New to group

Hi all,

I am 28 years old and was diagnosed with FMS in April 2012. It took nearly two years for them to diagnose it. I was scheduled to have a lignocaine infusion last month but cancelled it because I was soooo scared. Has anyone had an infusion?

I have been off work for a while now and am dreading going back because my line manager is horrible. My job is really stressful and my colleagues and managers dont understand what im going through : (

9 Replies

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  • hi, Yes I've had three. Nothing to be scared of. Just a canula in your arm then fluid runs through in about 4 hours.Unfortuneately didnt help the pai for me but have heard it work wonders for others.

    Best of luck, I'd go for it, you've nothing to lose and it could help.Lots of love

  • Hi Hira and welcome,

    I hope you will fee at home here quickly and find lots of helpful info and support from everyone.

    I'm sorry to hear it took so long for you to get a diagnosis, it's quite a common occurrence and really frustrating.

    I hope that along with medication you medical support are referring you on to a Pain Management course, that will give you loads of tools to manage your pain.

    Do have a look at the main Fibro Action site (link below) you'll find loads of useful info there too.

    fibroaction.org/

    I don't have any personal experience of the infusions, but have heard mixed reviews on it's efficacy. As a nurse I can say that the infusion itself is nothing to worry about and I would jump at the opportunity. You are lucky that you seem to have some pretty pro-active support.

    Hope to see lots more of you

    happy hugs, kate :)

  • Hi kate and puppy dogs for your swift reply!

    Wow your response was really quick! I'm so glad I've joined this group and I immediately feel as though I belong! Although I'm a bit slow with modcons and sometimes just feel too tired to type.

    I'm seeing the consultant at the pain management clinic so will be asking him about the course. Other than feeling pain all over, I'm always feeling a bit low. I'm taking citalopram but all the side effects worry me. I recently went for a massage and that was wonderful. The therapist was fab. I wish the NHS would offer alternative therapies as it is too expensive to have regular massages.

    Anyway, I am feeling really stressed at the moment and although I am at home I keep thinking about work. I am contemplating on whether or not I should hand my notice in or not.

    Have a good day folks xxx

  • hi i am sorry i have not had aninfusion but jus wanted to say hi and welcome to the site and hope to chat soon . i hope that you get the answer you want there is bound to be someone who willanswer you good luck love diddle x

  • Aww thanks diddle, that's really kind of you! X

  • Hi there,

    Welcome :-) I have had fibro for a few years now and it took me a good few years to get diagnosed too. It is really hard when you are in so much pain and no one really understands what is going on. What I sometimes do is pick up some leaflets about it and give them to people who are going to be apart of my life - wether that be through work or choice. And it gives them the opportunity to understand a bit better.

    Hope yuor alright

    Sarah :-)

  • Hi Sarah,

    Thanks! ?

    Do you know where I could get my hands on leaflets?

    The trouble Im getting is the different gps that I have to see. My current gp reckons that I'm feeling pain because of anxiety and depression! Sooo frustrating. X

  • A warm welcome Hira,

    I recently found this site too (1 week) i just wish I had found it last year!

    I have only just been diagnosed with fibro and like you I've been suffering for the past 15 months or more.

    Luckily, I don't suffer with depression but I expect it must be worse because this terrible illness brings you so low.

    I did finish my job because of the stress that went with it but ultimately my goal is to get/need to get back in the work place. xx

  • Hi Finlay,

    Thanks for the very warm welcome. I think it's just really difficult when you really want to work and want to retain your job but because of of what we go through and the constant feeling of being tired it becomes extremely difficult. When I'm at work I literally feel like I'm going to fall asleep and I'm dragging my body. Don't know if I'm making sense but sometimes I feel as though I cannot function.

    I'm currently off sick and am dreading the idea of going back, because you can't see FM people assume that there is nothing wrong with you. X

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