Fibromyalgia Action UK
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Three week pain management rehab programme

Hi I was wondering if anyone has been on the three week pain management rehab programme ,I am due to go on this in June run by a orthopaedic hospital near London I'm from the midlands I would love to hear from anyone who has been on this with thanks joanne x

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Stanmore hospital refered by gp

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Is it the one at Stanmore orthopaedic hospital? I have heard good things about it but have not been myself. I have been wondering if I should ask for a referral , please keep us updated and hope it will be beneficial for you 😊

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Thank you will keep you posted

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I don't know of anyone who has done this, so good for you to try this out!

Please post about what you did and how effective it has been, I am sure I am not the only one interested!

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Hi joed

That sounds like wonderful news! I have not undertaken anything like this myself but i have pasted you a link to the NHS - The Walton Centre cache on their Pain Management Programme (PMP):

thewaltoncentre.nhs.uk/112/...

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken x :)

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Thank you ken I will let you all know how I get on

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Thanks joed my friend and good luck x :)

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Hi Delicious21, I have been on a 6 week pain management programme (3 hours each session). I live in Manchester area and was referred by consultant. There was a Physiotherapist and mental health person delivering + a GP observing a couple of sessions. They covered info on how to manage pain, different medications, CBT and a lot of emphasis on the importance of exercise. The last hour of the class was circuit training (at your own pace), followed by meditation/relaxation. At the beginning of every session you discussed what you had achieved that week and you were set goals for the following week which included an exercise plan and doing something you're usually too tired to do i.e. going out for lunch or a housework chore etc.

We started with 10 people in the class and it dwindled down to 6 by the 2nd week. I think people were put off by the exercise programme and that maybe the physio was a little too perky/pushy. I enjoyed talking to other people with fibro and learned some useful tips (ironically, from them not the physio) but I never continued the exercise plan or signed up to the gym, even with the discount they offered me as an incentive. I know exercise is supposed to be good for fibro sufferers - but I have a hard enough time keeping my career, running a house and spreading myself around friends/family and the pain is not worth a bit of extra serotonin - I'd rather have a bar of chocolate, ha ha.

I think It's worth you going but it wont cure you. However, it will teach you how to pace yourself, can lead to other avenues of support such as CBT support, exercise plans, meditation and you may make some new friends who understand what you are going through.

Of course, the one down south may be run entirely different to the ones up in the Northwest. It would be interesting to hear how you get on.

Best of luck with it + take care : )

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Sorry ... I called you Delicious21 (I've just realised) .. I meant to say "Hi Joed" ... I've been up all night - attention to detail is out the window, ha ha.

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I live in the midlands but I am going hotel based for three weeks its Monday to Friday all day I'm staying down there for the whole three weeks as its so far away Il keep people posted how I get on

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Dizzy sweetheart has covered what I would have said having attended Walton's pain clinic.

I have since referred myself to Manchester's podiatry department at Salford University who in turn referred me to there excellent physiotherapy department.

After 3 months following orthotics and weekly physiotherapy there is a marked reduction in pain ie hips,knees and feet.

There is a nominal fee of £8 for treatment but well worth it.

Carol.

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No not at all anything l can do to help.

I wrote to the podiatry dept at Salford University and asked for a biomechanical assessment with a view to having orthotics as I suspected a discrepancy in leg lengths which was worsening the pain...

I paid an initial fee of £80 this was for the assessment and orthotics.I didn't feel any benefit initially as they were maybe being over cautious with there adjustments but eventually I would say the feet are 80 % improved..

Don't accept if you don't feel any benefit at first the fact that they are students and are learning and need your input but you will be seen throughout with a senior tutor also.

Then physiotherapy was recommended for the hip pain..

If you need any further info please feel free to contact me.

Good luck.

Carol.

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Speaking from the States...i haven't been. Yet I have heard about 50/50. They like, the don't like

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