Flare Ups

Hi All. I'm newish on here, I have commented a few times but never posted. I was diagnosed definitively in Feb this year but my dictor and I have looked at my notes and past appointments and belive it started when I was 16. I'm getting over the many years of doctors telling me I was fine, nothing in my test results and so on, as mt doctors have been great and very knowledgable (begs the question why couldnt they diagnose me earlier?). I've just had an app at the physio at the hospital and he was great, offered me hydrotherapy and physio but it's all during the week and I work fulltime. He mentioned flare ups and I've read many on here talking about flare ups. I'm a bit confused about them as I am always in pain and tired, banging headaches and hyposensitivity. I don't have good days, just normal ones and bad days. So basically what is a flare up.

7 Replies

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  • For me when my head and body burns up. The pain is so intense that I can't breathe properly. That makes it worse when your emotions are all over the place.

  • Hi there Rachel847 welcome to the group, Have you looked at our mother site fmauk.org there is tons of valuable information you may find very useful. Sorry you have been diagnosed with fibro but I am glad to see you are still managing to work that's good news.

    I think a flare may differ from person to person Rachel in the same way Fibro symptoms are different for different people. A bad flare for me means I can not get out of bed at all I have pain from my ears to my toes and can not move. I have noticed at such times this is when I get an attack of CFS sheer exhaustion. Please feel welcomed to our group {{hugs}}

    Mo

  • Hi there Rachel847 and welcome to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

    It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are.

    As our lovely Dizzytwo has said, it's a very difficult question to answer as we are all so different, some people cope with working and bringing up a family, where other could be bedridden. If you look to right of screen you will see a number of blue links under " Related Posts" This may be of some use. I look forward to chatting with you on the forum.

    healthunlocked.com/fibromya...

    Peace, luv n light

    Jan xx

  • Hello and welcome Rachel847

    I do hope you enjoy our lovely forum I see you had the lovely admin informing you of the site and homepage so just agreeing with them to say this is a friendly and supportive forum and we love seeing the support you give each other.

    Keep sharing your stories

  • Thank you for all your answers. I guess it's just a case of keep sane and carry on 😊 the Tramadol helps a bit and combined with the amytriptaline it helps me get to sleep and go back off after every wakeup until its the dreaded get up time. I can still work even if its at the expense of a life outside of it. So Ill just have to figure out the flare ups if/when I get them. Thanks All 😊

  • Hello Rachel847 and a warm welcome to our friendly fibro forum where you can get advice, support, help and understanding, along with a giggle ot two to lighten the day.

    A flare up does differ from person to person and some people may feel that they are in a permanent flare up.

    For me, it has me in bed absolutely exhausted and not interested in looking at the television or even reading. The pain feels like I am a wooden toy puppet and someone has pulled all my strings up tight. My flare ups can last two or three days and sometimes a week but not often beyond that.

    When it is dying down it feels like I am "washed out" but not like the previous exhaustion, more extreme tiredness.

    If you look to the right side of your post to Related Posts in blue, (you may need to go to Landscape if using a phone), you will see other members experiences.

    I hope this gives you some idea.

    Looking forward to seeing you around the forum.

    Kay

  • Hi Rachel847

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. As the others have said, both Fibro and flare ups can be different for everyone. For me, a flare up is akin to having the flu and I am totally exhausted, in pain and have to stay in bed.

    I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you

    Ken

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