Fibromyalgia Action UK
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On Wednesday I go for lip biopsy. Have been referred by rheumy. My neurologist was very kind and told me it is very painful after !! Nothing showing in my bloods for Sjorgrens but have a lot of the symptoms. My my mouth is so dry and lips burn like mad. I carry bottles of water everywhere I go. It's so embarrassing when talking to people and I can get so dry I can't swallow. Have been diagnosed fibromyalgia and peripheral neuropathy, raynaurds. I hope having this is not a waste of time. I'm feeling a bit like a ,you know what I mean a little furry animal, sorry can't spell it lol. Has anyone gone for this procedure. What is your advice for after? Will appreciate any advice x LottieD

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The best thing to do is get a couple of small ice packs, wrap them in something and put it on your lip. This will help with the pain and swelling as it will numb the area. Maybe if you ask your surgeon, bonjela to the affected area may be ok. The important thing it trying to keep the swelling down. Lots of nice cold drinks, ice cream, icy poles , ice lollies etcIt is also important to keep the area clean and do some salty water mouthwashes.

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Hello LottieD

I am sorry but I have never come across anyone having a lip biopsy before.

Have you heard of Burning Mouth Syndrome before? I have had it quite a few times over the last year or so. My dentist has said that it is a classic sign of lack of Vitamin B12.

It is called Burning Mouth Syndrome because that is exactly how it feels.

When I get it I also have small "cuts" on the sides of my mouth and lots of ulcers.

I just wondered whether it would be worth you looking into?

Take good care of yourself

Lu xx

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I had an ultrasound for salivary glands. Instead of the lip biopsy.

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Hello LottieD .

I think it is perfectly natural to be worried before having any new procedure. I would like to reassure you that is not too bad, I have had it done and I was surprised how quickly it was done . It did feel a little odd but that was partly because its on your face and quite close to your ears? i hope that makes sense to you?

The pain was a little bit noticable for the next few days? But it responded well to paracetamol.

My lip was visible swollen for a few days and I looked a bit like i had been punched in the mouth or had fallen so I did get a few funny looks but no direct comments? So it was really nothing major? I had mine done as a test for sjogrens.

My advice is to try and relax and stay calm and the whole thing will be over before you know it? I know there are people saying it was terrible for them online but my experience was that it was quick and not too bad at all?

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Hi LottieD I have never had it done but I just want to wish you luck and I am sure reading from members who have had it done it sounds like you should try not to over worry. I know it is very hard but worrying will make it harder. No good ever come of worrying. Me been the greatest worry wart talks from experience here lol I'll be thinking of you {{{hugs}}}

Mo

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All the very best for Wednesday

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Hi LottieD

I am so genuinely sorry to read this my friend and I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken x

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I can't thank people enough for replying to my post. I certainly will heed your advice. You can always rely on this site to help you through when you need support with things only we can understand. I'll let you know how I get on. Mine is also to test for Sjorgrens. Thanks for the hugs and I send big hugs back xx LottieD

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I had this procedure quite a few years ago so may have changed now. I was suspected as having Sjorgrens Syndrome even though tests were inconclusive. I hadn't been diagnosed with Fibro at time.

My proceedure the made a small cut on inside of my lip, about 1cm long, they had given me local injection prior to this, so didn't feel any pain just movement when they were working, they had to take several I think it was minor salivary glands, I remember them saying they were cylindrical items they needed 3 or 4 of.

I had a stitch put in and obviously this was sore for a few days. I can still actually feel the scar now & must be about 19years. As it happened I didn't have Sjorgrens, and in 2000 I was diagnosed with Fibro & everything I ever get is put down to it, even though having had knee problems since I was 15 & 53 now I can tell Fibro pain from other pain, just some drs need convincing lol. Good luck for your proceedure, hope if it is like mine I've helped allay a few fears, definitely doesn't effect the look of outer lip as enough inside but not in the areas where more saliva as would take a lot longer to heal x

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Thanks for that info. Mine is suspected Sjorgrens but also diagnosed fibromyalgia , peripheral neuropathy, raynaurds. Hope this is ok because I've got enough medication as it. Thanks . LottieD xx

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