hi everyone
From the very start of having fibro when ever I have a flare up I get a rash like in the below image. At first it worried doctors as it is non blanching and can range from red to a dark purple but now they just suggest it is just another symptom of fibro. However, they are never able to tell me what it is or why specifically it happens so I just wondered if this is something anyone else has experienced?
hi, yes I get this, but mine star off white, they change to your colour, and sometimes they pop and split and then peel, my doctor thinks it’s part fibro and part my eczema, does yours itch?.
hiya
Thank you for replying!
No they don’t itch but they do start off white sometimes before changing to a darker colour. They’re completely flat more like a rash than spots so they don’t pop or split.
Do yours have any specific triggers or causes as to why they appear because I can’t figure out what causes mine?
you are very welcome .
Mine tend to come and go as they please, I don’t know if it is anything to do with our nerve endings, but when my two main back muscles collapsed, I was smothered from heat to toe with the rash, you couldn’t put a pin prick between them, at the time I was told it was my body going into shock and it affected my nerve endings ? So may be if you are in a great pain, it could possibly trigger it. It’s mind boggling, isn’t it.
hi,
had similar, since changed diet to gluten free and dairy free they have reduced.
one of the rash signs could be having a food allergy to gluten can be a rash, hopefully your doctor has ruled that out with a blood test? and a prick allergy test?
it may even be washing powder, medications on,
try to make a food diary, check any products using.
hope disappears soon.
Hi S2000.
Before noticing the rash like spots, did you suffer from a hot flush as I'm no doctor or medically trained either.
However those spots remind me of heat rash & I do have experience of that & it's nothing major & it soon goes away on its own.
I may be totally wrong but it could be a possibility & I hope it gets better soon.
Hiya Scout,
I get a rash like that on the top part of both arms. It only started when my Dr put me on Duloxetine. Mine look a bit more raised than yours, like blood blisters. Mine don’t itch or bother me. They come n go. I wondered if u take Duloxetine too? Gentle hugs 😊🤗
I’m currently on gabapentin but yours do sound similar to mine as they don’t itch and they do look like little blood blisters x
The first time mine appeared on my arms I showed my Dr n she said what on earth have u been doing to yourself?! I calmly replied nothing it’s only started appearing since u put me on Duloxetine. Sometimes mine are round n sometimes the shape of a grain of rice. Just another weird freaky unexplained thing I now have lol! 😊🤗
It looks somewhat like Dermatitis Herpetiformis, which often goes hand in hand with celiac disease.
Maybe try cutting out gluten (tough) for a month or so and see what happens.
You say it doesn't blister, but if it becomes more severe and itchy or does blister you need to request a celiac test. Actually you need to keep eating gluten if you do go for a test.
NHS England: "The rash is itchy and has blisters that burst when scratched. It usually occurs on your elbows, knees and buttocks, although it can appear anywhere on your body. It's estimated that around 1 in 5 people with coeliac disease also develop dermatitis herpetiformis."
Picture included
When I have a flare up parts of the body swell and itch and then i do have a rach . But I have to go back to rumerthogly as an ultrasound saw inflamation.
Hi, yes I get it too. I have no idea why or how but it comes and goes. Drs just tell me to keep an eye on it, as I believe their as confused as I am with it. are your on your leg? Mine tend to be on my inner calf’s but I get the white ones everywhere too x
the white ones are like nerve endings pin pricks 🤔
Hi. It looks like Petechiae. That happens when blood vessels bleed and they usually show up when you have an infection. If your flares are caused by a virus, that could explain it. If you have no new symptoms and they go away or do not spread, it's generally viewed as par for the course. If they spread and are accompanied by new or worsening symptoms, then you might want to request a full blood count with autoimmune panel. Hope you feel better soon.
thank you so much for replying that makes so much sense! A few weeks ago I had a viral infection and I’m still recovering really. Also, thinking back over the years they tend to flare up when I’m run down or have other illnesses. Thank you because I do think this may well be the reason and even though they don’t cause me any discomfort I still worry and this has helped put my mind at ease. As it’s always reassuring to have a possible name and reason for it x
think you hit the nail on the head!
Yes, that friend makes an appearance now and again and yes my doctor says it is just a part of the fibro making its presence felt Pretty normal along with the little monsters sawing my arm off and the dwarf drilling a hole in my head.
I get that rash too. Drs say I have fibromyalgia, but about two years ago I was diagnosed with Psoriatic Arthritis. I’ve had the pain and arthritis of the condition for over 40 years. It started when I was a young girl! The psoriasis is just starting and drs say that’s a psoriasis rash. Eventually they will start getting scaly and itch or become painful but they don’t yet. It’s rare for people to have the arthritis first and the psoriasis later in life. One reason it took 40 years to diagnose. Stress, anxiety, severe pain, or illness brings it out. Hope this helps someone.
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