Medical pack

[Simba321]

Hi Admin

Do they do a CRPS medical pack ?

Because some of the Drs never heard of the complaint !!!!!

They just look at you !!!!!!

Christine CRPS UK

[BlueMermaid3]

Hi there

As far as I am aware there is only a pack on Fibromyalgia that can be sent to your GP.

Wishing you much peace

Lu x

Admin

[annacruachan]

I'm afraid I don't know what CRPS stands for Simba321 Please enlighten me. There are so many abbreviations and acronyms about now that I am even more confused than usual xx

[Simba321 in reply to annacruachan]

morning annacruachan

CRPS means ; Complex Regional Pain Syndrome

It's very similar to Fibromyalgia

Every movement I make I get a burning shooting pain in my arm

I could go on and on about the complaint

Take care

Christine CRPS UK

[annacruachan in reply to Simba321]

Thanks for that Christine. It sounds horrendous. Gentle hugs. Anna xx

[NFDK]

I have had a LOT of blank looks from medical professionals since contracting CRPS!

[Simba321]

Hi wen

How did u get CRPS ?

Christine CRPS UK

[Hidden in reply to Simba321]

Hi Christine

I get really confused about my own diagnosis, since the consultant at pain clinic calls my condition Central Neuropathic Pain Syndrome or sometimes just Central Pain Syndrome. Whereas the neurology team call it CRPS.

Having googled both, whilst similar they do read differently on the NINDS website.

My pain consultant and my first neurologist diagnosed Central Pain Syndrome in 2009 as a direct result of spinal cord trauma. The pain consultant explained the various causes of this condition and stated that spinal cord trauma is the main cause.

However the neuro team I'm now under refer to it as CRPS.

They appear to be 2 separate conditions...I'm confused.

Can you throw any light on this?

Thanks, Jacqui

[Simba321 in reply to Hidden]

Hi Jacqui

I have the same problem ,I had a work accident 6 years ago so I've to to the defendants pain consultant at differents pain clinic and they call my burning pain condition Neuropathic Pain Syndrome BUT MY PAIN SPECIALIST IN LONDON,LIVERPOOL ,BATH,DUDLEY, BIRMINGHAM QE ,

HAVE SAID IT IS CRPS I've got all the sighs

Burning pain

Shiny skin

Rashes,blisters

Colour changing of skin

Shooting pains

I could go on etc

Can u tell me where r your consultants base what r saying its Neuropathic Pain Syndrome?

And where is The neuro team that u r under what's saying its CRPS ?

Gentle hugs

Christine CRPS uk

Xx

[Hidden in reply to Simba321]

Hi Christine

Thanks for your reply.

My pain consultant is based in Reading but I'm still under the neuro surgical team at the Radcliffe hospital of Neuro science in Oxford where I underwent total neck reconstruction and spinal cord decompression.

I suffered severe nerve damage which has affected me physically, mainly down my left side, but also neuropathic pain which is a different pain, both dreadful. The diagnosis of central pain syndrome is closer to my symptoms when I've looked on the NINDS website.

My cervical spine is built of cages now and a recent MRI scan shows I've got nerve root compression yet again at the levels already reconstructed 😩 It's never ending.

A debilitating condition, as you know. I was also diagnosed with severe fibromyalgia in Feb 2011 just to add insult to injury! My oh my what a life changing experience it's been.

Gentle hugs back to you,

Jacqui xx