Afraid of being diagnosed

Hello! Well... not long time ago something popped up on my screen- an add for a Workshop how to live with fibromyalgia. It was something I've never heard about and just googled it. Such an unpleasant surprise to find out I've got all the symptoms. To be honest I "hate" doctors 😖 meaning I haven't visited my GP yet simply because I am afraid to be diagnosed. But I can't cope with the pain anymore and I don't know what to do!

9 Replies

  • Hi. I think wether you are diagnosed or not the pain and other symptoms will still be there if it is fibro that you are suffering from. Maybe it's time to seek advice from your g.p, ask to see a rheumatologist. A lot of g.p's don't recognise fibromyalgia as an official illness. Took me four years to get diagnosed. You have come to the right place to chat though. Best of luck to you, I hope you can get through your hate of doctors to get some answers for yourself. X

  • Don't be afraid well I guess that's easy to say but I was diagnosed 2 years ago now I used a walker with a seat I also wear a lumbar back brace. I will say that I also hate Dr's I have other health issues that cause me to need to see a Dr. I have a new Primary Care Physician have a appointment the end of this month. If you want you can write back

  • Good evening, My personal opinion is and no disrespect to yourself but I would say never google up anything till you have a diagnose. The chances are you will always find something to fit your symptoms .

    Once you have seen your doctor and they say you have an illness whether it be Fibromyalgia or cancer then read all the info you can to try and help yourself. Until you have seen and spoke to a doctor then it is pointless imo trawling the net to find an illness that may fit your symptoms.

    Sorry if this may sound a little cold but I like many more have been there done that got the tee shirt. Back in the day there was no google info for many not even a PC to be used but a library and I lived there. Please go talk with your doctor. Put your mind at rest. xx


  • Hi as Dizzytwo said best not to read into to much on the net you can end up thinking you have all sorts my doc said she would give me a thick ear if I did.

    You have taken the all important first step already by telling us how you feel go tell your doc the same you wont regret it.

    There are a lot of caring and friendly people on here if you want advice or a shoulder if you want to have a scream on a bad day.

    Good luck Rich

  • Hi Nelita79

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted for you below a link to our mother site, FMA UK which hosts loads of useful Fibro information:

    I know that you say that you do not like doctors, but if you go and get diagnosed you can then start some treatments, and hopefully feel an improvement? I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you


  • Hi there, agree with what's been said already, Mr google really needs to shut up till he knows what he's being asked! You really do need a proper diagnosis and I would take Jens advice and visit the mother site, maybe download an info pack or have one sent to your GP? Whatever you decide, a diagnosis is your first step so good luck.

  • Hello again! Thanks for all the replies! I don't really trust everything I find on internet- the information I found was from the NHS official website. I was just curious what is Fibromyalgia. I didn't think that's something I've got at all. Unfortunately when I went through the symptoms I was shocked.

    But I agree with all of you - maybe should visit my gp. I really can't afford to be ill and ignoring it is my way to stay on my feet :)

  • I agree with jan810 if you don't go you will still have the pain and if you go you will but he or she.may give you something to help .I know how you feel about the drs because I never go until it's desperate and I really mean desperate .So please go and get some help and let us know how you get on .X

  • The Royal National Hospital for Rheumatic Diseases in Bath is a centre of excellence for Fibromyalgia and they run a course called the Fibromyalgia Coping Skills course which is very good if you live within travelling distance. However, most local hospitals also run a Pain Management course which is very similar if you ask your GP or Rheumatologist to refer you.

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