Hi

Hi everyone I'm just lookingoing for some advice if possible. I havery a condition called scolosis and as a result have a 43° curve in my spine which causeshould many problessings on its own, however a friend of minequality was recently diagnosed with fibromyalgia and has said my symptoms are similar to hers as I have problems with the use of my arms as well as my legs which I've been told is all due to my scolosis. The thing is after reading and speaking with her I'm starting to wonder if I could have it too but docs won't take it on board and am at a bit of a lose of what to do. If anyone can give me any advice I would really love it and thank you for taking the time to read my post

5 Replies

oldestnewest
  • Hello and a warm welcome to our friendly fibro forum where you can find help, support, advice and understanding. Our Mother Site fmauk.org has a wealth of information about fibro, including guides and links.

    Normally a fibro diagnosis comes after extensive tests to rule out other conditions like lupus and Lyme Disease. It is given when all other conditions have been eliminated.

    I suggest you ask for a neurology or rheumatology referral where you may be given more information. Some members have waited years for a diagnosis undergoing different scans xrays and blood tests.

    There are many causes of fibro, prolonged illness, mental or physical trauma, a difficult pregnancy or labour amongst others.

    The main problem is that fibro is a very good mimic of so many diseases and conditions and it can be difficult to know whether your symptoms are caused by fibro or something else, or even fibro AND something else.

    Do please read the information on our mother site. The NHS also has information about fibro. nhs.uk/Conditions/Fibromyal...

    I wish you well and look forward to seeing you around the forum.

    Kay

  • Thank you for replying to me. I had a really difficult birth with my daughter and I turned life support off on my mum at 23 there's more but won't bore you with all the details so my friend thinks that with emotional and physical trauma I have had can be contributing to why I feel so awful. It's difficult for me with my underlying spinal problem and all the medication I've read people are taking it already take and am in the process of full blood and urine tests being done but they are to test liver kidney functions and glucose. I'm just at a loss of whete to go next but will definitely check out the links. Again thank you for the advice x

  • Hi Michelle1507

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I can imagine that you could have the two or more medical conditions at the same time as many members do have secondary conditions. The *VeryWell website cache says:

    .

    *Scoliosis/Low Back Pain:

    In one study, about 25 percent of people with low back pain eventually developed fibromyalgia, and scoliosis or other postural disorders made fibromyalgia more likely. Other research confirms the link with scoliosis.

    Interestingly, a deficiency of melatonin, a hormone and neurotransmitter that may be linked to sleep disorders, is also believed to contribute to scoliosis.

    .

    So it is plausible that you could have both conditions? However, the pain of scoliosis must be severe? I have pasted you an excerpt from the **Spine-Health cache below:

    **When degenerative scoliosis becomes symptomatic, the main goal of treatment is to reduce pain and/or any accompanying neurologic symptoms. Treatment does not tend to focus on correcting the curve because that is typically not the cause of pain, nor is the curve likely to progress enough to cause a deformity.

    .

    If you cannot find a doctor at your surgery that will listen to your concerns, it may be prudent to present at your local walk-in centre when you are in a great deal of pain and seek their consultation?

    .

    I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you

    Ken

  • Hello and welcome. I'm so sorry to hear too about your losses. I recently lost my partner.

  • Hi, you really have been through it and I can understand your reasons for contemplating you have fibro. Trauma of any kind can be a trigger for it and you already have a physical condition which makes you unwell too.

    It is good that you are having the blood tests and you may get some answers from there. If you feel you are getting nowhere with your GP, ask to see another in the practice or consider changing altogether.

    Whilst it does feel satisfying to have a fibro diagnosis as a reason for your ills, it can be depressing to know this is a chronic condition without cure.

    Be kind to yourself and rest.

    Take care.

    Kay

You may also like...