Pain and fatigue: Hi everyone. I was... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Pain and fatigue

Busterelliecharlie profile image

Hi everyone. I was diagnosed with Fibromyalgia on Thursday for the last 2 days my body is hurting and I'm so tired. But I have tried to push myself. My depression is kicking in I'm so worried I've been off work for 6 months and now I'm down to half pay. I think occy health will let me go early retirement ill health. I don't no how it all works. It's a worry for me I don't no where to go for financial assistance. Fibro is a lonely excistanc. Anyway I do hope you are all well and happy. My name is Berenice.

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Busterelliecharlie profile image
Busterelliecharlie
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13 Replies
I_z_232_3 profile image
I_z_232_3

Hi Berenice, I would suggest you keep a diary day to day how you feel, don't be afraid to say exactly how this affects you. I you phone the DWP for a disability or PIP as it is called now for a claim form. On the right hand side you will see topics, this can give you loads of info also you will see FMAUK'S own benefits advisor. Hope this helps. Good luck. Izzy

Busterelliecharlie profile image
Busterelliecharlie in reply to I_z_232_3

Thank you izzy. Everything is a bit dawnting at the moment. But hay ho onward and upwards as they say.

peck profile image
peck

Busterelliecharlie , Hello , if you have just joined our site I would like to welcome you! ! As just getting this diagnosis I'm sure you will be getting some meds that will help.If your unable to work m sy need to go out on benefits. I wish you the best.Peck 🐤

Busterelliecharlie profile image
Busterelliecharlie in reply to peck

Thank you peck. I'm already on amitriptyline which helps. My doctor was brilliant and already thought it was fibro. He sent me to rheumatology which then was confirmed. So things have happened quickly for me. Thank you once again.

peck profile image
peck in reply to Busterelliecharlie

☺!! Peck.🐤

neesey1005 profile image
neesey1005

Hi you have more fatigue and pain because you are stressed - I find I feel much worse when I am stressed/worried or just have taken too much on - I am so tired today because not sleeping well and I did too much yesterday - and wow its such a hot day here 😩. being free from going to work you can pace yourself better - but finances are another story - rest up hope you feel better tomorrow - Neese x

Busterelliecharlie profile image
Busterelliecharlie in reply to neesey1005

Thank you for your reply. Makes me feel better that your not alone this site is a fantastic help. X

munibala9 profile image
munibala9 in reply to neesey1005

HI NeeseX Madam

Please take 200 ml water before sleeping

Glosgran profile image
Glosgran in reply to munibala9

Hi Munibala9

I was interested to see your advice about drinking 200ml water before bedtime. I try not to drink too late in the evening thinking that it will only mean that I will be disturbed by a full bladder and wake up needing the toilet. How does drinking water help? I'm willing to give it a try if it helps with fatigue, muscle aches & pains and/or sleep.

BlueMermaid3 profile image
BlueMermaid3

Hi there

Welcome to the forum :)

It can be very daunting when you are first diagnosed. I think the main thing is to take a bit of time out to digest your diagnosis and try to come to terms with it.

If you have a look at our mother site I'm sure you will find lots of interesting information on there fmauk.org

You have a lot going on at the moment which will not be helping your pain and fatigue. Stress does make Fibromyalgia worse.

There are benefits that you can claim, but each individual case is taken on how your condition affects you.

We do have some forum friends who have been retired due to ill health. Hopefully you will get a reply from one of them.

Wishing you less pain and more peace

Lu x

Administrator

Janet28 profile image
Janet28

Hi Berenise, welcome to the site ☺sorry you have been diagnosed as having Fibro. It's very worrying at first & you will get your head around it all. Other members have given good advise already so, yeah you will find all info you need. I hope you get the right meds to help with the pain.

Peace, luv n light

Jan x

Thank you jan. I need some time to digest and get to know this fibro. It's nice to read what others are going through so I don't think I'm going mad. X

TheAuthor profile image
TheAuthor

Hi Busterelliecharlie

I sincerely hope that you are feeling as well as you possibly an be today? Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read that you are suffering and struggling and I sincerely hope that you can find some resolution and relief to these issues.

I want to genuinely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

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