I have been diagnosed with fibromyalgia, suffered for years with the pains, my hub is registered blind & i'm having to give up self employment as I simply can't cope anymore. I have no bath only a downstairs wet room/shower/toilet. I have no toilet upstairs & coming down in the night ( my stairs are steep) & going back up is horrendous. I just want to bathe in hot water, im finding the pain hurts, brain fog in full swing, morphine & tramadol enough to dose a horse is brutal. I just want to soak my bones to help with the pain. I'm in council housing & the house has already been adapted with the wet room & kitchen extension, when the extension was done they built the foundation for a double extension, meaning as & when hub needed the toilet upstairs it can be done. Can I now get the DFG to help pay for this alteration? would they see I would benefit from being able to bath, the healing from water can not be denied, but would they see it a s a reasonable request? This illness is so devastating, my passion & business is slipping away, im left in agony or wasted on pain relief & feel surely can I not get help with this! I don't not want to work, I did my business to help pay for anything & everything to buy as much useful tech for hubby, not a lot to ask a washing machine with digital display so he could see it etc, i've supported my family & rent/bill's but now i having to make the call to step back & it feels like the worlds just dropped at my feet. I'm used to being in control. Any advise would be appreciated, i'm totally lost among all this, I have tears every morning as the pain I wish it would go, all I want to do is have a bath , not alot to ask, just not sure if the council would agree? My brain fog is real bad, I have to remember & do some much running a small business, im shattered, hurting & a bit of a mess right now, please tell me I can get some help, if i'm lucky I have a 4 hr window of working or doing anything, 10am-2pm ish, in between medication, the other 20 hours....well you all know the symptoms of fibro so not much quality / fun there at all
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