I spoke to my doctor this morning who is a little concerned about me having a slightly raised ALT which she thinks could be raised due to a combination of my med's and weight gain (and she forgot to mention the wine), so just been to visit the vampires again and she has referred me for a Liver scan. Has anyone else had problems with this?
Other than that, when I asked who I could see with regards to the fibromyalgia she told that there was no-one she could refer me to as there is nothing anyone can do about it. She advised me read as much as I can about it and join a support group! Tick. She will investigate and monitor my raised ALT but other than that all she could do is increase my fluoxetine from 40 to 60 mg (really good for the liver). So there we have it, the reason why I gave up going to the doctor's in the first place ...just get on with it Karen...I am feeling so frustrated now and so unwell today I could cry.
Wishing everyone else a better day xx
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cuddlyka
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I had raised Liver Function Tests results back in 2008 to 2010 or 2011.
If I'd been a regular alcohol drinker , they'd have put it down to that! They considered 'fatty liver' whatever that means. Abdominal Ultrasound scan revealed numerous Gallstones but kidneys and liver OK.
However, very long story cut short, I was diagnosed with:
Hashimoto's Autoimmune Thyroiditis and Hypothyroidism in 2011. This was since Fibromyalgia diagnosis in 2010.
The Hashimoto's was finally diagnosed after I had the Thyroid Antibodies (TPO and Tg tested).
2010 Thyroid function tests of T4 and TSH only , were reported as 'Euthyroid ' that is - "normal".
In 2008, when I was very ill, no one actually told me that my bloods came back Hypothyroid. I should have been diagnosed and treated back then.
Since my diagnosis (may be before) my Liver results have come back to normal.
I remember being told many years ago by a former GP that I had abnormal Liver Function Tests results but nothing was done about it back then.
Hi, wow what a blood result journey you've had. I'm pleased to hear that they are back to normal with you.
The blood tests I've had done today, according to my daughter, are looking for hepatitis. My doctor mentioned fatty liver to me because of my weight gain and use of medication (particularly co-codamol). She didn't say anything about the wine even though I have told her that I've been drinking more than is good for me as means of pain relief but really I only have myself to blame if my liver is not feeling very happy with itself.
Going forward it looks like no more wine or comfort eating for me, (not sure how I'm going manage giving up both) which I fear will equal more med's (ie. the increase in fluoxetine already mentioned) and pain reflief but I will just have to be positive and see how things go.
Thank you for your kind wishes Mary-intussuception, I really appreciate them x
You've been quite a journey. They told me I had a fatty liver about 11 years back but could find no real reason for this as at the time I only had a moderate alcohol intake a few glasses of wine a week, eat very healthily and exercised alot. They intimated that for some reason some people are prone to it.
I honestly don't think they quite know how to help us fibromites as there doesn't seem to be a magic pill out there. My last GP said that joining a forum or support group (I already had) was the way to go as in his words "only the people who are suffering from that illness can understand its complexities), you can say that again.x
Hi rosewine, do you mind me asking if you still have a fatty liver or did you manage to put it right and if so how? How dreadful to have got it when you clearly did look after yourself.
Finding this support group has been a godsend to me as I tried explaining it all to a friend of mine together who then went on to ask me if I fancied a night out on the town..really!! x
As far as I know I still have one and it might have got fattier as of course after fibro reared its ugly head my exercise regime has now gone to gentle walking and light gardening. My diet probably isn't as healthy either as before I literally cooked everything from scratch and now unfortunately rarely have the energy.
Even friends don't understand do they. I thinks night in the town but probably put us in bed for the next week with a gigantic flare. Yes I think it is good to be able to talk to others that can truly emphathise with what you are trying to convey. Before diagnosis you can sometimes question your own sanity because of the diversity of the symptoms.x
I know exactly where you are coming from with regards to having the energy to make a healthy meal and with regards to exercise, the first thing I noticed about 10 years ago was that I could no longer do my Pembrokeshire cliff walks that I enjoyed doing without my legs turning to lead.
Going out for any occasion these days I face with dread and trepidation. After a good few glasses of the old rose then I'm usually "okay" and feel like I can take on the world and even quite enjoy having a "normal" hangover the next day as it is preferable to the fibromyalgia one but never worth it in the long run as you say!
I will try and stay off the wine and stop dunking rich tea in my cuppa's and eating cheesecake and ready meals and see if it makes a difference, but I don't hold out much hope!! x
The dunking makes me laugh. I am off to my book club today it is only 20 minutes drive and a small friendly group. We have the dunkers and the none dunkers and it seems to be an even split.
Yes I love a glass of Rose hence my moniker as I couldn't find a glass with rose that didn't look peculiar when I uploaded it so used a 🌹 from my garden.
Strange that was sign of my fibro coming as I was up in Scotland a walk I had done several times when my legs and body turned to lead. It took four times as long to get back as it had done to get to that point. Quite frightening.x
Rosewine...Love it...And there I was thinking it was a type of pink rose...you can tell I'm not a gardener!
Hope you enjoyed your book club today and the dunker's enjoyed their dunking, I'm sat here with a cuppa now and missing the dunking already as my pain relief is wearing off and dunking rich tea always made me feel better. x
When I was last in hospital I had a raised ALT and they did a Abdomen CT Scan and found Gall Stones and attributed it to that - still have them asymptomatic and so I live with them !
But this of course is just my experience, I hope your liver scan goes well. I am sorry you are feeling so low and I know how hard it is to live with Fibromyalgia. If you feel you need more support maybe you could look into whether there is a local group nearby you could go along to?
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