Hello

Hi I am here on behalf of my daughter, she is 31 years old and suffers from thyroid problems. I am here really because her thyroid results have been declared normal and on the right dose of medication and her symptoms seem to be something fibro related. However due to symptoms of high pulse and sweating she has been asked to reduce and has been told it will do no real damage. She finds it hard to talk to people, she is anxious, depressed, has lost her appetite, forgets things has debilitating headaches, loses things, has trouble concentrating. She has gotten on better than she did 6 years ago and has managed to hold down a job for 2 months so I am worried about the dose reduction. She is taking antidepressants and is being referred to Positive Steps for her mental health problems, just wondering if this is the right plan of action for her and if the doctor is right in saying she has fibro?

Thanks in advance.

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  • There is no "normal" with thyroid results, doctors will state results are normal as long as they are within range, normal may not be optimal.

    If she is getting symptoms she may well need an increase or decrease in her meds. She also needs to have her vits and minerals at good levels for thyroid meds to work.

    Do you have her results ? If you post them on the thyroid forum members will advise if your daughter's levels are indeed good.

  • I do have them, yes. I will go to the thyroid forum now, thank you.

  • Hello Juliec1966 and a warm welcome to our friendly fibro forum where you can find help, advice, support and understanding. Our mother site fmauk.org has a wealth of information about fibro, including guides and links.

    It is difficult to diagnose fibro and some people spend years having blood tests, scans etc.

    Has your daughter been tested for other conditions like lupus or Lyme Disease? It is when all tests and examinations come back negative that fibro is considered as a diagnosis.

    If your daughter is unhappy with the doctor's diagnosis, she can ask for a referral to a rheumatologist or neurologist, where fibro can be confirmed, or not as the case may be.

    Whilst it is true that hypothyroidism can accompany fibro there is no link to suggest it causes it. Sometimes the symptoms can be remarkably similar and it is often difficult to differentiate the two. I think I would ask for a second opinion about thyroid levels as you can be just in range but still have symptoms.

    My own personal feeling is your daughter needs further investigations to rule out one or the other or confirm both.

    Good luck and please keep us informed of any developments.

    Kay

  • Thank you, I don't think she has Lyme disease.

  • Sounds very hard for your daughter have you thought of trying the thyroid foram for help I do believe there are some members here with thyroid decease too but this site is for Fibromygia syndrome You would get more in depth advise about thyroid on the correct foram with you daughter needs stay here too if you feel you need to Good luck 😉

  • Hi Juliec1966

    I sincerely hope that you and your daughter are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

    .

    I am so truly sorry to read that your daughter is suffering and struggling in this way, and although these symptoms sound a great deal like Fibro they could also be other medical conditions? An example from *WebMD Boots Pharmacy who say:

    *Difficulty concentrating, Fatigue, Forgetfulness and Memory problems. WebMD Symptom Checker helps you find the most common medical conditions indicated by the symptoms difficulty concentrating, fatigue, forgetfulness and memory problems including Depression (Adult), Medication reaction or side-effect, and Sleep apnea.

    .

    I have also pasted what the **NHS Choices say about Fibro, and they are quite similar:

    **Introduction

    Fibromyalgia, also called fibromyalgia syndrome (FMS), is a long-term condition that causes pain all over the body.

    As well as widespread pain, people with fibromyalgia may also have:

    increased sensitivity to pain

    fatigue (extreme tiredness)

    muscle stiffness

    difficulty sleeping

    problems with mental processes (known as "fibro-fog") – such as problems with memory and concentration

    headaches

    irritable bowel syndrome (IBS) – a digestive condition that causes stomach pain and bloating

    .

    Usually to get a Fibro diagnosis, a series of tests are run to rule out other medical conditions prior to a diagnosis. However, there are no specific tests for Fibro itself. I have pasted you the link to the NHS Choices cache on Fibro diagnosis:

    nhs.uk/Conditions/Fibromyal...

    .

    I want to sincerely wish you both all the best of luck and please take care of yourselves my friend.

    All my hopes and dreams for the both of you

    Ken

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