I'm new to the community: Hi everyone... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,448 members66,494 posts

I'm new to the community

18 Replies

Hi everyone,

I'm a new member (I'm 56) and I have suffered fibromyalgia (when I was diagnosed it they called it fibrositis) and osteoarthritis for 20+ years and I am lucky as I have always managed to keep it at bay and keep up a full time job, but I recently had an ischemic stroke and it seems to have caused quite a flare-up of both conditions. I don't take painkillers other than paracetamol and ibuprofen, I try to keep a positive outlook and meditate the pain away, I do take gabapentin occasionally for damage caused to my back many years ago (old sports injuries from when I was super fit!) but the daily meditation helps to reduce the pain and improve my sleep. Does anyone else have any natural remedies they find helpful?

I am on statins, ramapril and clopidgrel because of the stroke but hopefully that will not be forever

Read more about...
18 Replies

Hi Hidden Welcome to our very friendly forum, I will let someone else give you all the info about where to find information :)

You will find that a lot of our members use humour to banter away the blues, aches and pains. We do also deal with the more serious side.

A stroke on top of everything else, no wonder you are flaring at the minute! I count myself very lucky in that I am in my fifties and can still work but only on a part time basis. I try to stay away from as much medication as I can but there are some things you just can't escape :)

I hope your situation improves and you can ditch some more of your medication :)

in reply to

Thanks,

we are the lucky ones a lot of sufferers don't have that option to work or cut their meds. I have a circle of healer friends ( spiritual, energy and shamanic) and healing has kept things tolerable for many years and I am the most positive, slightly eccentric person I know! :-)

in reply to

May I ask what is shamanic, I am sure I know this but it escapes me at present :)

Positivity is a great power, eccentricity just help you fit in with this lot :P :D

in reply to

Hiya,

my friend is a Shaman ( some people call them witch doctors), lots of people have shamanic healing as I have, it can get a wee bit freaky at times especially when the singing and chanting escalates, but it brings such a feeling of peace and wellbeing, it's so worth it. Have a look at the link

Edited By Admin

in reply to

That was an interesting read and if you have something that works for you my thoughts are go with it :)

Trikki profile image
Trikki

Hello s1shaz....and welcome. I am sure you will not regret joining this group...we do deal with the serious stuff but have a laugh too...You can have a good old moan when you need to and once you get used to the site you can find out almost anything including natural remedies if you type it in the search box top right...

Trikki

Thanks Trikki,

I do like a laugh. I'm well known for it! I go to work in the morning ( hopefully I can get back in the next month) have a whinge about my sore bits and then get on with my day it's my therapy...my colleagues would be wondering what was wrong with me if I didn't do it LOL

Hi

I am sure everyone will welcome you with open arms 😊

Will catch up later just have to pop out. Welcome though!

BlueMermaid3 profile image
BlueMermaid3

Hello Hidden

Welcome to the forum 😊 I can greatly sympathise with you as I have suffered with Fibromyalgia, CFS/ME, HMS, depression and other chronic conditions for 30 years.

Even though you have been diagnosed for a long time you may find it interesting to have a look at our mother site fmauk.org

Quite a few of our forum friends use natural remedies. I am a chronic insomniac but find that Nytol taken every now and again does help with my sleep.

If you have a look on the right under Pinned Posts you'll find a post on how to lock your posts.

If I can be of any help or you need assistance navigating the forum, please don't hesitate to let me know.

I very much hope that you enjoy the forum.

Wishing you less pain and more peace

Lu x

Administrator

Hi Hidden , I'm New too only yesterday and have had fab responses, sorry to hear of your stroke on top of everything. This community has lots of good advice and also that you are not alone. So welcome and blessed be. Xxx

in reply to

Hiya, it seems to be very warm & welcoming, I want to get some time to navigate my way round as I hope to get back to work next month so my time will be limited then, but it's good to interact with similarly minded ( and afflicted) folk.

I myself am off work at the moment with nasty sciatica but hoping to return soon even though I struggle with fibromyalgia work is my sort of lifeline to keep going plus I need the money lol. Anyway welcome and hope things improve for you soon and you are on the road to recovery. Xxx 😘

Steve49 profile image
Steve49

Hi.

A very big welcome to the family.

You will find us a very friendly bunch.

Please ask as manny questions as you like ???

One off us will For sure try to help you.

Please let me know if there is anything that I can help you with ????

Steve.

rosewine profile image
rosewine

Just to say welcome the site is a mine if information from friendly supportive people and as they are fellow sufferers they have a great deal of knowledge so hopefully we can help. Look forward to your future posts.x

rosewine profile image
rosewine

Just to say welcome the site is a mine if information from friendly supportive people and as they are fellow sufferers they have a great deal of knowledge so hopefully we can help. Look forward to your future posts.x

TheAuthor profile image
TheAuthor

Hi s1shaz

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

I am so genuinely sorry to read of your health conditions and I want to sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

in reply to TheAuthor

Hi Ken,

I have a very positive attitude toward my health - as long as I can work, enjoy my family and fend for myself, I'm happy. I manage my conditions well enough to be able to do that, and by the grace if god I hope to continue in that mode. Meditation and self-belief.....those are the keys!

TheAuthor profile image
TheAuthor in reply to

That is so admirable my friend, and I genuinely wish you continued success wit your approach :)

You may also like...

New to community

I'm a lady of 59, and have been a Fybro sufferer for the past 4 years. I have a husband of 81 and...

New to Community

Fibro (elevated and increasing RF).... also have tinnitus. Have had 13 \\"seizures\\" in the past 6...

I'm new to this damned illness!!

me to sleep, and for pain I have tramadol which was issued to aid my arthritic pain, but this also...

Hello I'm new to this site.

I'm new

complaining about lots of pain in my limbs. Doctor said it's growing pains and sent me home to get...