hi need to fill form in for my appeal... - Fibromyalgia Acti...
hi need to fill form in for my appeal for the dwp dont no were 2 start x
start by writing down everything on a spare piece of paper , and explain as best u can how it affects your daily routian , , what u can't that was once so easy to do , how u have to learn how to do things in a slower pace and take breaks a lot because of the pain u get
hope this has helped , sam
You shoul be able to get some help with it from the CAB or DIAL 
Be sure to write as your worst day and describe in detail any problems/pain whilst doing daily activities.
There is a website called "disability and work" If you register with them you can have some free info. They look good and supply up to date guides for all benefit claims and are used by a disability group that I have just joined. I have only this hour registered to see what info is there for free. Wish I had seen this before filling in my DLA assessment last month!
Just looked and it says don't use your worst day! there are 2 sample pages that give a real good idea on how to consider the questions and fully answer them.hope you find it good and get awarded
thank you every1 for your help i am going cab 2day & they r going 2help me so thank you again xx
Hi I have just been through all this and was unsuccessful, but I do recommend you go to the citizens advice and their welfare rights worker will help you !
I appealled, they sent out their own doctor who verified my condiitions......but because I have no-one to help me during the day I wasn't entitled ?
Good Luck !
Hi Nance,I am in the same boat as you in as much I have no one day or night to help me.I have been turned down for DLA for the second time,and I have asked for it to be reviewed,which they are doing,and I asked for a medical which they said they are unable to do.
Do the DLA not have the common sense to see that if they awarded you with DLA you could then possibly pay someone to help you with your most difficult needs,which would make your life a little 'easier' if that is possible with this monster condition.
I wish you good luck Nance,and keep going back to the DLA,Fm is not going away and neither are we!! take care Tina xx
Thank you Tina !
It did feel it a bit unfair, but that's how it goes it seems I've worked all my life and now I need some help through no fault of my own I can't have it !
I am Hypermobile, I was always.... what used to be called double-jointed but have since been told it's hypermobility syndrome, I was diagnosed with Fibromyalgia & osteoarthritis after being left with all this after having a bad flu in Oct 09 followed by swine flu in Nov 09, it took 15months of ct & scans, steroid injections, drugs etc only to be told i can't be fixed, but will have to learn how to manage the pain ?
What hope to we have ?
As for DLA well after 2 appeals I really can't be bothered, it's demeaning, upsetting and an unfair system to boot ! the stress just sets me back.
Take Care Tina & have a good day tomorrow !( it's all we hope for !) X
Hi All; I am re-applying for DLA as I failed to appeal my failed appleal in time, if you follow me (not sure that I do sometimes). Went to G.P. this a.m. so he can write a letter saying how epilepsy, depression, FM, asthma, and arthritis affect my way of life. I was disallowed DLA after receiving if for 4 years - they said I had never been entitled to it in the first place, damn it. Going to CAB tomorrow as I did not bring in full bank statements on my current,e-account, and variety of joint accs but just ballances. I already wrote a details list of what these conditions do to me for my appeal, but no good. Ought I to do it again do you think? Be well, hopefully, OuchOuch
im going thru the same appeal i will go in front of a panel ive got a letter off doctor my one to support how my fm have reduced my mobility by 80% in the last two years so im writing down everything i could do two yrs ago and what im able to do now which isint much good luck every one fm isnt not recongise yet in england and wales like it is in the statesx
Or Scotland , lol !
oh and try to get a support worker could help with the forms or adult social services helped me with direct payments for me to employ a cleaner 3hrs aweek there is help its hard to get but keep pushing the doctors can ref you or you can ref youselfs to ss
Ask to be assessed for help by Social Services. Their help may be what will win an appeal for DLA, even if you are waiting to be assessed as I was on my first application in 2004. Maybe a friend/family member could say they helped you regular even if it is difficult for them to so. Then a DLA award will assist in decision to award direct payments and have better help.
I have just heard back from my assessment and managed to get high mobility and medium care indefinitely. It is such a relief
Best of luck to each of you
go to a site benefitandwork.co.uk, it is there to assist in completing DLA and ESa forms and gives alot of advice when you have to appeal. To gain access to all of the site you do have to pay but i have found it well worth the money. My ESA got stopped and I used this site to complete my appeal and won it back and I used it to re-new my claim for DLA which I was awarded again indefinately.
thank you will take a look at the page later xx
i sorry to say that the system has a hard job to understand what and how much pain goes with this illness,it helps to have a really good gp and plenty of back up help, the complaints that go with fb are so varied to each person, from skin pain to ibs/major aches which are throughout the body, the weakness of the body and the fog that affects your thinking, after 15 yrs of suffering i still am amazed what it bring next in ways of pain, it helps to rest during the day on a pain flare and when filling forms do put down all the details of the pain and where and when it happens, sometimes the littlest detail that you forget might make the difference in how you are treated from gov offices when claiming, i was turned down twice before i recieved dla
DLA need showing up, they don't even read yr forms properly they just pick out bits it makes me sick, they need indevidual specialist to assess these forms not just random people that don't even know what pain is
sorry peps rant over bigs hugs xx
