Desperately wanting relief from pain :( - Fibromyalgia Acti...

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Desperately wanting relief from pain :(

M15helle profile image
21 Replies

Yet again here I am unable to sleep because of this awful pain. I am really finding it hard to cope. My legs and back pain is just unbearable :( I feel like there's no point even going to the doctors as I always leave feeling I've wasted the Doctors time. (I know nothing more can be done to help !) I am searching all over the Internet for alternative therapies, has anything helped you? Any suggestions please ? I will try anything just to relieve this pain. My pain killers do nothing for me anymore

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M15helle profile image
M15helle
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21 Replies
bluebell99 profile image
bluebell99

Hi

If you look to the Related Posts on the right you will read of some members experiences. Also type alternative treatments in the search box.

I think most of us have resigned ourselves to never being without some kind of pain, but it doesn't stop us from trying something different. Sometimes it is a case of accepting it for what it is and trying to make the best of it.

I wish you good luck in your search.

Kay

hebden profile image
hebden

I agree with bluebell99. There are lots of coping strategies people use. Its a case of learning to live with it Im afraid. Have you tried mindfulness? It doesn't take the pain away but it does help with coping. Also magnesium spray can help you relax. or tens machine is a temporary relief. Take care Joolz.x

TheAuthor profile image
TheAuthor

Hi M15helle

I really am so genuinely sorry to read this my friend and when my pain becomes too much for me I use my TENS Machine. I have pasted you an excerpt and a link to the *NHS Choices cache on this below:

*Introduction

Transcutaneous electrical nerve stimulation (TENS) is a method of pain relief involving the use of a mild electrical current.

A TENS machine is a small, battery-operated device that has leads connected to sticky pads called electrodes.

You attach the pads directly to your skin. When the machine is switched on, small electrical impulses are delivered to the affected area of your body, which you feel as a tingling sensation.

The electrical impulses can reduce the pain signals going to the spinal cord and brain, which may help relieve pain and relax muscles. They may also stimulate the production of endorphins, which are the body's natural painkillers.

What TENS is used for

TENS may be able to help reduce pain and muscle spasms caused by a wide range of conditions including:

arthritis

period pain

knee pain

neck pain

back pain

sports injuries

It's also sometimes used as a method of pain relief during labour.

NHS Choices - TENS Machine:

nhs.uk/conditions/tens/Page...

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Joyce65 profile image
Joyce65 in reply to TheAuthor

To the author, read my reply below, and try it, u will pong a bit but u will have a pain free Christmas If it works tell the rest of are fellow followers. Honest my little bottle is my bottle of magic, move over Harry Potter

TheAuthor profile image
TheAuthor in reply to Joyce65

Thank you Joyce65 that looks quite useful to try my friend. just been having a read about it and pasted a *Google search result for anyone else thinking of trying it:

*Massaged on your skin as a relief for muscle or joint pain, as well as for skin conditions like burns, acne and wounds. Make sure to dilute it with a carrier oil. Inhaled or vaporized. You can use an oil burner or add a few drops to a bowl of hot water, and then breathe in the steam.21 Jul 2016

Thanks again, and please take care of yourself

All my hopes and dreams for you

Ken

Joyce65 profile image
Joyce65 in reply to TheAuthor

Ken I've not mixed the lavender with anything. My sister in law is a beautician, it was her idea, I've been rubbing it pure right onto my back, neck and legs, it is the best thing I've ever used. My husband died 11 months ago on the 27th I have not slept since, but since using the lavender oil I sleep well and been having nice dreams, best thing I've ever, ever used in my life, the only bad point if I don't shower in the morning I smell like an old lady who wears lavender perfume lol I apologise to any old ladies who reads this

TheAuthor profile image
TheAuthor in reply to Joyce65

Hi Joyce65 thanks for letting me know. I have asked somebody to get me some for Xmas and I am going to give it a try! :)

I really am so genuinely sorry to read about your sad loss my friend, please take care of yourself.

PoD62 profile image
PoD62 in reply to TheAuthor

Sadly though Ken, TENS are Not a Viable Treatment for Fibro - given the nature of the Condition? Disease? Syndrome?

