Fibromyalgia Action UK
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Medication

Hi I've just been prescribed duloxetine and I've been reading all the side effects b4 I start taking them. Not a nice read! Does anyone else taking them and do they work without the horrid side effects? Do they help? Any information greatful x

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Thank you 4 ur help. Will give it a go 2c if it's 4 me. Not looking forward 2 it tho lol

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Thank you! I will try and be more open minded with them when I start

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This is a very irresponsible answer, BlueMermaid. Always take responsibility for your own health. There are hundreds of people out there who have become addicted to, or are badly affected by, this type of medicine. You can always look up on line and check the effects of any drug if you don't trust the literature that comes with the medication.

GPs dole out medication without even bothering to warn patients. Did no one watch that Panorama documentary called "I'm addicted to pain killers" ? I believe it's still up on iPlayer.

There are enough big pharma around ensuring that Healthcare professionals keeping prescribing their dodgy products, the last thing one wants is us sufferers to tell each other NOT to read the literature that the law has forced them to print.

I am shocked that an administrator has written this post. I'm NOT just scare mongering either! I'm speaking from experience.

All drugs have side effects. If you are grown up you have to realise this. After that, it's a matter of choice. But informed choice. Not just, like a child, "oh the doctor will take care of me." S/he may not. It's you that ultimately has to take care of you.

Read the literature, research sensibly online. Then make your choice. And please, HealthUnlocked, do not advise people suffering NOT to read the drug literature. That is dangerous.

Diana

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I don't think they was any need to post that bluemermaid was stating her opinion like we all do she is one of the best on here and if you have a problem message her not put it on here for all to see there is some very vulnerable people on this site and we trust each other and I think it awful what you posted

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Excuse me, since she was advising someone (whether or not in "her opinion") and since I am a fibromyalgia sufferer too, I have every right to remind her, and everyone else on this forum, that each of us should inform ourselves of whatever medication we have been prescribed.

If you think that talking about informed choice is "awful", don't read it.

As for "vulnerable people" - that is very patronising indeed. Just because we are sick and suffering doesn't make us unable to take control of our own health or to share information.

If you call caring about us and sharing important information "attacking" then sorry for you.

It isn't personal,

Diana

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I care a great deal for everyone on here and not patronising anyone all I said if you have a problem with someone then message them instead off making her look bad on here and for your information some of us are ill and can't manage our health that's why people ask questions on here for help so if you have a problem talk to person through pm and don't ever accuse me of not caring cause I do and I'm not attacking anyone it was you who attack lu x

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I'm afraid I agree with Blue mermaid in part. Reading the huge list of side effects for every medication can mean that every little hiccup is attributed to the drug or often perceived to be felt. Obviously if there is an adverse reaction then consult the leaflet to see if it's on the ' see your doctor ' list but otherwise take the medication with an open mind.

Dee

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Hi love I am on duloxtine and I have been fine but different meds suit different people so give them a try and see how you feel thinking of you hugs jill xxx

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That's good 2 hear. Thank you

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Cah71 , I've never taken this med but I do wish you the best.Peck🐤

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Thank you

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Hi Cah71

I have never taken this drug myself but I want to sincerely wish you all the best of luck with them if you decide to go ahead and take them.

All my hopes and dreams for you

Ken

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Thank you

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Hi Cah71, I'm on them but with any new drug like these I take them at night to get them into my system first so if I get any horrible side effects I'm sleeping, haha then once I've been on them a wee while I start taking them in the morning. Hope this helps. GP said its ok to do this

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Hi robbie did u get any of the scary side effects? I'm a bit worried cause their everything I'm trying 2 rid myself of! Lol I want 2 feel better not worse. Thanks 4 ur reply

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I'm not good with tabs, that's why I start at night so I hopefully sleep away any side effects. I too want to feel better and I want to be in control of my own body, it works for me but I know not everyone the same. Hope this helps x

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Hi. My experience was not good at all after taking just one tablet of Duloxetine. In fact my huband had to call doctor out in the night. Never ate or slept in 48 hours after taking it. Missed my Easter holiday to Lanzarote because of it. I hope your experience will be much better but just be a bit careful when starting. I so wanted it to work as did my GP as supposed to be good for Fibro pain and depression.

