Fibromyalgia Action UK
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Hi everyone I am currently feeling depressed stuck in bed with a urinary tract infection and a migraine and my fibro has seemed to flare up to all symptoms go. I have a 10 year old son who is amazing and a very clever teenage daughter. I feel useless and worry that my children must get fed up with me being ill and not able to play ball in the garden or cook dinner.I am lucky to have a partner of 20 years to cook for the family when I'm like this. Some days I'm ok just in pain and some days I am in this state where I feel in so much physical pain from head to toe that I feel like giving up. The sickness and migraine and overall unwell feeling is never ending today. I'm hoping I will feel better Tom as I felt better yesterday? But then today happened is this the normal run of things with fibro?

7 Replies

Hi there

I have lived with Fibro & ME for 36 years, so am just speaking from experience here.

I have also had lots of UTI's. Unfortunately all 3 of these conditions make you feel as though you have the worst 'flu ever, so put them together and that's why you feel so low and poorly.

Your children love you unconditionally and will just be happy to have you around.

Just because you can't play ball outside doesn't mean you can't have an indoor picnic, watch a film together, etc.

There are lots of games you can play indoors with your son that don't take a huge amount of effort.

With regard to your UTI don't drink any concentrated juices, cut out as much caffeine as you can and drink lots of water.

Lemon Barley is especially good as well as Cranberry Juice.

You are putting a huge amount of pressure on yourself that you don't need to be doing. It will just make you feel worse.

Be kind to yourself my friend.

Lu xx

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Thanks Lu, I do spend a lot of time with my son playing chess, watching television, reading , etc I suppose it's just the not being able to get up and do the physical games is making me feel useless and old before my time. uTIs are grim as you've experienced and a relative suggested lemon barley so with your advice as well ill give it a try. I'm not always this miserable but discovered this site today and thought I try and talk to people with similar symptoms.

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Hi April, I am felling the same myself but I am suffering from the fibro, hip bursitis and migraines. The migraines have been going for last four days and I always think it is them that push me over the edge into depression. I feel quite useless and fed up like this. I think sometimes we just have to give in to fibro and feel depressed, it is a s*** life at times and we cant pretend otherwise. But, the best thing about fibro is it will change nothing stays the same for long. This thought is what gets me through, hope tomorrow is a better day for you


Greetings Shazzy and all. I'm sorry for all of us who are suffering w pain. Some days I, too, feel so low I lose hope. It's as if hope hops away and I just can't get a grip on it again. I've been suffering migraines again, even while following Josh Turkett, MDs protocol.. ketogenenic diet. Absolutely no sugar no carbs. Rebound migraines rebounding off themselves (I've simply been suffering through w ice)for four or more days on top of Fibromyalgia and Psoriatic Arthritis. Thankfully I've a good physiotherapist who has been able to teach me to help myself during flares. I've not been to hospital in over four years w treatment. Before the therapist would hurt me. I was oblivious bc I didn't know better. I think the PA is really RA. We must learn to push ahead w self love instead of self loathing. Do you (the great collective you) think Fibromyalgia only heralds in another disorder? It appears to me that where there is Fibromyalgia, there are multiple other illnesses to deal with that do injure our bodies. I'm sending out virtual hugs and hope to all. We need to hold hands or minds and be thankful for each other. We also need to be grateful for our mates and friends who help us by putting up w our bad days and for loving us. Let's concentrate on the gifts. That just might be the key to finding hope. ? We've managed to find one another. Let's take a slow walk in rain or shine. That might be the way to find sleep at the day's end and the more we do it the better. I hope you, and all, feel energized soon. :-)


I'm not very food at suggestions but what about considering what you can do rather than worry about the cant? If you cant pass on cooking skills to your children, perhaps knitting or something that doesn't require standing so your still physically able to do it and still feel like your a part of the family, still able to pass on knowledge and skills to your children?

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My wife has Fybromyalgia she has suffered it for a few years and only got diagnosed recently because a lady doctor at out of hour's A & E took the time to listen . She suffers savere pain daily and as a family we have all had to adopt to help her needs ( kids included ) she hates taking medication and fybromyalgia meds make her like a zombie though do help with pain. I hope you get rhe help you need,regards F.

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Hi April3318

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I am so truly sorry to read of your suffering and struggling and please do not feel guilty for having an illness that is beyond your control?

I can truly understand how you must feel about missing out with certain activities with the children but many parents do because of work commitments, so please do not torture yourself my friend as this could make you feel worse in the long run.

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you



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