I know (as do you) it's different strokes for different folks, and whilst You might benefit (and that's good news indeed, given your circumstances🖒) Many people have been made even more uncomfortable - myself included. One of Many attempts to "Cure" my Lower Back Pain, which was a nonsense as my LBP is caused by Prolapsed Discs, not muscle/nerve damage, but that was a "Show" for my benefit, i.e."Look how busy we are trying to cure you!" Luckily we have a friend who has been a Physio for 25+ yrs and whose judgment I used as the basis of "suggesting" to My Physio that it may be a more beneficial treatment for some other poor blighter in need ! This made them & me happy and our Physio friend gave me a series of Back, Leg and Hip Exercises more suited to my "Conditions" - and She came in everyday to check - at 8am to make sure I was Up for Morning Xercise and 4:30/5:00pm. again to put me thru what I thought then was agony ! (Little did I know the future !) After a cpl of weeks I was Trained and had Several years less incapacitated than later. I still believe that it was Those Xercises that kept the Fibro wolf from the door !! # & Yes I DO Know how to Spell Xercise correctly, but the X is for the Swearing involved ! 🤗

TENS -small battery operated units are an effective treatment for shallow tissue treatment. i.e. i.e. Near the Surface Sprains & Strains with "Cramp-like" Pain & Spasms.

DO NOT EVER USE ON WET SKIN OR SKIN TREATED WITH ANY KIND OF GELS or CREAMS USED TO EASE PAIN - Deep Heat, Voltaren etc.

TBH, Ken I've had more relief from Tea, Paracetamol, Piroxicam gel, and a Choccy biscuit - preferably AFTER a Bath, in Bed.

Tho if you're in a Bath in Bed, I'd venture your Water-bed has burst !!

PS. Please edit as you see fit Ken, as I know I'm a bit long winded at 4am. or 5am. So I trust you to use your sound judgment as you may find necessary. P&L as always & and I hope a Pain-free 🎅Xmas for yourself and Mrs.Ken🎄Kiéran.

TheAuthor profile image
TheAuthor in reply to PoD62

I totally agree with you my friend. For many people a TENS simply makes pain worse. The main warning with them is not to use them if you have a heart problem. I do agree about a good choccy bickie as well!:) :)

Loraine121 profile image
Loraine121

Hi m15chelle

Why don't you go back to your gp as there are loads of different types of medication that can help at least take the edge of it, i don't know what you are taking just now but it's worth a try,

I have also tried alternative therapies but I found that they only helped on the day and I spent a fortune on reflexology, acupuncture, massage and hypnotherapy but weare all different so what works for one does not always work for another.

Coping training is the best way some pain clinics are good with tips somethings sound silly like rubbing your finger and thumb together sounds silly but I some how helps

I have recently been using bio freeze is is for joint and mussel pain it maybe worth a try

Good luck i hope you find something to give you some relief

Loraine x

PoD62 profile image
PoD62 in reply to Loraine121

Sorry in advance Loraine 😘 !

But if you're Freezing the wee Mussels, I dread to think what lies in store for the Cockles !!!😉😆

🎄Happy Xmas to you & yours, and I Really hope a Special Gift of a Pain-Free Christmas for YOU, And Everyone who uses this 'Most Excellent' Resource. From the people who Run it all day long, to someone who has just visited a few times for a little comfort that they're Not Alone ! And the Same Wish for ALL people, of ANY Faith, Creed, Colour & Ethnicity for A Happy & Pain Free Xmas and A Happy & Healthy New Year ! 🎄🖒🎄🎅🎁.

✌P&L💜 ☘KIÉRAN☘

😯😜😛😜🤑😕😟

SayWhatYouSee 🍕 🐜🍞

(Pizza Ant Loaf )=(Peace & Love!) That is Quality Transposition right there !!!!!

