New to group: Hello I'm claire, 4... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Demmidot2017 profile image
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Hello I'm claire, 42 years old and diagnosed with fibro 2016 also have osteoarthritis lower back neck and hips.

Just thought I'd say hi, and hoping to find help with describing pain in a language dwp take seriously 👍🏻

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Demmidot2017 profile image
Demmidot2017
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7 Replies
TheAuthor profile image
TheAuthor

Hi Demmidot2017

Welcome to the forum and it is wonderful to make your acquaintance. I have pasted a link below for our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I have also pasted below a link to the NHS Choices cache on Fibro symptoms, and it is quite good with the terminology of types of pain and the names given to them:

nhs.uk/Conditions/Fibromyal...

I personally think if you are going to have dealings with the DWP it is best to talk to a professional such as the CAB or our own benefit adviser Janet and get some good advice about the benefit system and how it works my friend? I have pasted you another link below and this is to Janet contact page:

fmauk.org/contactsmenu/help...

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Lesley_ann profile image
Lesley_ann

Welcome,

you will get plenty of good advice here. Yes as Ken said ask for help,CAB or similar get as much information from people on this forum as possible its a great place to get others input.

Take care Linda x

Trikki profile image
Trikki

Hello Demmidot2017.....Welcome to a great group of people who will listen and give support to when you need it....and a giggle! One of the most difficult things to describe is fibro pain as it seems to be a mixture of weird symptoms...do remember though to describe your worst days and take copies of everything as once delivered to the dwp I think they get eaten by the monster at their end!!!!! x

Leonwp profile image
Leonwp

Hi there and welcome to the forum, you could try Klingon because i havnt found a language they understand and i am not sure they are from this planet anyway but i have strongly suspected assymulation to the Borg.

Blessings

teacher3 profile image
teacher3

Hi and welcome to the group.

bluebell99 profile image
bluebell99

Hello and welcome to our friendly fibro family where you can get advice, support, understandig and help along with a chuckle or two to lighten the day.

I can see you have already met with some wonderful folk and I do hope we will see you around the forum.

Kay

Wal46 profile image
Wal46

I d just want to see how you are I have pretty well the same thing

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