Pyso

[Jayney7]

Pyso tomorrow am dreading it the throught makes me want to cry he said last time we going full on next time am so scared as normaly we do five mins and then laid up for 2days my belly is turning any one else feel scared when as pyso x

[carol789]

Hi Jayney, I don't have Pyso sorry, but I would dread a massage as my muscles are so painful and uncomfortable the thought of anyone rubbing my muscles horrid. So I can see why you are scared. I'm sure the visits will be worth it in the long r u n. Best of luck tomorrow, hope all goes well 😃.

Carol

[Jayney7 in reply to carol789]

It's not a massage it to get my right leg moving as unable to walk on it as my nerves trapped in my back so standing and rocking stretching but I'll be laid up for 2 days after xx

[My-chinaman in reply to Jayney7]

Sounds like what I got I have to wait until April 5 th for my physio such a long time so much pain but I don't know if I want to go now but I have to go as I can't get a MRI scan until I see them x best of luck xx

[Jayney7 in reply to My-chinaman]

I had my mri scan. In November came bk. Narrowing L/4L. 5 and something else know having nother on 20th Feb and ultra sound on 16""th on my shoulder have a bulge at bottom of spine that keeps flaring up the pain is awful. Sharp pains good luck with mri scan am. Dreading mine as it kills to lie on my back specialy when it 45 mins and u carnt move in tunnal I hate them xx

[My-chinaman in reply to Jayney7]

Yes I know what it's like to have that sharp pains I cannot lift my leg of the ground and moving is a no-no sometimes happen when I'm taking my girl to school so I'm like a snail with severe pain the only way I can get rid of is by sitting down with my back pressed hard against the seats back ...until I get home to get painkillers in me ...

[Hidden in reply to Jayney7]

Bet your physio never new?no,thier good at giving out exercises that knock the discs out though!they kept telling me do the pelvic tilts,everytime in put my back out then the drs were like dont do them,then i seen different one she tells me pull your knees up to your chest!back out again,i go see orthopaedic back dr,he tells me those are the 2worst ones i could've been told to do!turns out slipped discs ,siatica,trapped nerve!trapped nerve for over 21yrs he just couldn't believe I'd never ever been sent for back scan out of all the different drs I'd been to over the years,by the way,the g.p that referred me to him,had back surgery herself. .

[Jayney7 in reply to Hidden]

I haven't been since last time as been in to much pain know waiting in letter for op in my spine so not be going till had op and hopefully get new one closer to home I think he just throught I was mardy which hat was beginning to think no self until got my mri results bk in less than 24 hours to say need op soon as possible before any more. Damage done xx

[Ramjets]

Hi Jayney, is the physio just for your fibro? At my last appointment the Physio-therapist said she didn't do hands on treatment for fibro sufferers as she found that it didn't benefit them because they were so sensitive to touch. I think therapists have different ideas about how to treat fibro. I've had one recommend acapuncture to me and another telling me not to bother. Are you feeling any benefit at all from the physio? If not then may be an idea discussing your treatment with your PT if the results are not worth the anxiety and 2 days of being laid up? Hope it goes well for you. x

[Jayney7 in reply to Ramjets]

No I've trapped nerve in my back which as affected my right leg so its to try n mobile again xx

[Hidden in reply to Jayney7]

Are they going to do anything to fix it?

[BlueMermaid3]

Hi there

Have you told your physio how bad your Fibro is?

Does he understand anything about the conditon?

You'll need to be firm when you go and let him know exactly what your limitations are.

If the physio is planning on doing any massage work on you you'll have to explain what you can tolerate.

In my experience they don't seem to have a clue how Fibro affects us or what our limitations are.

Good luck.

Lu xx

[Jayney7 in reply to BlueMermaid3]

I really don't like him Ive trapped nerve in my back but effected my leg I try to tell him last time so he stopped but he said cruel to be kind next time want to go full on so scared u wouldn't beleave xx

[Ramjets in reply to Jayney7]

Ah Jayney, the anxiety this is causing you isn't good. I know physio is meant to be a bit painful at times but it sounds like your PT is focusing on your trapped nerve and not considering your fibro. I was referred to physio for fibro and because I had developed a "frozen" shoulder. I initially saw separate physios for each condition but this didn't work out as fibro PT gave me exercises I couldn't do because of my shoulder and vice versa. They didn't seem to be communicating with each other and only seemed to focus on the one condition they had been assigned to treat. I had to (sort of) complain in the end and I now have the one PT who is mindful of both conditions. It is pot luck what PT you get but you don't have to settle if they are not working out. If you feel you can't talk to your PT directly or he's not taking on board what your saying then I would email/write to the PT Dept Manager or speak to your GP about it. Good luck and please try not to upset yourself too much. xxx

[Jayney7 in reply to Ramjets]

I've not been seen last time as been in 2muxh pain to walk nevrr mind I see him know waiting on op. Date for my spine so have said not going bk till has my op and hopefully get new one closer to home he winds me up to much even way he speaks zxx

[Ramjets in reply to Jayney7]

I hope you're not waiting too long for your op and that you feel better once it's done. Good luck and God Bless. x

[Jayney7 in reply to Ramjets]

Ty ramjets hoping u having pain free day. Xx

[Multijo]

Don't let anyone hurt you!!!!!

Maybe you can ask for a therapist more familiar with fibro and also with inflammation.

I have tried a number of alternative approaches to help. Some work some did not. We are all so different.

Acupuncture did not help my fibro, RA, or MS. But it helped me stop smoking cigarettes so I was grateful. Cold laser therapy has worked very well for me and I am grateful I can get it. Stretching with a trainor or while doing mild yoga has helped a bunch. I happen to get tremendous relief from my massage therapist who also has done cold therapy on me. She seems to sense even before I say anything where to avoid touching me. She also checks in with me throughout. I have come to have a high degrees of trust in her

Again I am grateful.

[Doodleangel]

I feel your pain, I am 11 days post op from a rotator cuff tear repair and start physio on Friday. I am dreading it. I have fibro, mixed connective tissue disease with lupus and sjogrens. Plus nerve damage in my neck and back. I can't walk either, it seems when I sort of get used to what I have, along comes something else to wack me in the face. Hope you're physio isn't too much for you 🤢☺👍x

[Jayney7]

Ty all am back from pyso in lot of pain and so upset that I felt he enjoyed me being in pain sweat was pouring off me I feel so low I carnt stop crying I should be grateful he trying to get mobile again but am actually feel resentment to him I don't even know why I feel so low today it's like I dint know who I am any more why am I feeling like this x

[Ramjets]

God love you Jayney, you sound so distressed, Is there anyone at home you can talk to? I totally understand how you feel, when I'm physically in pain it makes me feel so vulnerable and weak which is not how I see myself. Fibro has changed me into a person I don't recognise sometimes and it does get me down. Have a good cry and get it out your system and maybe bash a sofa cushion or two to release some of your resentment toward your PT (I often beat up pillows and cushions!). Then when you're feeling a bit better, which you will, think about what YOU want to do about your physio as you don't have to go through this again. Please take care of yourself. Sending you a ginormous hug. xxx

[Jayney7 in reply to Ramjets]

Ty ramjets my children don't understand and don't want them. To know how am feeling am trying to pull my together before picking my 4year old up from school I just want to lock my self away from every one xx

[Ramjets]

Know that feeling well but my family has kept me going - they are a blessing and pain in the ar*e at the same time. Take care xxx

[Jayney7 in reply to Ramjets]

Bless wish could say same about my family thay bloody useless lol ty for your surport tc xx

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