply to

I slept well last night thanks. I think because I'm so slim, one sleeping pill knocks me out for 2-3days lol xx

โ€ข in reply toMiss68

Lol O no bless you ๐Ÿ˜Š๐Ÿ˜Š I hoping to try and move soon and hoping I will be able to get back to work tomorrow ๐Ÿ˜ฌ๐Ÿ˜ฌ x x

Miss68 profile image
Miss68โ€ข in reply to

Don't rush back to work too soon Hun. Your health has to come first. In the meantime, please take it easy. Take care of your pain too xx

โ€ข in reply toMiss68

๐Ÿ˜Š๐Ÿ˜Š Thank you Hun I always put myself last and never first Iโ€™m sure if the pain is like it is today I definitely wonโ€™t be going Hun struggled really bad today ๐Ÿ˜”๐Ÿ˜” ( Iโ€™m a manager of a residential home ) so stressful and long hour sending gentle hugs x x

Miss68 profile image
Miss68โ€ข in reply to

Sounds like we're typical women then lol. I'm a registered health professional so I know what a demanding and stressful job you've got. Especially if it's shift work too. I'm glad you're going to make a sensible decision about going back Hun. Thank you for my gentle hugs and I send gentle hugs back to you too xx

โ€ข in reply toMiss68

Lol I think we definitely are Hun thank you so much all of you on here you have made me feel so welcome and not alone Iโ€™m not usually a person who talks about myself but feel over the last few months I see everything so negative but today you have made me smile through the pain ๐Ÿ˜Š๐Ÿ˜Š thank you x x

Miss68 profile image
Miss68โ€ข in reply to

You're very welcomehunny. You've made me smile too. Sometimes you can't talk to your own family about your health as you don't want to burden them. It's nice to find similar minded people on this site ๐Ÿ˜Š Xx

โ€ข in reply toMiss68

I definitely agree Hun I feel like they think Iโ€™m moaning all the time Iโ€™m sure they donโ€™t but lol Iโ€™m off slowly to run a nice hot bath then more tablets then back in bed hopefully drop off to sleep thank you again Hun sending good nite gentle hugs ๐Ÿค—๐Ÿค— x x x x

Miss68 profile image
Miss68โ€ข in reply to

You're more than welcomeHun. Fingers crossed you manage to get some sleep. If you do go to work tomorrow then let me know how you get on. Take care lovely xx

โ€ข in reply toMiss68

I will do Hun hope you have a nice pain free sleep take care nite x x x x

โ€ข in reply toMiss68

Hi morning Hun how you feeling today?? Iโ€™ve managed to come into work ๐Ÿ˜ฌ๐Ÿ˜ฌ just having 5 minuets really wish I hadnโ€™t the pain has just got worse as mornings gone on I have rang doctors an got appointment Thursday morning Iโ€™m so keeping my fingers crossed they can give me something else sending gentle hugs and hoping you are alright Hun x x x x

Miss68 profile image
Miss68โ€ข in reply to

Good morning Hun, can't believe you went into work! I'm so sorry that the pain is getting worse now. Hopefully the Dr can give you something stronger on Thursday. I had a crappy nights sleep again and now I'm very sore and sleepy lol. Oh well, at least I can stretch out on the sofa. Don't overdo it at work hunny. Take care xx

โ€ข in reply toMiss68

I know me too Iโ€™m so silly Iโ€™ve just got home ๐Ÿ˜”๐Ÿ˜” tired and drained sorry to hear you had a crappy nights sleep again Hun hope you have had a nice chilled day on sofa and managed to get some sleep x x

Miss68 profile image
Miss68โ€ข in reply to

I've been trying to reply to you for about 40 minutes but keep dozing off lol. Sorry you've had such a long, painful day hunny. Get some sleep and we'll catch up tomorrow. Nite Hun xx

Hi thank you for lovely warm welcome ๐Ÿ˜Š๐Ÿ˜Š hope your good as can be x x

DanielleGemma profile image
DanielleGemma

Good Morning Rachel,

Apologies for my delay in welcoming you to our wonderful forum family!

Two things:

1. Please take a sneaky peak at our main site as it has loads of useful tips and hints -> fmauk.org/

2. I would advise that you lock your post as you will tend to get a lot more replies, I have attached the instructions for you - any problems please let me know!! healthunlocked.com/fibromya...

๐Ÿค—๐ŸŒน๐Ÿค—๐ŸŒน

โ€ข in reply toDanielleGemma

Hi thank you for your warm welcome and tips x x

DanielleGemma profile image
DanielleGemmaโ€ข in reply to

Absolutely no problem :) Hope you are well and have a great evening ๐Ÿค—๐ŸŒน

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