Fibromyalgia Action UK

Pain

Good morning my name is natalie and I'm 32 years old. I've been diagnosed with fibromyalgia for over 4 years now. Which has become physically and mentally draining. Everytime I try to deal with it mentally I get something else. About a year ago I was diagnosed with trochanteric burtisitis in my right hip. Which I now believe has moved or also become active in my left hip. I struggle daily physically and mentally. I fight my self to walk properly without a limp or without stopping to try and push my self to be active, outcome at the end of day is I'm in so much pain to the point I cry my self to sleep. I was also diagnosed with anxiety and depression. At 32 I dnt want to be like this. I've tried every medication possible and nothing seems to work long term. What else can I Do??? I'm so drained being like this.

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Hello and welcome to our lovely forum.

There are lots of friendly lovely supportive people.

Please do take a look at our mother site

fmauk.org

There is also some pinned posts on the home page.

It is good idea to lock your posts for Internet safety

It will stop social media and world wide web accessing your information.

Love and best wishes

Lesley

FMAUK

Admin volunteer

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Hi Ndurance Accepting you have this condition is very difficult the best thing to do is do all the research you can (which probably you are doing)there are links on the homepage that are very useful both for the sight and for yourself.

I am so sorry you are going through this and I can imagine how much you must be struggling so I do hope you get the help and support you need from our lovely members and admin.

We are here to support you sending hugs

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Thank you. Just posted to see how everyone else copes. In hope i could try also and see what works best for me. I work and at this point in even considering leaving work. At nights I can barely sleep and then in the mornings I can barely wake. I feel like I'm a destruction of my own failure.

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Hi Ndurance I have to say it takes a lot of strength and courage to even contemplate coming on here your doing a fantastic job by just sharing.

Please give your self some time you could be having a flare up and this can always make us feel worse.

When your diagnosed it is like a blast in your body and acceptance seems to difficult. I found the site helped so much in seeing what others were going through. I felt people empowered me to be an advocate and a support to others and that was through the site and like minded people.

We are here to support you the admin are lovely so don't hesitate to ask questions and we will do our best to answer.

Good Luck xx

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Sounds tough at the moment. I think you should talk to your GP if not already. It sounds like you need to find the best options for you on pain relief, which could help you to get some decent sleep. 2 of the must haves, + dealing with the depression that often comes alongside FM.

Fatigue+Pain+Depression + variety of things in common with FMS can make life in general tough. I hope you feel welcome here and we all support each other. We understand what you're going through. Please talk to your GP and try to get some of the worst of your symptoms under control.

Wish you well XX

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Hi Ndurance Welcome to our wonderful forum, I'm sure you will love it and find it invaluable chatting to others who are going through the same as you, at different stages of their lives with fibromyalgia.

You really have come to the right place my friend and I look forward to chatting with you on the forum.

I'm so sorry you are in so much pain, my fibro all started at your age, so I do know how you feel. Have you ever been referred to a pain clinic ? Does your gp know the amount of pain you are in ? Hydrotherapy is very good for pain, gentle yoga stretches and breathing excersizes.

Please do go check out the mother site fmauk.org where you will find lots of useful information and links on fibro.

Peace, luv n light

Jan xx

ps.

It's a good idea to lock your posts to the community, so it's not open to the internet. If you look to right of screen you will see under "Pinned Posts" a link to simple instructions on how to lock it.

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Hi Ndurance

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

I am so genuinely sorry to read of how you are suffering and struggling and I was wondering if you have tried anything like a TENS Machine for your pain my friend? *NHS Choices says:

*A TENS machine is a small, battery-operated device that has leads connected to sticky pads called electrodes. You attach the pads directly to your skin. When the machine is switched on, small electrical impulses are delivered to the affected area of your body, which you feel as a tingling sensation.

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

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Sorry you are in so much pain. A few things you could try:

Electric Heat pads and heat wraps to help you at work. I have found thermaheat to be the best especially for the back.

Linnex heat stick is my best friend, available on internet. Gives very intense heat so only use a very small amount and build up,according to tolerance. Heat is more intense on sensitive areas such as the neck.

Massage, osteopath or chiropractor if you can afford them.

Gentle stretching. Have you seen a physio? They can give you some stretching exercises.

Make sure you pace yourself nad don't overdo things.

Wishing you all the best.

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Look at alternative treatments? There is lots of info on the net. Most drs meds only work in the short term and fibro is a long term condition. You will always be looking to increase meds or try something else, as your body keeps adapting to the meds. Sadly, as yet Drs don't understand fibro, and are limited in how they can help.

All meds have their side effects too. Lots of Fibros are badly affected by side effects while the pain killing effect is lacking or limited. I know some meds make the anxiety and depression worse.

If you have given meds a good try, and they are not helping and they don't help all fibros, then the alternatives can offer hope.

I take a Turmeric supplement that helps with pain.

More and more research is finding a link between tummy issues and mental health. You may be able to find relief from your anxiety if you can heal your gut and absorb the necessary nutrients needs for Brain health. You might read up about probiotics? Finally research is confirming that the Gut Biome is essential and not optional. We do damage to our good bug family at our peril.

I fear too many fibros are written off as anxious and depressed when the mental issues are a consequence of Fibro which is affecting the gut.

I also think fibro leaves us open to getting real injuries that seem impossible to heal. I wonder if this is due to the gut failing to deliver all the necessary nutrients to the body?

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