Great news

[Jayney61]

Great news from the courts that Fibromyalgia is ground for declaring a permanent disability, states the BBC news

[bluebell99]

Really? !! That's great news, perhaps we will now be taken seriously by all those medics who think we imagine our symptoms.

Xx

[Admin_AFMCG in reply to bluebell99]

Hi Bluebell99

Hope you're feeling OK today?

I cannot find the news story online at present unless this was televised maybe?

BW

Emma

[Admin_AFMCG]

Hi Jayney61,

Thank You for posting

Have you got a link about this story please? If so, could you PM it if it is now allowed on the community forum

Many Thanks

Emma

[Jayney61 in reply to Admin_AFMCG]

It was posted to my facebook page I clicked on it to read but could not find a link to send here sorry

[Admin_AFMCG in reply to Jayney61]

OK Thanks for looking - I googled Fibro Warriors and cannot find it ! If you stumble across the source again please do post the link or PM me

[suzey26j in reply to Admin_AFMCG]

Just looked it up ,if you put in bbc courts recognise fibromyaligia I think it's Ireland but still a good read ,suzey x

[catherine19611 in reply to Admin_AFMCG]

it was posted on 21 September 2016, it is on the BBC/news page search fibromyalgia

[Ccupcakes in reply to Admin_AFMCG]

bbc.co.uk/news/uk-northern-...

[Jayney61 in reply to Admin_AFMCG]

google Fibro warriors

[bluebell99]

Hi Jayney61

I have had the radio and television news on and have not yet managed to find it. I did google it and there is news that Northern Ireland recognises fibro. Is this where you live?

Kay

[Creativeness1]

Thats great news maybe sufferers will now be taken seriously.

:)

[bluebell99]

Hi Jayney61 I have just followed the link and see that it applies to Catalonia in Spain, and looking at the the date, it was seven days ago.

Have I got the right place?

Kay

[Hidden in reply to bluebell99]

I have just read the same as you Kay via Jayney61 post

[Jayney61 in reply to bluebell99]

oh dear I am so sorry with it been on the BBC I thought it applied here, oh god what will people think of me now, I am so sorry

[bluebell99 in reply to Jayney61]

No problems at all, easily done in the excitement of good news.

How good it would have been with our lot though

X

[Admin_AFMCG in reply to Jayney61]

no worries at all, please don't worry

[Admin_AFMCG]

Thank You Jayney61 - Is it the Breaking News article you are referring to? If so, this story in the US about a court case in regards to Social Security. I am sorry I cannot find anything about the UK only Northern Ireland as Bluebell99 has mentioned.

All the best, Emma

[catherine19611 in reply to Admin_AFMCG]

isn't Northen Ireland part of the UK?

[Admin_AFMCG in reply to catherine19611]

Hi Catherines19611,

Thank You for your reply

Of course but I think if you read the article it says NHS England recognise the condition however in NI the Patient and Client Council in Northern Ireland were inundated with complaints about the Healthcare services in NI.

In 2008, FibroAction's Lindsey Middlemiss took it to parliament (read here publications.parliament.uk/... and was instrumental in updating the NHS Choices information to help people living with Fibromyalgia

However, there is a long way to go in the UK as the condition is still listed as musculoskeletal in WHO Classification and NICE has no guidelines for treatment.

What I was trying to relay without sounding rude is that the article mainly centred around the Patient and Client Council in Northern Ireland NI recognising Fibro rather than an article relating to whole of the UK.

I am hopeful with campaigning it will improve and this good news will come - it would have been a wonderful present for May 12th - Int'l Awareness Day !

Unfortunately, I think because this wasn't picked up last year by any of the UK charity's for Fibromyalgia that maybe it is not the news we might have been hoping. Sorry to sound negative, just being honest.

All the best

Emma

[bluebell99]

Oh dear, what a shame and we were all so hopeful too.

X

[LtAngua52]

Only in northern Ireland but it's a start! Lucky them!

[TheAuthor]

Hi Jayney61

No problem my friend. Several countries are recognizing Fibro as a long term chronic illness. Spain have already done so, and Northern Ireland is following suit. Hopefully the rest of the UK will soon.

All my hopes and dreams for you

Ken

[ukgospeldiva]

We all know it's perminant!