Frightening fatigue...

[Wobblygirl]

I've had no particular upsets recently apart from viral infection 8wks ago and various extras that needed anti-biotics because I went to different Dr's! My own GP resists A/Bs as I react so badly for so long...

I've not bn well 4 ages...

Realised I haven't written in my diary or done my accounts 4 months... These r activities I normally complete because I can do them in my lap and I enjoy...

I had2go away overnight 2wks ago when I was definitely not feeling 100%...

When I returned aftr being driven both ways, I realised the fatigue was 300% worse than ever! I couldn't even wash or dress or hold a full cup of tea! It's bn total rest ever since+not gone home but needed someone to help me because my own independence had just disappeared!

If I try+do anything more than just existing, everything throbs! So I realise even the tiniest activity has 2b avoided!

Luckily I am being fed!

On my own I would wither without food prep...

I am v frightened by this sudden absence of upperbody strength. I can walk a little, sleep loads but get up2sit down!!!

I now have the odd shower and dress abt 5.00pm!

But otherwise I do nothing... even a conversation is really hard4me

My arm muscles r particularly weak as I've noticed my pen control is wrecked!

I am so frightened by this deterioration but my GP just fobs me off so I don't know whether to contact her again?

She just says it's the viral recovery and the impact of A/Bs...

Is she right?

My pain is minimal because I do nothing!!! I don't take drugs... I pace myself and rest a great deal, trying to eat pure food.

I really don't know what's happening to me as I consider how to live independently again unsure abt what services I need to access...

It's terrifying as I normally live alone with no support apart from a cleaner!

Eating is minimal because of fatigue despite a hunger...

Can anyone identify w my deterioration?

Thank you for reading so far...

Wxx

[Yassytina FMA UK Volunteer]

Hello , sorry too read this ,indeed your body could still be getting over this Viral infection but if your still struggling I would seek a second opinion for a piece of mind.if you feel the doctors you have already seen don’t seem that helpful have you considered a change of surgery? You have noticed the deterioration of your body and you need too be listened too. Can you take a close realative /friend too appointment for some support, I do hope you get somewhere, take care of yourself x

[Wobblygirl in reply to Yassytina]

Thank you 4 noticing my post... xxxI'm waiting 4 another week to book appt2c GP+taking my partner with me as I hope he will reiterate my despair abt losing my arm strength. He has had 2do so much more recently...

Even reaching an object off a kitchen surface because I can't bear the weight!

Saucepans are a no-no+the kettle will soon be impossible to lift too....

Washing up DOWN into a sink is the only activity I can manage?

I can no longer even carry my handbag across my body!!

I get the usual chronic throbbing if I walk at all as the movement causes the arms to swing+ache. It's a chronic circle of achieving nothing; even tapping this screen is agony!

I'm so pleased you replied...

On top of everything else I felt no one identified w my situation at all as there were no replies...

INVISIBLE comes to mind???

Bless you, from Wxx

[Guppy_mama in reply to Wobblygirl]

Hi,I totally identify with your symptoms. They sound like one of my worst flare ups that took time to pass. A young doctor screened me for vitamin deficiency and found I was very low in D and B12/folate. I suggest speaking to another doctor. A fresh pair of eyes might help. Unfortunately, with fibro there are no quick fixes.

With regards to managing in the kitchen, I no longer use a standard kettle for safety reasons. I use the kind that heats a cup at a time. Like the Breville one cup

I hope you feel stronger soon.🤗💜

[Wobblygirl in reply to Guppy_mama]

Thank you for identifying with me...It's really frightening isn't it?

I'm sorry you understand from yr own personal experiences...

I asked abt Vitamin levels few months back and nothing was reported aftr blood tests??? It's as if I want something else to be responsible for this extreme change; I rlly can't believe this is a flare up? I def thought I'd experienced some bad flare ups in the past? Obv nowhere near as dire as this...

The kettle suggestion is so helpful. I think it's time to start looking...

Bless you 4 responding Wxx

[Yassytina FMA UK Volunteer in reply to Wobblygirl]

Not at all you need too have a chat , I feel for you younger people it’s so unfair, glad your partner is a great support. We all have rubbish days and it’s nice too know someone s listening for sure xxxxx

[Wobblygirl in reply to Yassytina]

Thank you for responding again...It's always good 2b heard!

And there's been an excellent suggestion that I can work on, to buy a new kettle...

PS I doubt I'm any younger than you!!!

I'm a retired teacher so you can imagine which decade I was born in...

