Fibro flare up: Hi all, my named Nadia... - Fibromyalgia Acti...

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Fibro flare up

Nadiam profile image
Nadiam
•5 Replies

Hi all, my named Nadia, I'm very pleased to meet you all

I'm on here today as I believe I am having one of the worse flare ups every😥😫

I'm having really bad pains in my thighs and hip areas and also my shoulders arms and neck. I'm thinking of going to A&E But not sure what they can do for me, I've come off my pregabalin and is was taking more and more but I was still the same. I'm on co codamols every 6-8 hours but as you know it messes your bowels up. I can't stand commotion around me right now. I'm finding it really hard getting up from sitting or laying, the pains in my thighs are so bad I don't want to move

Does anyone have any advice for me, I'm so desperate for help xxxxxx

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Nadiam
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YASMINTINA profile image
YASMINTINAFMA UK Volunteer

healthunlocked.com/fibromya... , hello and welcome you do sound like you are in a flare and resting and pacing yourself is certainly the best approach, can I ask did the doctor gradually wean you off your media ?? I can understand you need quiet as well. If you need a piece of mind you could ring the 111 service and talk with them. It is horrid the pain, are you able to have a warm bath, I often say to members warm baths if possible and soak in Epsom salts. I try not to have co codomols as differently mesh up my stomach. But if you feeling desperate I would talk to someone, if we get uptight and worry (I know I’ve been there) it will make you feel worse, have you any family with you today, I have posted a link above if you would like to lock your posts.

Nadiam profile image
Nadiam in reply to YASMINTINA

Thank you for getting bk to me. Yes we slowly came of the pregabalin and I try not to take co codamols but have no choice at the moment. Will definitely get some Epsom salts as I do have hot baths to help. I also use a cream called Actimas (celafen) it help a a bit but this constant thigh and shoulder pain seems nothing can help it😑. And I feel so tired but can't get comfy to sleep. I HATE this illness xxxx

YASMINTINA profile image
YASMINTINAFMA UK Volunteer in reply to Nadiam

Yes it’s horrid , I had a bad nite, so hard as we try really hard everyday to keep positive x

Hi Nadia, sorry you're so poorly. How long have you been off pregabalin? I too didn't find them helpful and had to taper off them. I felt worse at first and had to take a lot of time off work. It's horrible to be in so much pain, I hope it eases soon...take your painkillers, have a hot bath and try not to worry, you won't feel like this forever xx

twinks123 profile image
twinks123

Hi Nadia

So sorry you are having such a hellish flare up.

Have you tried amitriptyline? This helps me and when I have a flare up codeine seems to help me some of the time.

I hope you get some comfort soon xxxx

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