Sleep pain

[fibro10]

So need some sleep came to bed at 11 was so tied dosed of 5 mins later wide awake. back ,hips , legs paining .😟😟😟😟

[TheAuthor]

Hi fibro10

I am so genuinely sorry to read that you are suffering and struggling and I sincerely hope that you can manage a good quality sleep my friend. Please take care of yourself.

All my hopes and dreams for you

Ken

[Hidden]

Hi sorry your having this problem. I can sympathise with you, as this is me. I hope you managed some sleep. Take care

[Smiler69]

Sorry to hear that you're having a bad time at the moment. This is me at the moment. Can't sleep neuropathy in my arm is driving me mad!

Everything hurts,I am so fed up,to think that this is what I have become ,it hurts so much.

Take care of yourself.

Jane xx😃😀

[neesey1005]

Hi yes I keep struggling with sleep - its like a gnawing deep down in your muscles/legs pain in my legs, hips , lower back : pregabalin has helped me (one before bed)) - I have been trying to move more lately (need to lose weight) - hence the pains are getting worse - its like "chicken" and the "egg". - need to move to lose weight to help with pain and need to move less to reduce pain at the moment - hope you get some sleep today - Neese. x

[DAISYTHROWA1973]

Aww I really feel for you,I'm the same, butt I wouldn't be without my sleeping pills, Iv been on zoplicone for 20 years, fibromyalgia is worse at night,Iv done some reaserching ,caffeine,any ground veg and salad, sugar,carbs,smoking,alcohol all makes pain worse at night,Iv had fibro for 9 years but now being tested for lupus arthritis,the pain I'm in at night is herendous,I'm on high dose of morphine, a stupid dr put me on diamorphine for 6 years so any strong pain meds makes pain worse when leaving your body, I did find pregabalin helpful but I gained 2 stone on it what made my back worse, I had a radical hysterectomy at 21, youngest ever in Briton due to cancer, my bones are thin,I'm like an 80 year old and only 42, there is a magazine from America you can download and fibromyalgia does effect your bones,, try and take magnesium and no fizzy and see a Rhumtoigist ,pain magemement if you haven't all ready,, get bloods check regular

All the best and love & peace, oh eat lots of fish, nuts, lentils xxxx

[Alice2355 in reply to DAISYTHROWA1973]

Hi Daisy do you take your Zopiclone every night. I was prescribed it 7.5 mg last December but when I asked for more, my dr was not happy, gave me the lecture about addiction, blah blah blah. I cut them down to 3.75mg and she gave me 14 instead of the 28 I had at first. The 3.75mg do help some nights but not often enough. Scared to ask to put it back up to 7.5 because I can't be bothered with the lecture again.mshe said it is no use,mum keep taking them, duh, yeh that's because I need them to sleep. She says, you will just get used to them and ur body will need higher doses to have the same effect over time. Zzzzzzzzzz as you can see by the time lol, I've not taken any so far tonight but I really need to or I can be still sitting here at 5am, 8am etc etc, only had 20 mins sleep two nights ago, what else are we supposed to do xx

[Poppetts in reply to Alice2355]

Hi ya you sound just like me my dr sounds just like yours I don't think people take us seriously really don't I would love a cg at sometime just be told I do have fibromyalgia after 4 years of chronic pain it's nice to know I'm not alone thoe hope you get some sleep xxxx

[Hayesider]

Hi Fibro10,

Lots of us have suffered the same, so much sympathy and support. But the medical whiz-kids don't bother trying to help with this problem.

People say 'oh, it's all in the mind', but actually, there is some truth in that. At 63yrs old, have had many sleepless nights, so have started noting them and what I did in the day. Here's a list of the most common, and what I do to change:

Being on the computer till past 8pm = mind is still actively sorting through what you have been doing = it's not ready to shut down. Stop using computer beyond 7.30pm, allowing mind to slow down.

Watching programs that need attention like CSI after 9pm = as above, mind is still actively working. Change to reading papers or a book, gives the mind a rest as cot working to follow the plot.

Texting/messenger to family/friends after 9pm = mind is still absorbing details and drafting next reply. Just let everyone know, that you are switching off at 9pm for 'me' time, and stick to it !

When you can't sleep, there are a few things to try:

Get up and read a book, get up and starting cleaning/hoovering, get up and prepare veg/ingredients for next day's dinner (but don't start cooking), get up and listen to some relaxing music.

The common thread is to get up, and not lay there going 'I must get some sleep', that is fatal, and is when people say 'it's all in the mind'. The mind is so busy worrying about getting sleep, it won't shut down.

No promises, but worth trying these out. Good luck.

[cattistock2013]

So sorry to read. We must have been up and about the same time last night.

Dreadful night with so little sleep. Feel absolutely trashed now,and the pain in my hips and arms is dreadful. Take care out there, hope for a better night for you. Hugs x

[rosewine]

Same here up all night bit like night of the Zombies tried everything. Feeling quite a bit better this morning but extremely tired. Hope you get some😴😴😴x

[slomotion]

Sleep problems are all part of the fibro experience and its awful. If I get 3hrs in a row I feel spoilt! I get the restless leg thing and on some nights it seems to spread to my arms also. Pain keeps me awake or wakes me. I worry that I will not be able to do the things I planned to on the day to come especially if its something I am unable to cancel. I usually get up and have a cup of tea. If its summer and the weather is ok I will sit outside, it is quiet and lovely. I may put some soothing music on or just try and think in a positive way. It is a matter of getting the right coping strategy.

Hope you manage to sleep better soon. X