Loraine121 profile image
Loraine121 in reply to PoD62

Lol I know I can't spell it new it was wrong but I also guessed that you would know what I ment , lol

All the best for the update coming festivities and as painfree as it can be.

jbgood7 profile image
jbgood7

Hi

dunno if this will help but it worked for me osteoarthritis bugger bas7#@d and

back n shoulders pain

if you remember to keep taking it

1tbsp turmeric 1tbspginger litre of water bring to the boil simmer for 10mins cool add honey to taste drink halfacupofthe liquid on a empty stomach first thing in the morning I know that it sounds like a hellofa mixture but after a week the pain seems to subside beats the morphine

hopefully it will work for you

good luck

PoD62 profile image
PoD62 in reply to jbgood7

I'm starting Back on the Honey & Cinnamon in hot (Not Boiling) water. I've used 2 T-spoons of Honey, 1Level Tea-spoon Cinnamon and 300mls or a half -pint of water, before - usually with Vitamin C & D in Tablet form and had good results against Winter Colds AND Winter Cold ! As is usual, these things are Trial & Error, so make the mixture suit Yourself.

I was originally given this recipe as an Arthritis ease - using Apple Cider Vinegar as a half of the liquid. I can't say whether it worked for Arthritis, as I had to stop due to "delicate" tummy - which the Vinegar made worse ! But we've also tried anything to get rid of the Pain ourselves, so don't rule out anything I'd say.

At the moment my Sister-in-law (SiL) is on the same dosage of Maxitram SR as me - hers is for Severe RA. The trouble is she's not giving time for the Maxitram to work, and she's chasing Paracetamol With Codydramol ! Essentially she's been Overdosing on two Strong Pain relief tablets and then falling asleep - Maxitram with Amitriptyline will knock you out easy if you haven't used it before ! I told her to phone the GP and tell him what the problem is, meantime I've told her take 1 Codydramol and 1Paracetamol in the daytime and the Amitriptyline & Maxitram plus a Paracetamol about 2 hours before bedtime, and see how she feels in the morning (so far, so good - but as I Keep Telling her -"I'm Not a Doctor, so go and see him !!

jbgood7 profile image
jbgood7 in reply to PoD62

Mmmmm cinnamon added to the turmeric andginger and acv bit of garlic chilli great base for a curry !!!

Have you tried codrydamol from your doctor

Littlemole43 profile image
Littlemole43

I know how you feel I'm in constant pain also. I'm on morphine and that doesn't even touch it.

joed profile image
joed

Hi I also live every day in violent pain in my back thighs knees and groin I've been ill for over 20years but having different treatments for severe daily pain for over 10years I've tried every drug injection patch an medican available I've been taking zapain for 10years plus I also use biofreeze I'm currently on a waiting list for an out of town referral at a specialist hospital I feel its my last hope I've had enough I have dark days my pain is unbearable at the Mo as I have a trapped nerve in my back l do hope you find something that helps you take care joanne x

Joyce65 profile image
Joyce65

I have found the cheapest and best thing to help with pain, I suffer in the same places as u, talking to someone I know one night and he said to me, go to any chemist and ask for a pure bottle of lavender, it comes in a tiny brown bottle ( my instant thought was I am going to need about 5 bottles for each leg and five for my back ). Anyway bought two at £3-50 a bottle. That night in agony I tried it, it says on the bottle to mix it with water, put this person said to put it on straight from the bottle, so I did. Well guess what it really does work, and it helps u sleep wen u get over how strong it smells, but yes it works for me. The only thing I would say is, by a box of plastic gloves 99p I paid and I use them over and over again, I used it pure the first night my hands pinged and u don't enjoy eating or drinking after applying. It's the best thing I ever used I've been in chronic pain for 15 yrs, apparently it's an old wives remedy. Now u know my secret it's up to u to try it. Let me know how u got on, it washes of in shower next day so don't worry about going out smelling like an old bag women. Have a wonderful pain free Christmas xx

Chrisbel profile image
Chrisbel

You could try magnesium citrate, or magnesium malate, a lot of us are supposed to be deficient in magnesium and those two forms are more bioavailable, and they help with muscle relaxing.

Year get some codrydamol for the pain Eat prunes though as they will bind you up Try taking Lycra during the day And at night try Loranzipam it a ceditive that wil get you to sleep Do self massage with a good cream or Fendib 10 mg from the doctor Get your medication correct and life won't be so hard Good luck

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