Stress With Hospitals and Advice on Injection Treatments

[tiny_kp]

I'm new here and I have been suffering with back pain for over 4 years and has slowly started to move to my hips, feet, knees, hands and shoulders. I have been constantly messed around by hospitals changing my diagnosis and sending me on my way without any help or explanation as to what is going on with me. At my last appointment with the rheumatologist I got discharged before I had even had my MRI scan done and I have yet to receive the results or any indication of a follow up which only ever happens if I ask to be seen too again. I then got a letter from them saying i have Fibromyalgia without even testing me for it or explaining what it is, they never mentioned it once face to face. I am 22 and can't get my life on track cause I have no help or understanding as too what is going on with my body, I can't take painkillers because of other medical problems and have tried everything except for pain relief through injections, the question I have is did anyone else struggle getting a diagnosis and if you have had injections how do i get referred for them and how long do they last and would i ever have to do them myself?

Thank you for your help and reading my rant.

[tiny_kp]

I haven't where can I find it because I can't see it

[BonnieSue]

It seems to me that you must 1st go to some medical professional and get your diagnoses straight. This could be your GP or Internist. Once that is done, you can then look at your needed treatments and follow through with them in a logical fashion. You must see which specialists you need, prioritize them by urgency and note how to minimize their numbers and treatments to keep your life the simplest as possible.

[TheAuthor]

Hi tiny_kp

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted for you below a link to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I have never had the injections myself but I want to truly wish you all the best of luck with them. I am so genuinely sorry to read of how you have got to this point and with the poor treatment from the medical community at large. If it were me I would be very angry and on the phone to them and asking them what they are playing at and making formal complaints.

As BonnieSue says I would push for a proper diagnosis and discuss treatment with them from this? I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

[mand65]

I had the same experience a visit with rheumatologist a diagnosis of likely fibro, then no in put from anyone that was 4yrs ago , dispite several Dr visits still no advice or pro active action. I dont thi k i have ever had the chance to fully explain all my symptoms, i eventually had a melt down at the drs this wk and got a referral for an MRI and rheumatologist follow up . Ihave nerve block n steroid injections in my shoulders and knees as i also have osteoarthritis, but the relief wasnt worth the pain of having them as it only lasted a few days and i can only have them every 4mths . These have been withdrawn now as i wasnt really benifiting . Good luck with finding a suitable and successful. consultant and treatment x

[Pegsmum in reply to mand65]

Hi Ive had a nerve block injection in my shoulder for arthritis but its been followed by a 5/6 sessions of physio and exercises I do every day. Fingers crossed this will give a bit more of a permanent relief. I have had the injections before but never combined with physio and daily exercises. Ill do them for ever if it relieves the pain. My life was getting smaller and smaller before this intervention, Hope this helps.x

[lana59 in reply to mand65]

Hi mand65. Two weeks ago I had ultrasound scan-guided steroid injections in my arthritic feet. I have to say that thus far my feet have been a lot less painful and the injections actually appear to be working. I would never again bother having human guided injections as only one has ever worked out of about 12. Ask your gp about them, you may have some success, you never know.

[tiny_kp]

Thank you everyone for the help and advice and I am sorry others have gone through the struggles of diagnosis like I have. I have booked an appointment with my GP to see another specialist and to try and get some help and some proper diagnosis, hopefully that will be the start of me getting some form of treatment because right now I am just in too much pain to do anything a person my age should be doing. I hope everyone is well and I hope you all are/will get the help, support and treatment you need x

[bluebell99]

Hello and welcome to our friendly forum where you can find advice, support, help and understanding.

What you are going through with a diagnosis has been experienced by many of our forum friends. Unfortunately fibro tends to be the diagnosis that is given when everything else has been eliminated.

You will need to be aware of lazy or ignorant doctors who put every ailment down to fibro and refuse to consider other conditions. It is very common to have other conditions with fibro, like osteoarthritis and some autoimmune diseases, IBS, migraines and more.

I say this not to worry you but to be open minded and push for further testing if needed.

It may surprise you to learn that fibro goes across the age range and teens and twenties can be sufferers too. Perhaps you could ask your doctor for a referral to a Pain Clinic to learn how to cope with the pain and fatigue.

Hope you find your answers very soon.

Kay

[tiny_kp in reply to bluebell99]

I am going to my GP to see if he can refer me to a pain clinic and I was recently tested for auto immune problems because i have a high white blood cell count and I have been getting really bad hives from head to toe so I know I have an auto immune problem and that is why my doctor wants me to be seen again by the specialist but the frustrating thing is that in a letter they said that i have all the symptoms of fibro and that's what they think it is but the fact they never asked to see me again to confirm it is ridiculous. Throwing out there a diagnosis with no further help or explanation has just caused me a lot of stress and has really affected my anxiety and depression, I just want a proper confirmation from them so I can get help and start picking myself up from this hole i have been in for years

[tiredofmoaning in reply to bluebell99]

I am starting pain clinic next week, do you know what happens thetr

[tiny_kp]

does anyone in the uk use CBD oils/vapes I am really thinking to get some for the time being to keep me going as the doctors didn't help so now we are looking into paying privately but the pain is so unbearable at the moment that i need something. I just wondered if its safe and legal to have in the UK and if it has helped anyone even a little bit because right now a little bit is better than nothing.

thanks in advance x