Terrible itching

Hi everyone I have fibromyalgia and have a terrible itching only on my right arm it drives me insane. I've tried cutting out things to see if I have an allergy to anything. It did subside over the summer months but has reared it's ugly head again. I don't know if it was just supressed because I was taking antihystamine. I wasn't taking vitamin d over the summer either so could it be because I'm back on vitamin d. if anyone else as the same thing could you tell me what you do. The itch is so intense that I have to ice it until it's numb to makw it stopmake it stop. I've also started with palpatations again. I hate going to my gp as I feel I'm just been a pain. 😣

22 Replies

  • Morning, I get terrible itching on my arms and neck but I have lots of allergies and taking cetirizine and montelukast does help, it still flares up at times but not as bad, hope you find something to help xx

  • Thank you for your reply Dionne.

  • Hi There I hope you are well. I take cocodamol for my fibro and sometimes they make me itch just now and again. I was given Tramadol to see if this would control the pain a bit more and the first night I took it I couldnt sleep for itching so I'm now back on cocodamol. It could possibly be some of your medication so read the leaflets inside the packets. I was recently advised to stop eating grains and am taking a gluten free diet as I seemed to have developed IBS over the last month. In the last 2 weeks my stomach seems to have settled so I am persevering with this. I don't know if you are allergic to wheat etc. Hope you find the cause. kind regards x

  • Hello Fintou. I get itching in my lower legs and find that running hot water over them for a few minutes, until they are nice and pink. Then the nasty bit. change to cold water for as long as i can stand, then a good rub with a rough towel helps.

    The itch between my shoulder blades get scratched with the toasting fork. No way am i putting my back under a hot or cold shower.

    I hope that you find something that helps you. A constant itch is maddening

  • If you ask your pharmacist for an anti-itch cream I know there is one on the market as I had it when I had a bed reaction to Penicillin and came out in an awful rash. I also tried good old Calamine lotion which helped...hope you get relief soon...x

  • Thank you. I've tried everything down to a cortisone cream but it still happens. I rested to putting freeze gel on it for some relief.

  • Hi Fintou and welcome to our wonderful forum ;-) I'm sure you will come to love it as we all do. It really helps to be able to interact with others that are going through or been through the same experiences as yourself.

    Please do go and check out the Mother Site fmauk.org Where you will find lots of useful

    Information and links. If you subscribe to emails you will get all the latest news on Fibro

    Im sorry you have this dreadful itching, I do also suffer with intense itching on my hands & feet & my groin area mainly but occasionally I get on my legs & as you say, it really is frustrating because it keeps you awake at night and get so sore from scratching.

    I know there are others that do suffer from it and I'm sure you will get some advice on what helps. I do what you do, put ice pack, this sometimes stops it but i also have to have steroid creams for various body parts lol does which help.

    If you look to the right on your screen you will see some blue links related to other posts about itching

    I look forward to chatting with you on the forum.

    We advice to lock your post for your safety as unlocked posts are open to the internet, I have pasted a link to easy guideline on how to do this yourself in future.


    Peace, luv n light

    Jan x

  • Hi fintou- I sometimes get this problem, mostly legs! I,ve learned that taking Vits when your body doesn,t need them can lead to blood being overloaded and you either get bad headaches or it comes thru your skin, its odd its only one arm but with me it was only legs. Yes I took antihistamines both oral and cream and it stopped it, other times I,ve took them for allergies, have you noticed if its your writing hand or the one that you don't use much? I right leg lead and my left leg gets the worst, I put that down to better circulation the right side! let me know what you think.

  • I just keep taking the antihistamines I'm afraid. Never found anything else that works.

    Annette xx

  • Now that's odd.... I had terrible itching on my upper back and shoulders... as it began after very mild sunburn I thought it was something in the pool on holiday. I exfoliated loads, applied gallons of moisturiser but then as a last resort after about 4weeks of this I used an anti fungal cream (Lamisil /terbinafine hydrochloride) and yep! It worked. It was so bad I had a soup ladle on my bedside cabinet as it was all I had to get to it with !!!! 😂 Anyway, following a total of two months if this, day and night, as it cleared then I started with this annoying virus - 6 weeks now🙄😷 are they linked I wonder.... oh well. Hopefully you feel better but if it's still at it maybe try antifungal ?? Xx

  • This is could be hives or heat rash. However by chance I discovered after 10 years of itching I am allergic to polyester. I am even now allergic to my coat !😟 Keep searching the internet for clues

  • Hi everyone can I just ask if your itchy problem could be a stinging sensation? because I get it but more of a stinging in my arms neck not sure about it, also anyone suffering from tinnitus ? hope you get some relief from this problem, Steph

  • Hi, I have suffered with itching on my back and between my shoulder blades for around 10yrs or more.

    Nothing has helped or stopped it so I keep a ruler with me for back scratching duties. I obviously must scratch in my sleep though as my upper back is covered in scratches which have broken the skin and bleed. I have spoken to my GP and she believes that it's the nerve endings causing these issues as I also suffer from nerve pain. Areas of my body will suddenly feel like I am badly sunburnt and even clothing is painful.

