Fibromyalgia Action UK
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Weird feeling

Morning all I hope everyone slept well last night. I was wondering if any of you get this weird feeling that you can't shift its like you need to stretch for example at the moment I have it in my neck and shoulder it feels like I need to stretch it or rub it. It's really hard to put into words how it really feels. You can't ignore it and I find I can't sit still and it stops me sleeping I feel really restless and uncomfortable in my own skin. I live with pain like all of you which you have no choice but to put up with it but this is differant. I have even been use img my tens machine on it to try and get it to stop. Does anyone have this and if so what it is called and is there any treatment it's driving me nuts. Have a good weekend to you all.

9 Replies

I do know i get this also,its like once you sttetch you cant stop i get it in my legs its a horrible feeling worse when im tired.




I'm sorry you've got more symptoms, I can't really say that I understand the discription, sorry.

All I know is that so many different things happen when you've got fibro, I've had a bad jaw all week and the muscles in my cheeks keep twitching and hurt. I've put it down to the fibro, as what else could it be really? It's a strange and confusing condition, without boundaries.

I hope that someone can help you.

Take care and good luck.


Hi spikey9222

I sincerely hope that you are feeling as well as you possibly can be today? I am so genuinely sorry to read that you are suffering and struggling with this issue and I have pasted some information below that may be what you are referring too? If so, it is called ''Functional Neurological Disorders (FND’s)'' and I have also pasted you a link to the *Sheffield Teaching Hospitals NHS Foundation Trust'' cache on this:

Functional Neurological Disorders (FND’s)

Functional Neurological Disorders (FND's) is the name given for symptoms in the body which appear to be caused by problems in the nervous system but which are not caused by a physical neurological disease or disorder. Health professionals sometimes call these disorders ‘medically unexplained’, psychosomatic or somatisation. We prefer the term ‘functional’ which just means that the body is not functioning quite as it should.

There is also an old post (two years ago) that has a similar theme to yours that you may find useful so I have pasted a link below:

FMA UK - Strange sensations:

I sincerely hope that this has been useful and that I was on the right track for you? I want to genuinely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you



Hi Ken thanks for your help I don't know if what you have linked me to is correct but it seems very likely. I will have to speak to my doctor and see if she agrees with you.

Thanks again

From Sarah

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It was just a thought? I want to genuinely wish you all the best of luck.

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Thank you Ken

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i can totally empathise with you i get this its an awful sensation. I also get a creeping sensation right down my spine, inside of spine like a worm creeping up and down and i cannot shift it, its a revolting sensation, makes me feel nauseus and can go on for hours and whatever you do it dosn't stop - its mind bendingly awful and extremely hard to cope with it leaves me in tears - it must be some sort of trapped nerves, i have kyphosis (osteoarthritis) in my neck which pushes my head forward so i have a bit of a hunch back, its probably the nerves in the neck causing it, i really dont know.

best wishes and healing sent your way xx


Thanks for your insight I will post again if I get anywhere with this with my doctor especially if there is treatment.



I get that creepy feeling too down my spine and I too have kyphosis and arthritis in neck. I also get a crawly feeling in my scalp at odd times. Very wierd


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