uncertain future?

have suffered for many years with fatigue and arthritic issues and now have been diagnosed with me/cfs and fybromyagia. dr has prescribed numinous tablets to no avail of relief of symptoms. presently on 25mg anatriptaline which to be honest is not making much difference, being referred to a second rheumatologist but cannot see any light at the end of the tunnel.

7 Replies

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  • I hope you get some relief soon. Hello and welcome.

  • Hi gj......sorry to hear of your pain and diagnosis....Did your GP prescribe any other meds or just Amitriptyline? 25mg of Amitriptyline is not a big dose unless he has prescribed something else. I am on Tramadol (when needed!) Co-dydramol, Fluoxetine and 50 or 75mg of Amitriptyline at night. We all react so differently to our meds....some help...some don't!! I am afraid it is trial and error to eventually find what suits you and gives you some relief. I hope you don't have to wait too long for your appointment and you get your meds sorted out soon.....Let us know how you do.....x

  • Have you thought of trying alternative treatments such as hydrotherapy and acupuncture as even though I take a cocktail of meds. I have found them if limited use.

    Have you had a look at our mother site Fibromyalgia Action UK as it has a whole section on different meds and also alternative treatments which you might want to try. I can imagine with the other problems you have fatigue is a big issue for you. Learning to successfully pace is a big help with this. Good luck with the second referral let us know how you get on.x

  • Hi geoffjames62

    Welcome to the forum :)

    You don't know this yet, but you have just made yourself an army of wonderful friends who all know exactly how you are feeling.

    Have a look at our mother site for more information on Fibromyalgia fmauk.org

    You don't say whether you are currently working or how old you are.

    If you would rather not say that is obviously up to you.

    I genuinely feel your pain, in all senses. I have had Fibro, ME, HMS etc for over 30 years. I have also now been diagnosed with osteoarthritis in my spine.

    I am on a lot of medication. I too have not been able to find any meds to take my pain away completely other than Oramorph, which I am obviously very limited on how much I can take.

    We all suffer Fibro symptoms to varying degrees. Some can manage their pain and continue to work whilst others (like me) are in a serious amount of pain 24/7 and the ME is just awful. There are no words I can find to describe it.

    I dread the thought of being a grand parent because I just don't think I could cope with a grandchild.

    My personal advice to you would be to ask for a referral to a Pain Clinic and a Pain Management Clinic.

    The first Clinic deals with medications (have you tried injections?) and the second one helps you to learn how to deal with the pain.

    Your GP can refer you to these clinics. I am not sure what a Rheumatologist could do to be honest.

    I very much hope that you enjoy the forum. If you need any help finding your way around, please don't hesitate to ask and I will be more than happy to help you.

    Wishing you less pain and more peace

    Lu x

    Administrator

  • Hi geoffjames- Caz sometimes known as Nurse Gladys Emanuel (open all hours) I,m a retired nurse this year and had fibro for 14 years along with anky spond, OA and calcium crystal disease, I too have 2 rheumo docs looking after me, the best one being at a big city hospital where I worked and was sent to him by occ health after a long period of sickness, he is excellent with fibro and his centre in the hospital is just fantastic, he put me with a specialist physio who took me for hydrotherapy and gave me acupuncture for OA with very good results, now that I,ve retired its a long journey to get to him and so just go once a years, my local hospital has rheumo doc no. 2 who has had my notes since 1980 when anyk spond hit me hard (now in remission thank god) he looks after OA and calcium crystal deposit injections via the pain clinic and more recently has checked me for sjorgrens syndrome and under active thyroid, both docs liaise with each other as local doc has very little knowledge of fibro nor does he have facilties that the big city hospital has. So I hope by you seeing another rheumo doc you get a better outcome.. Do let us know- stay on the forum there are lots of people here who can help you in many ways.

  • Hi geoffjames62

    Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read that you are suffering and struggling and I sincerely hope that you can find some resolution to these issues.

    I can see that you have been given some wonderful replies and so I will simply and sincerely wish you all the best of luck my friend, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • My gp now thinks I have sle a lupus problem

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