Hi all Iโm new to group I have never posted before just read I was diagnosed with fibromyalgia this year ๐ข๐ข just really wanted to know if any of you felt like you just want to crawl out your body because of the pain?? Pain is so bad at moment!! Hope you all have a lovely painish free day!!
Morning everyone : Hi all Iโm new to... - Fibromyalgia Acti...
Morning everyone
Hiya Rachel pleased to talk with you, wouldn't it be lovely to be pain free even just for one day. I also have fibro and just at the moment mine is concentrating on my left arm right shoulder my right leg and feet, it just likes to hop about all over so I can't catch it. Yes I would love to crawl out of my body too Rachel it's no fun is it, but even crawling at the moment I would find difficult, had my second knee replacement this year so I can't even manage the crawl lol. I also have lung problems but that's another story, I've been up all night with my breathing last night but my husband who has back problems has had to do several trips downstairs for me for medication and cups of tea bless him as I couldn't hardly walk either, started physio last week and I thought I had really done well till the next day and it felt like I'd run a marathon lol, never mind there only here to help us but I'm not going to make it this morning. I take morpheme for the pain Rachel it helps me more than what I used to take which was tramadol they used to make me very sick I don't know what your GP has given you but you really need something quite strong to help with this type of pain. I wish you good luck and hope you have a little peace from your pain today. Love Maureen x
Hi Maureen thank you for your reply sorry to here you have had a rubbish night too mine doesnโt seem as bad as yours tho, yes I agree donโt think I could crawl either ๐๐ have just got myself up the pain is in my arms shoulders back hands and my knees at present hope you manage to get some pain free time so you can rest sending hugs x x
Welcome to the group. We can all commiserate with you. I found my first 18 months the worst with flare after flare and very few even average bits in between. Eventually I found out more of the things that aggravated the pain and those that lessened it. Unfortunately, we are all different so what suits one doesn't suit another. Have you asked to be referred to a Pain Clinic as they are the experts and might be able to help with advice but often it is the way in to other therapies such as hydrotherapy or acupuncture. Hope you will be feeling a bit better soon. Look forward to your future posts.x
Hi thank you ๐๐ yes I feel that way at the moment having more bad days/weeks I have just got over pleurisy and Doctor thought with that was making the pain worse and for me to go back if still the same but not sure about yourself but hate going back as if they donโt believe me!! Iโm on co codamol and naproxen but they are doin nothing for the pain sorry I goin on now lol sending you pain free hugs x x x x
Pleurisy can give you a tremendous amount of pain around the back and rib area. I think you will find any infection unfortunately aggravates fibro. If the pain is different from your fibro pain I would certainly go back but like you if I never saw another doctor again it would be too soon, lol. I'm wondering whether you have ever tried Gabapentin or Pregablin as they can help with the neuropathic type of pain that many of us fibromites get? Hope you will be feelings but better soon.x
Lol Iโm with you on that one hate having to go!! No I havenโt but will mention it thank you so much for replying makes me feel like Iโm not the only one and that Iโm not losing my mind yet lol hope you have a lovely day x x
Welcome to our lovely friendly group rachel36. I'm so sorry that you're in pain Hun. Yes I definitely agree that it would be lovely to crawl out of my body due to the pain. I agree with maureenclayton, you definitely need to see your gp so you can sort out your pain relief. I hope you get some relief soon hunny. Take care and stay wrapped up warm and sending you lots of gentle hugs xx
Thank you miss68 itโs definitely made me feel Iโm not a lone I have the heating on full will not be doing much today I really canโt the pain is too much sending gentle hugs back Hun hope your day is good and your not in too much pain x x
You're definitely not alone Hun. I'm in a lot of pain. I'm still recovering from my grandson's naming ceremony on Saturday. It was only on for approximately 3-4 hours but just getting ready for it, the very slow walking around and then recovering from it for the rest of the day really took it out of me. It didn't help that I hadn't slept the night before. I took a sleeping pill last night so today I'm in pain and quite drowsy, so it's taking me forever to read through this site, in between dozing off etc. It's such hard work!!!!!! So like you I won't be doing much partly because my body isn't letting me lol ๐๐๐ฌxx
O no Iโm sorry to here your not that good either hope you have managed to get some sleep Hun ๐๐ x x
I slept well last night thanks. I think because I'm so slim, one sleeping pill knocks me out for 2-3days lol xx
Lol O no bless you ๐๐ I hoping to try and move soon and hoping I will be able to get back to work tomorrow ๐ฌ๐ฌ x x
Don't rush back to work too soon Hun. Your health has to come first. In the meantime, please take it easy. Take care of your pain too xx
๐๐ Thank you Hun I always put myself last and never first Iโm sure if the pain is like it is today I definitely wonโt be going Hun struggled really bad today ๐๐ ( Iโm a manager of a residential home ) so stressful and long hour sending gentle hugs x x
Sounds like we're typical women then lol. I'm a registered health professional so I know what a demanding and stressful job you've got. Especially if it's shift work too. I'm glad you're going to make a sensible decision about going back Hun. Thank you for my gentle hugs and I send gentle hugs back to you too xx
Lol I think we definitely are Hun thank you so much all of you on here you have made me feel so welcome and not alone Iโm not usually a person who talks about myself but feel over the last few months I see everything so negative but today you have made me smile through the pain ๐๐ thank you x x
You're very welcomehunny. You've made me smile too. Sometimes you can't talk to your own family about your health as you don't want to burden them. It's nice to find similar minded people on this site ๐ Xx
I definitely agree Hun I feel like they think Iโm moaning all the time Iโm sure they donโt but lol Iโm off slowly to run a nice hot bath then more tablets then back in bed hopefully drop off to sleep thank you again Hun sending good nite gentle hugs ๐ค๐ค x x x x
You're more than welcomeHun. Fingers crossed you manage to get some sleep. If you do go to work tomorrow then let me know how you get on. Take care lovely xx
I will do Hun hope you have a nice pain free sleep take care nite x x x x
Hi morning Hun how you feeling today?? Iโve managed to come into work ๐ฌ๐ฌ just having 5 minuets really wish I hadnโt the pain has just got worse as mornings gone on I have rang doctors an got appointment Thursday morning Iโm so keeping my fingers crossed they can give me something else sending gentle hugs and hoping you are alright Hun x x x x
Good morning Hun, can't believe you went into work! I'm so sorry that the pain is getting worse now. Hopefully the Dr can give you something stronger on Thursday. I had a crappy nights sleep again and now I'm very sore and sleepy lol. Oh well, at least I can stretch out on the sofa. Don't overdo it at work hunny. Take care xx
I know me too Iโm so silly Iโve just got home ๐๐ tired and drained sorry to hear you had a crappy nights sleep again Hun hope you have had a nice chilled day on sofa and managed to get some sleep x x
I've been trying to reply to you for about 40 minutes but keep dozing off lol. Sorry you've had such a long, painful day hunny. Get some sleep and we'll catch up tomorrow. Nite Hun xx
Hi thank you for lovely warm welcome ๐๐ hope your good as can be x x
Good Morning Rachel,
Apologies for my delay in welcoming you to our wonderful forum family!
Two things:
1. Please take a sneaky peak at our main site as it has loads of useful tips and hints -> fmauk.org/
2. I would advise that you lock your post as you will tend to get a lot more replies, I have attached the instructions for you - any problems please let me know!! healthunlocked.com/fibromya...
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Hi thank you for your warm welcome and tips x x
Absolutely no problem Hope you are well and have a great evening ๐ค๐น