Not Happy: Hi have just been diagnosed... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Not Happy

Heidibug profile image
5 Replies

Hi have just been diagnosed with fibromyalgia and I'm not happy , I have to figure out what to do next

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Heidibug profile image
Heidibug
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5 Replies
Sheyp62 profile image
Sheyp62

Well first of all breathe. It's not the end of the world believe it or not. A lot of what happens to you from here on out is in your own control I believe. Continue to exercise. That's the best advice anyone can give you. Start if you don't already. Just walk that's fine. Push yourself but don't hurt yourself. I think the more you tell yourself you're normal the more you will feel like your normal and the more you tell yourself you are a victim of this disease you will be a victim of this disease. I've been dealing with it for years and that's my opinion. The best thing to do is be prepared for people to not understand that don't have it... I wish I had not told as many people as I have. Sometimes I feel like they see me as an invilid and they don't treat me the same exactly. They make excuses for me and I don't think that's a good thing bless their hearts.

Do your homework... Keep up with the latest advances on FM, take a lot of hot baths, de-stress, de-istress, de-stress. Keep moving. Cut yourself some slack on the days you can't do things. The worst part of this disease is the things we tell ourselves when we can't do things. We're hard on ourselves.

Things don't come on all at once with this though... Nothing's going to hit you from behind with no warning, so just take a breath, smile and keep your sense of humor. And we'll be here to hold your hand and offer a shoulder to cry on when nobody else can understand.

Dizzytwo profile image
Dizzytwo in reply to Sheyp62

I love your reply I couldn't agree more I found it very positive and uplifting thank you xx

Mo

M0AL61 profile image
M0AL61ModeratorVolunteer

Hi and welcome to the forum. We are all in the same boat here, so we all understand the anger, frustration, fear and all the other emotions that we have after being diagnosed.

You'll find good support and advice here x

Heidibug profile image
Heidibug

Thanks everyone.

Dizzytwo profile image
Dizzytwo

Hi and a very warm welcome to the group. I think you may find no one here is happy to have fibro :( I have had it for 30+ years and there are others here who have had it even longer. I think Sheyp62 gave an excellent reply and i couldn't agree more with what was said.

You may like to look at our mother site it has a wealth of information you may find helpful.

fmauk.org

I see you have not locked your post. if you would like to do this now and for futer post this link will show you how to do that. healthunlocked.com/fibromya...

This keeps your posts private and of the world wide web and may help generate more replies. if you need further help with this or anything else please just ask. I hope you feel welcomed and enjoy the rest of your evening :)

Mo

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