New to the group

Hi i have just joined the group as i feel so alone dealing with my fibromyalgia. I have suffered for several years but only got diagnosed last year. I find each day a struggle. I was wondering how you all get on with your doctors. I have got no support from them, I only get to see locums who change regularly. I haven't been able to work since January and am under my employers occupational health. A doctor from my sugery has just written to them telling them I should return to work . I have never seen this doctor, he doesnt know me. I carnt work, every day I have pain and am restricted in what I can do, I am always tired. Does he have the right to say this without seeing me first.

8 Replies

  • Hi there

    Welcome to the forum :)

    To be perfectly honest with you I don't know if this GP has the right to do this.

    My personal advice to you would be to put a letter in writing to the Pratice Manager stating what you have told us and explaining you disagree with what has been said.

    I would be careful, however, not to complain. If you do complain it is likely that you wont be able to see any GP again at that practice.

    The other option you have is to change your surgery completely and start off with a new doctor.

    I really do feel for you and would highly recommend that you make an appointment to see a CAB Advisor or Google to find a Disability Advocate in your area to help you.

    I very much hope that you are able to find a solution to this situation.

    Wishing you all the very best

    Lu x


  • Thank you. I think I am going to look for a new surgery. Its a shame as I have been there over 20 yrs but it has changed and I have no confidence in them anymore. My cab is 12 miles away and I dont have a car. I will certainly look for help online. Thank you again.

  • I do feel for you but do think it would be a good idea for you to change your surgery.

    Just be aware that if you are on any meds you wont be able to get more until your notes have been transfered over which takes about six weeks so make sure you have have enough to be going on with.

    It is really important to have a GP that you trust and who believes in you when you have Fibro.

    Wishing you less pain and more peace.

    Lu xx

  • BlueMermaid3 , I can't believe if you complain that you are penalized! ! In the US if you complain you get treated like a QUEEN! ! Thanks for the info. Peck.🐤

  • Hi Peck. I probably didn't explain that very well. It doesn't always happen, but there is always that possibility. Lu xx

  • Hi I have changed my doctors a few times - one didn't even accept "fibromyalgia " - but at last I have a doctor who has listened and helped me so much - good luck - but sometimes changed is better.

  • Hi and welcome!! Sorry I can't help as I don't live in the UK so I'm not familiar with laws.I wish you the best.Peck🐤

  • Hi ang1605

    Welcome to the forum and it is wonderful to make your acquaintance. I have had a quick read through the patients charter but cannot find anything about your question included in this? I have pasted a link for the patients rights below:

    You oculd always contact PALS (Patient Advice and Liaison Service) and ask them if this doctor was allowed to undertake such action? I have also pasted you a link to this below:

    I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you


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