Wxx

[Yassytina FMA UK Volunteer in reply to Wobblygirl]

My daughter has just passed her degree with honors , she’s got 2 little boys , worked part time as a teachers assistant and separated so I am totally thrilled for her, she starts teacher training in September . Well I am 63 on Friday 😉an other year passed very quickly xx

[Wobblygirl in reply to Yassytina]

What a fantastic achievement?Congratulations to your daughter!

I'm sure you were a great support with the boys etc?

I taught in SE London 4 my career; hard but a great experiences 2 remember too... until M.E. set in aftr 20yrs teaching!

Then, it was downhill... until I started 2 tutor individual children. It started with a friend's lad and it just blossomed into a career...

(He's 33 now!)

I used to visit families at home then but when I moved to Kent and M.E. was becoming more problematic the pupils came to me...

It was a delightful experience and I learnt more abt how children learn than I ever did in the classroom where it was mostly abt organization and management skills.

Teaching can be very stressful so aftr your daughter has achieved few yrs in a classroom, tell her there are other opportunities where the stress can be lowered... I hope she finds a supportive staff who look after their new recruits. It's a rewarding experience and no 2days r ever the same so it's never dull!!!

She's v lucky to have you as a huge support despite the fibro, affecting yr stamina too...

Wxx

[Yassytina FMA UK Volunteer in reply to Wobblygirl]

Husband and I are trying too support her with the boys ages 10 and 7years, ( husband) they are separated is also doing his bit as well, sounds wonderful what you achieved ♥️I was diagnosed with CFS as well ,treated sleep apnea and obviously the age related stuff 😉with Fibro , I try and keep cheerful as best I can, the dears are coming for tea today 🤣I will tell her about your post . Very kind and thoughtful of you , she s been doing 3 days a week as a Special needs assistant, very tiring but rewarding at times.When she left her work top was covered in handmade cards , @little pressies , it’s a little primary she’s going too , she has got year 1 in September .

[Wobblygirl in reply to Yassytina]

Year 1 are great as they're so keen but v demanding too! Tell your daughter to really enjoy her time b4 Sept and get all the aggravating jobs at home completed b4 starting her new career.Teaching is pretty full on, so any prepared frozen meals will be such a godsend when she comes home frazzled...

Hopefully you'll be able to keep an eye on her mental health as it's v easy to overdo it and get ill every wkend and holiday! I was definitely one of those which I think contributed to my M.E.

I hope this doesn't read too negative but I feel I should be an ambassador to protect new teachers from the ills of teaching as I had to end my career because of a breakdown which took years to recover from...

Nobody really notices how down trodden you can become even the headteacher+staff! But I bet you as a Mum will monitor her well being?

How lucky she is to have your love+care Wxx

Enjoy your teatime today xx

[Uellow22]

Hi Wobbly girl,

Wobbly is exactly how I feel when I am in flare up mode....I struggle to reach over either my husband or son in the kitchen for example to get the pepper or anything. I have to hold onto walls, doors for support.....it is absolutely dreadful, I truly do understand how you feel.

In terms of the doctors I do think they are more likely to listen more when we have our partners, family members. But it is also healthy and great that your partner is there for you.

Relating to not many responses, it can feel like NObody cares or feels the same as you but I am pretty sure it's the opposite 😉 I think we ALL feel the same, alone at times, misunderstood, frightened.....its perhaps we all are unsure of what to say.....plus I've noticed less replies to posts recently, its probably because lots are on holiday maybe.

I hope you feel better soon, it will pass just sometimes feel too long to wait.

Soft hugs to you darling xxxxxxx

[Wobblygirl in reply to Uellow22]

Thank you 4 yr understanding...It means so much but I'm sorry you can identify! It's quite terrifying isn't it?

Yes the wobbliness is nerve wracking isn't it? Thank goodness 4 my small rooms where walls can steady me...

My cleaner came today+she noticed just how weak I was; constantly sitting down or collapsing when I was standing to talk to her. She was v kind and tried to help as much as possible so I now have a lovely clean home but needed to sit down 4 past 4hrs 2try and recover enough stamina to make a drink4myself!!!

I'm going to get v slim at this rate???

Thank you for yr soft hugs.

I felt heard at last!

And maybe folk are away on holiday in July? Unfortunately I've had2give up holidays these past few years as they're too wearying...

I trust you are ok Uellow22?

Lovely to connect with you... Wxx

[Uellow22]

Wow a lovely clean home sounds great but not great to have to take so long to get a cuppa....perhaps ask your kind cleaning lady next time.

Take care & always up for a connect.

Yellow22