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Every prescribed tablets have side effects! Ive been on about 6 different ones.try not to read side effects & kudt try them out.you.l soon know how they affect you.i cant take any of them. I.m hoping i can get some kind of injections but i know i.l have to go private! Good luck x

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Hi lovely,I will be honest with you. I had this med for neuropathy in my arm following an accident when I broke my Humurus in my arm. The said med gave me depression and I gained a lot of weight,so Dr took me off straight away.

I think that if you have faith in your Dr,trust them and go with what they prescribe, if the med doesn't suit ,you will know.

We have to be responsible with what we take for our medication, but if we read the information leaflets on any drug we wouldn't take anything.

Take care.

Jane x

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I have been taking these since first diagnosed last November and I'm yet to find what exactly they are doing for me, doc put me up to 120mg and I'm still not convinced they are doing what they are supposed to be doing, whatever that is. All I know is my symptoms have got worse, my stomach is really bad and my head is minced most of the time. Remember doc saying when I was first diagnosed. Don't be reading all the leaflets and going online it just makes you worse thinking about what could happen. Well she didn't explain any side effects. Now I think this is totally irresponsible and this is a professional. I have a different doctor for an appointment tomorrow and I will be asking him what they are supposed to be doing for me as in my opinion they are not helping. X

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Hi

I have taken Duloxetine for over three years now and am fine. No side effects that I can recall. I take it in the morning and it really does help me cope during the day.

I find that most meds disagree with me so am pleased to find one that doesn't.

I would say give it a go - you will soon know if it isn't right for you.

I also think Diana should have sent a pm - her aggressive reply leaves me speechless and is not in the spirit of this very caring forum on which our volunteer administrators work so hard.

I happen to be in agreement me Lu. If we worried about all the possible side effects we would never take anything at all. Obviously we should be aware of the more serious side effects of any drug - it is all about having trust in our GPs and taking some personal responsibility ourselves.

I would also add that I find it very helpful, like you have done, to ask advice on this forum as the responses are are genuinely helpful and caring.

I do wish you well and hope that you don't have any horrible side effects if you do decide to give Duloxetine a try.

Please do pm me if you need any more help.

Jane

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Hi there, I was also prescribed duloxetine and thankfully before taking I did some research only to find it has massive contraindications if you have eye pressure (ocular hypertension) which I do! I could not believe my GP prescribed me something that might have led to a catastrophe of me developing glaucoma unnecessarily. I had little faith before, now I have none whatsoever. Take care, sending you a happy wave today

Wavelength

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Hi

I found I had bad reactions to all the meds i tried for pain and antidepressants, this was the last one I tried. I did feel sick on them for a few weeks at the lowest dose, but read that it would pass. As I really needed something to help my mood, ( I was at my lowest ever) I keep taking them. The sickness did go and my mood started to get a bit better, I'm now on 60mgs and am due to go up a bit more. I am sure there helping my depression, just a little constipation now that's all.

Like everything it's probably best to try them for yourself and see how you get on as everyone has different reactions to things, you might have no side effects at all.

Good luck and I hope that you're fine on them and that they help you.

Best wishes. 🌺

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P.s. I take them in the evening after food, which is important.

With regards to effecting your eyes, I read that too. As I have hereditary glaucoma I asked my specialist if it was ok for me to take them and he said it was.

Good luck 👍😊

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Hi, I've been on Duloxetine for 3 years now, to help with the pain of my severe CRPS. I tend to be very sensitive to new meds, but i felt nauseous for the first few days, then that went, and they've helped both my pain, ( a little), and my frame of mind a fair bit. Good luck with it, we don't know until we try!

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Duloxetine has been wonderful for me. My only side-effect was an increase in RLS but an increase in Clonazepam dealt with that in no uncertain terms :-)

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I have been taking them for a while now 20mg in morning and 60mg at night. No side effects but doesn't work too good, also on Tramadol, amitripyline, plus other but not for fibro!

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I took it for 4 weeks but felt quite ill on it as I seemed to have a very strange headache all the time. I then started to have constricting feelings across my chest and palpitations so stopped it immediately after that happened.

Like every drug what suits one doesn't suit another and others have had really successful results. It is good to be aware of what to look out for but when you read the patients leaflets they can often scare you half to death. I always now just make sure that there are no contrary indications and what are the major things to watch out for and then decide wherer I think the risks of taking it are worth the possibility rewards . I always tend to travel hopefully that the next drug might be the one that really helps but I do weigh up the risks. I am so glad that I battled through the initial side effects of Pregablin but if you have any side effects that worry you you need to take advice. I wish you good luck.x

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