    I hope you find some way of easing your discomfort as I know how maddening and frustrating it can be.

  • Hi, fellow itcher I have the same thing. Fibromyalgia is a curse! I have it in both arms and upper left back....don't know why these areas but I do. I like you have tried everything, creams, antihystamines, a herbal chilli rub I have to say it helped for a bit! Like you a bag of frozen peas....bliss!

    I have just had an MRI scan on my neck just to eliminate that I could have an impinged nerve that could cause the itching.............NO. So not only am I sleep deprived in pain blah blah blah you know the drill!!

    So I am at my wits end. I have researched fibro and there seems no rhyme or reason to its symptoms.

    I visited my most amazing GP last week as I had had enough..........so tired, in pain, itching and sleep deprived. I have a lot of personal stuff going on...Life!....so he prescribed me a relaxant just for a week. My itching has subsided. A lot of the symptoms are caused by stress and anxiety, that cant be helped with fibro! I have also looked into the importance of breathing, its so so important to breath properly you would be amazed at how it affects your physical and mental health. So trying to stay relaxed is the name of the game.....easier said than done.....but it does work. I could go on forever about this subject, but just thought I would let you know you are not alone. I am a fellow itcher.

    If you can resist and distract yourself for a few moments and relax, don't itch......because you know what happens next.............sore skin, irritability, hot tingling skin and misery. If you really cant resist itching try dry brushing with a soft brush it not so harsh as trying to rip your skin off!!!


  • Thanks tinkerbell I did wonder if it was when I was feeling anxious. That time of year again.

    I will start up some breathing exercise again. Thanks for listening and replying. May all your itches disappear x

  • iv bn getting itchy like hell as well..hmm and the right arm noticably...and my back!!!! I scratched until red raw .... How weird...i hav no idea why thou xxx

  • Hi I have fybromyalgia and I also have terrible itching on my back, legs head it drives me mad, I don't know how to stop it, but where my itching is on legs back and head I try digging my nails in as its also numb it drives me mad I've had it 30yrs, I try to ignore it because as soon as I touch it I can't help but scratch if you find anything that cures it let me know as I'm desperate..

  • Hi all i have the same probem with itching and thought id let you know what i do when im itching ....a nice warm bath with a cup of bicarbonate of soda dissolved into it and soak for as long as you can , if its just my legs i make it into a paste and rub it on .....it sounds totally mad but it does give some relief its best to let your body dry nsturally instead of rubbing with a towel ....if any of you give it a try let meknow how you get on :-)

  • I sometimes wonder if mine is all the meds. I've had excema, hives, urticaria and the works before but this looked different. Had it all over the back of my arms, inner and back of calves and my neck. It was like purple/red blotches almost under the skin but you could only see it really when I was warm. Very faint when normal temp but just as itchy. It was horrid.

    I found the only thing that stopped the itching was Bio Health's Chickweed Ointment. It was the most effective thing I could find.

    I also drank bucket loads of lemon, cider vinegar (with the mother - it's called that, think it's the fermentation) and a touch of honey. This was after scouring everything conventional medically, and then turning to a more herbalist approach. It eventually went.

    I can't say that it was this drink that sorted it but it apparently helps the liver cleanse the system. I felt this was all I could do - I felt my liver was perhaps overloaded with the drugs and could do with some help.

    Drank about 2-3 litres a day, made up in a large teapot. I do believe this was what cracked it in the end. It's not like it loads the system with any more crap that the Doc could fill me with.

    I'm now very slowly coming off my pain meds. Nothing seems to work for too long, so I'm going for heat pads, meditation and soothing massage. Seems to work better than anything else.

    We're all different though. I just don't think my body likes being full of chemicals, especially now defunct ones!

    Best of luck and hope you find some relief somehow. I'll send me magic wand over if you'd like. I have a spare 😇 !


  • Hi Fintou

    I really am so genuinely sorry to read this and it could be caused by a myriad of issues? From medications too much / not enough antihystamine, hives etc. I would definitely get the issue of your palpitations looked at though just to have other medical conditions ruled out of the equation. If you cannot face going to the doctors then you could pop along to your nearest walk-in centre?

    I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you


  • Thank you to everyone that has replied to my question. I have downloaded a meditation app to see if the palpatations stop. if not will have to go see gp. back on antihystamine for the itching will see if it disapears.

  • I feel your pain/itching. I too have Fibro and associated side effects other than the constant pain. I have the itching deep down inside my ears. I know it probably sounds amusing, but it isn't. I too tried Tramadol for Fibro pain and it was so bad I woke up the next morning with blood on my sheets because I had been, apparently, ripping my skin up during the night. The second night I developed hives which was less than fun so that was it for Tramadol. Many pain meds cause itching also. It never seems to end does it? They have just voted in medicinal Marijuana in my home state of Florida and I'm hoping that will help. Note: It's not smoked, thank God, has had the euphoric nature of the plant removed (thank God) and normally is administered via drops under the tongue. Question? Is this form of treatment allowed where you reside? The fewer drugs we have to take the better.

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