Fatigue

[Bambamsnan]

Still trying to get my head around pacing my self cos of the pain but the fatigue don't think I can handle it how do you all manage it the last few days I've fell asleep with glasses on and either phone or remote in my hand don't even realise I nodded off any advice is welcome thanks in advance ☺

[Steve49]

Hi.

I'm sorry to hear that.

Sorry but meds do you take & when do you tak them???

Do you pace yourself during the day ???

Sorr for all the questions just trying to get a picture to help you.

Steve.

[Bambamsnan in reply to Steve49]

I'm on pregabalin morphine apixiban (dvt) the latter 2 I take 12 hours apart it's just something I'm really struggling with yes I pace myself the best I can ☺

[Steve49 in reply to Bambamsnan]

That's great.

[Lou1062]

This is an awful part of fibro, in my own experience the only relief I get from the awful overwhelming fatigue is to get up and potter around until it passes, sometimes I just have to go with it and rest, as for pacing its something you only learn by trial and error, for instance if you have a good day don't go berserk and do the entire house clean, just rest when you need to xx

[Bambamsnan in reply to Lou1062]

That's were I struggle sometimes I think I feel a lot better but then I do to much I say to myself I'm going to pace myself next but I do the same again as for the fatigue I just can't do anything when it hits me im asleep in seconds probably sleep better than when I go to bed ☺

[Hidden]

Hi

I know we get fatigue with fibro especially if we're stressed or done a lot etc.

Have you had your bloods done though,mas a lack of vit d is common in fibro sufferers and can make you very tired. I was lacking and now take it and feel less tired.

Good luck and best wishes.

[Bambamsnan in reply to Hidden]

Hi had bloods done in April this year been worried over dvt my leg keeps going purple when I walk on it thanks for advice ☺

[peck]

Carol, I can't pace myself either.I either stop or go..no in between.My dr treats me for narcolepsy so about 45 minutes after morning meds it's go, get it done because I know it won't last forever.I don't know what to tell you but I do wish you the best. Peck.🐤

[Bambamsnan in reply to peck]

Thanks peck I honestly don't think there is a in between its been awful these last few days did mention it to gp she cfs but that doesn't help me I've had a hour or so and I'm wide awake now how are you very tired after your weekend I should think it takes a lot out of us doesn't it you need to rest now get some strength back Carol xx ☺

[peck in reply to Bambamsnan]

Carol, No I have CFS ..between that and meds that cause sleepiness I told him and he gave me the med. which is normally for people with narcolepsy as it gives me energy.I find it great!! Hope that makes sense.Peck🐤

[Bambamsnan in reply to peck]

Yes peck it does but the other week I was asking for sleeping tablets which she said no to there is a difference the cfs and insomnia nothing is ever normal Carol xx

[TheAuthor]

Hi my friend

I am so genuinely sorry to read that you are struggling with fatigue. If you think it is your medication that is causing this it may prove beneficial to discuss a tweak in your medication with your doctor? Or if you think it may be related to not sleeping properly in the first place, it may be best to talk to them about something to help you sleep for a short period of time? Or having some sleep tests undertaken? Your GP or medical specialist should be able to help you in this area? Hopefully?

I want to sincerely wish you all the best of luck and please take care of yourself.

All my hopes and dreams for you

Ken

[Annetteb2]

I'm still learning to pace myself but quite honestly I am rubbish at it! I seem to be utterly incapable of letting a good day go by without cramming as much into it as possible.

At the moment I am working on getting my vit D up to scratch as it is consistently low. I'm hopeful that once that's ok I will feel a lot less tired.

I just wish they would still give the injections but my GP flat out refuses.

Annette xx

[mmariaaaaaaaa]

I understand - often I don't sleep so much as pass out just like you said and will sleep for 24 hours often.

I'm still learning to pace myself too. Although occasionally I will overdo it by having a night out with friends (by taking Guarana) but I find the payback is worth it to be a normal human being for one evening.