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Fibromyalgia Action UK
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Incessant Need to STRETCH with NO RELIEF!

I read an earlier post on this topic that is quite a few years old. I have recently been to a neurologist, rheumatologist, and have had an MRI, bloodwork, and X-Rays and all of these doctors, including my psychologist and GP, look at me like I'm an idiot bc they don't know what I'm talking about. I've had this since I was about ten years old but it has gotten progressively worse. I am now 40 and the only thing that has given me any type of relief is opioids. Can anyone tell me what is going on? I have OCD and have read that Howard Hughes had this issue but still no one can explain. I am American and do not have insurance. My savings account is drained. I've just recently started magnesium supplements. Nerve relaxers put me to sleep and I can't drive (tintantimine was the worst).

8 Replies

It's not. RSL BY any CHANCE is it . X


Sorry you are dealing with this. Not sure if mine is the same as yours but I do feel I could decide it as that.

Have you tried adding foam rolling to your stretching routine?

Or tried Apple Cider Vinegar with mother drinks?

(My recipe is

15ml raw apple cider vinegar with mother

15 ml raw honey

Half a lemon

8ish Oz of water)

I am really very surprised by how the ACV has kept me. I still have knots but they are reducing and my muscles are loosening.

I have been trying to add juicing back in but it's just not always possible.

But if what you are experiencing is like mine those three things could you. Now we are different and what helps one doesn't always help another.

And magnesium chloride oil diluted with distilled water. That has also helped my muscle issues.

Goodluck ××

Also it wouldn't hurt to look into myofascial pain syndrome and see if you might be dealing with it and fibro. Just an idea.


Hi EricaSmith

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted for you below a link to our mother site, FMA UK which hosts loads of useful Fibro information:


I am so truly sorry to read of the problems you are having with the feelings of the need to stretch. I feel like this constantly due to Peripheral neuropathy. My never damage was caused by diabetes. I have pasted an excerpt below from the *NHS Choices cache on this issue:

*Symptoms vary according to the type of peripheral neuropathy and may develop quickly or slowly.

The main types of peripheral neuropathy include:

sensory neuropathy – damage to the nerves that carry messages of touch, temperature, pain and other sensations to the brain

motor neuropathy – damage to the nerves that control movement

autonomic neuropathy – damage to the nerves that control involuntary bodily processes, such as digestion, bladder function and control of blood pressure

mononeuropathy – damage to a single nerve outside of the central nervous system

In many cases, someone with peripheral neuropathy may have more than one of these types at the same time.

A combination of sensory and motor neuropathy is particularly common (sensorimotor polyneuropathy).

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you



Hi EricSmith

I am so sorry to hear this as i am not a medical professional i would suggest you look at the sight and information The Author sent .

I so sorry about all this pain your feeling. Do hope you get some relief.

Good luck and best wishes

I really hope you can get the help you need.


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I understand, I'd I don't take my Naproxen I get this constant need to stretch.

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Hi EricaSmith

As Matrix says, it sounds to me like it could be RLS, Restless Leg Syndrome. Is it an uncontrollable urge to move your legs, is it helped by walking around, is it often accompanied by pain and/or a tingly creepy crawly feeling in the legs. If so it could well be RLS.

I have it as well as ME and Fibromyalgia.

There is a really good RLS forum here on Health Unlocked (I'm on there too). Pop over there and have a look, see if you recognise what people are talking about. I'm sure they will be able to help.


Gentle hugs, Margaret. xxx :)


I have fibro ME RLS too and several other things as well RLS is a miserable condition , I'm on that forum too . I think a lot of people with fibro have RLS also , I'm surprised your dr didn't know what it was but honestly I don't have a lot of faith in Drs myself if you have a good one you are blessed they seem to be few and far between . Pop onto RLS board I think you might recognise your symptoms . X


I'd bet my bottom dollar it's RLS related. I understand completely ! When it hits it hits hard ! You mentioned you take opioids ...it's very possible that when you don't take your med..you are having a withdrawal of sorts. Happens to me..if I forget or try to skip . I get RLS and its accompanied by the stretch thing. Took me awhile to figure it out .. Bless you ..XX

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