Hi there

I am so sorry that you are feeling so sad and lonely. The relentless pain can leave us feeling depressed and sorry for ourselves and rightly so.

Are you able to treat yourself to something? I don't know what sort of things you are able to do. Are you able to listen to an audio book or distract yourself in some other way?

Have you made an appointment to see your GP to ask whether your meds can be upped or changed?

Also, have you attended a Pain Management Clinic? If not, it may be a good idea to ask your GP to refer you to one, if you would be able to get there.

I do hope that you will be able to get some sleep tonight and feel better in yourself tomorrow.

Wishing you less pain and more peace

Lu x

Volunteer Administrator

So soory to read your post and that you are feeling so alone. I moved at the end of last year after 38 years in the same house and I admit all the extra work, worry and adjusting to the new place and environment and not knowing people caused me to have a major flare which did last for a long time. I am slowly coming out of it and have been having better days so there is hope at the end of the tunnel.

Don't feel alone as we are here for you to connect to. I can commiserate with lack of sleep as I have always been something of an insomniac but since this fibro the pain keeps we awake many a night and as we know that has a knock on effect of making us so wery the next day which ups our pain levels.

I know it is so difficult getting extra help from Social Services because they have been cut funding. They have closed a large council care home in our town because of the funding cuts. Have you asked for a reassessment of your needs if you have got much worse?

Keep in touch with us and let us know how you are doing.x

Oh I'm so sorry for you , you don't need to feel sorry about being sorry and it's so hard anyway with fibromyalgia and if you are on your own that's tough . It's ok people saying join this join that but most of the time it's just hard getting out of bed some days . I do want to thank you for yesterday , you were so sweet to me , if I can help support you on here well that's a privellage . Have you got a hobby that can be done at home , myself I craft when I can and that has saved me many a time . Xx

I wish it was easy for us to get the assistance we need. I'm sorry your having to cope with so much alone, it truly upsets me social services can't do better for us. I'm in a motel. Without a kitchen and trying to get help with rapid rehousing/echo program. Its a struggling time but we can do this, hopefully our days will get better. You can friend me if you like.

I can't really add anything to the wonderful replies you have had already, other than to let you know that there are many, many people on here who will help and be your friends if you want? They have come to my rescue!

I cant add anything useful, please keep looking in on us here everyone is so kind and understanding xxxx

Thank you all for the lovely replys every one. Big gentle hugs xxx

So sorry to hear that you are alone even if we have a family/ children unfortunately they are not always there for us when we need them sadly I speak from experience. You probably are having a bad flare up and not having had much sleep is making you feel worse, I do hope you feel better now after the replies you've got and you know we are all here for you, there is always someone to chat to on here most of us know what you are going through with the pain, you will get through this you will find the strength from somewhere, take care of yourself

Hi love,aww so sorry to read this dont ever feel alone some lovely caring people on here me being one of them if you ever want a chat please messaged me where I live been here five years and just got a friend so know how you feel love and big soft hugsxx jill xx,

Hi

I'm very sorry to hear how I'll and lonely you feel. Moving is hard for able bodied people and is listed in the top three reasons for suffering from stress. As far as I've been led to believe stress can make fibro worse, I know I was like you in agony.

Please take time to rest and get yourself feeling a bit better.

I am pleased that you've come on here for support and I can see that lots of kind people have supported you. People do care about you and how you feel. Sometimes the people we love can't cope with seeing us in so much pain, maybe your careers just are at a loss to know what to do to help you too?

Have you moved far and do you have a dr?

I think you should see your dr and ask for more help with the pain and your mood.

Please don't forget the Samaritans are at the end of a phone and care too.

I do hope that when you get settled that you start to feel a bit better. I do hope that a new home eventually helps. Good luck.

Take care and best wishes.😊

Hi Bks72

I have read your post with so much pain and sorrow for what you are going through, and I sincerely want to wish you all the best of luck. I have pasted for you below the telephone details for the Samaritans and I implore you to ring them when you feel really low as they will listen to you.

The Samaritans UK

Telephone: 116 123 (UK)

I was wondering if you had a good GP? As it may help to talk to your doctor about exactly how you are feeling?

Please take care of yourself my friend.

All my hopes and dreams for you

Ken

Hi, sorry you are feeling this way, it can't be easy for you doing this alone, and must hurt that your Family have let you down. Is there a local authority in your area, that can help assist you to get out, for maybe afternoon T or, some sort of T rooms where you can meet people, with the same or similar illness. Or mayb a hobby, that you can manage. I certainly feel for you, and hope you can get some sort of help, so you are not alone all the time. Take care.x

hi, do you have a tablet ? PC type not pill lol i belong to the library and borrow ebooks i have a bendy arm holder for my tablet which allows me to lay in bed and read the holder was 7.99 and library is free. you could also have movies again there's a free service, let me know if that interests you ☺ but i get how you feel. i have no friends or family, except esined who i just met, my son moved 60 mile away and doesn't really care. i don't have a carer and it is hard, its soul destroying being so isolated. but you have here and all these lovely ppl. stay strong xx

So sorry you are going through this difficult time in your life I am in the same situation and there is little comfort I can give my mother always told me you are on your own in this world so I was told to value my solitude and look at it as a blessing that some people never experienced you are stronger than you think and the strength can come when you least expect it you will get great support on this site

I am sorry you feel the way you do. I am not well as well and not had much sleep. I have seen my GP this morning but "lost" it on the phone later with the receptionist. I swore at her. It would not matter who it was I would have sworn. So that's that surgery done for and I can't easily get to another. I feel like hanging myself. I said on the phone "your policies have driven me to despair". They did give me a paper form for a blood test to see if I am fighting an infection, however, from past experience you can be fighting an infection and it will not show anything so they say there is nothing wrong. I have complaints as long as a hanging rope that works. Sick of it all. I too am alone a lot. Too sick to socialise. I would contact the Samaritans. I have their email. You can write to them you don't have to be su. I don't know what to do.

I am not very hopeful so possibly not much help to you. I just have some idea of what it is like to feel utterly overwhelmed with negative emotions and not being well. Then there are practical things that need doing that I can't even find as lost from two days ago. How does important information disappear?

Hi, I totally understand how you feel, I was like that for over 10 years and you feel like life is unbearable. I joined a Fibromyalgia Support Group which was a few miles from me a couple of years ago. It was so friendly and helpful being with others who understood as they were in same boat. Trying looking to see if you have one in your area by googling it. Ours meets once a month and I have made some good friends that I see outside of the group as well. Yesterday I went with one of these friends to her PIP Tribunal and she won. Some people will give you lifts if you ask if anyone is going your way. Maybe you could go by taxi the first time. I found it a lifeline.

I truly hope that you find something to help you.

LaurieLee

Bks72 , I'm sorry your feeling so low and feel you gave nobody that cares.We are 20,000 plus on this site and WE ALL CARE! ! Hope. you have a good evening and things get better for you my friend.Peck🐤

Please just remmber your not really alone as i am always thinking of people on there own and sending peace, calm and of course love x

I know how u feel. fms is so misunderstood and the affects so underestimated, lack of knowledge of the disease worldwide isn"t helping us. I am dihydracodeine user for 17 years and would have topped myself by now with the mindblowing pain if not for this brilliant drug which is so very nearly impossible to get prescribed. any stress has the instant effect of making the fibro flare. I take Prozac aswell which stops me from feeling weepy. there has to be someone u can reach out to. search the net for support groups etc. be lucky

I understand!!!!