Hiya I've received the long awaited Mri scan results..they have confirmed that I now have trapped nerves in my neck and shoulders,degeneration of more discs than was last tested c2,c3 and c4,I just don't know what's happening to me I've not long had two operations on trapped nerves in my wrists and elbows. I'm still on the sick from work which has been since the beginning of Feb.The doctor wants me to go to physio but I've done all that before and never found any relief from it,but she said that if I go then I can get referred on to see a specialist.At the moment I've had to try all different medication to try and relieve some of the pain I'm in but none have worked so far they've just made me incredibly ill...I need some sort of relief can anyone recommend anything that I can try please? ☺️
MRI results are back...: Hiya I've... - Fibromyalgia Acti...
MRI results are back...
Hi there
I am sorry that you are suffering so much.
I think the best thing for you to do would be to ask your GP for a referral to a Pain Clininc, a Pain Management Clinic and even have a try with CBT (Cognitive Bejavioural Therapy).
Your GP is the best person to discuss pain relief with.
Wishing you all the luck in finding something that gives you some relief.
Lu x
Admin
Very good advice Lu, your friend Peck❤
Hiya Bluemermaid3 sorry for such a late reply, She said that she wanted me to go to physio before they will refer me to any sort of specialist, but as I've told her it just doesn't work nothing seems to...I will see if I can get into see her and put to her what you've advised,hopefully she will refer me without me going to physio first.
Please don't apologise.
Perhaps you could "negotiate" with your GP. You could say that if you agree to go for Physio, please would she refer you to a Pain Management Clinic.
Out of the three I suggested, I would say that the Pain Management Clinic would be your priority one to be referred for.
Please let us know how you get on. Good luck
Lu xx
I will do that ..she could see the pain I was in last time I went to see her...I just feel a total wreck and so lazy I've always worked since I was 17 but at the moment I have to drag myself out of bed as I'm that tired...I feel physically worn out..just can't go to work .thank you so much I will keep you updated..☺️
Trust me when I say I do know how you feel. I worked solidly for 34 years.
Now I don't think I would last one hour at work.
Just getting through each day is a marathon in itself.
The Pain Clinic will help with medication. The Pain Management Clinic will help you to learn how to manage your pain. It's usually 6 sessions.
If you say you will go for physio hopefully your GP will then be able to refer you for the Clinic.
I'd love to know how you get on.
Lu xx
I'm so sorry to hear that ...how do you manage do you still work? I really don't think I could go back to work at the moment I'm the same as you I would find it hard to last the hour...it certainly feels like a marathon hun..thank you I will certainly ask her...yeah she said that if I go to physio and it doesn't help then she would then refer me..I assume it would be a pain clinic she just said refer me to a consultant..I will deffinatley let you know how I get on..thank you so much for all the advice you have given me..☺️
I ended up having to resign from work due to ill health 😐
I can't work at the moment, due to the pain I'm in.
I just do what everyone else here does and take it one day at a time.
I can recommend you some heat patches or freeze gels if you like.
It's all just a case of trying anything and everything to find out what works for you.
Be kind to yourself my friend.
Hugs. Lu xx
Sorry to hear that...I'm in the same boat can I ask how do you afford to stay off work as I'm struggling right now..yes please I'm open to any suggestions remedies etc..willing to try as much as I can to relieve the pain..thank you you to Hun..and thank you once again.. ☺️
Having degeneration of discs so high in your spine isn't funny, I know only too well. Every move of your head hurts. Don't know about you, but my head gets too heavy to hold up at times. Usually about 4pm lol.
There isn't much you can do about it really. You're not allowed a neck collar of any kind as it will cause the muscles to degenerate (I'd love to see the wise person who decided this medical gem have neck problems and see how long they last without one).
I make a kind of nest with cushions on the couch so that my back and neck are supported but in such a way as I'm as upright as possible. By leaning into it the neck gets some relief. I often end up with my chin in my hands for support, without realising that I'm doing it.
When the pain is bad I use a Thermacare neck wrap. The heat lasts 12 hours and leaves you free to move about. It works best when you wear a polo neck type jumper to keep the heat in. Or a scarf! It really helps. I'm also on some hefty pain meds. I take 8 Tramadol a day and have a 75microgramme fentanyl patch. It takes the edge off, but doesn't make it pain free.
If you get referred by your GP it will be to a neurosurgeon. I found that there isn't much they can do in reality as the spinal cord is so close to the vertebrae so high up. If your nerves are impinged (trapped) because of the bony growth filling up the foraminal space (foraminal stenosis) then they could try to give the nerve a bit more space by removing some of it. But it grows back. The other thing that can be done is to have steroid and local anaesthetic injections into the spine and surrounding muscles. It may or may not help you but it is worth trying. I was pain free for a whole 4 hours!!! What a difference. After that the pain came back slowly. You can only have them every 6 months. Who knows, it could really help you.
I tried acupuncture and tens machine but neither helped me, but you have to try to find out yourself.
The best way to understand what is going on in your spine is to look at the MRI scan and have it explained to you. Won't help the pain but will help you get your head round it. I hope that has been of some help. Sorry it's not a magic wand. If you find one by the way, will you pass it on to me 😀🐸
It's mad that we can't wear collars, you can have splints for your wrists. I've noticed my neck is getting more painful, I've had to MRI's, the 2nd one showed more dengeneration, I have problems with 2 discs on the left and 2 on the right. I am sorely tempted to by a collar just to see if it helps with the pain, I wouldn't use it all the time, I've got a very short neck, its' about 3 inches. I am due back at the docs in 2 weeks and I think I'll take all my paperwork with me and list of symptoms, all though I did try a list before but it was ignored they didn't want to know (that was a specialist not my doc)
Yep. Know that one. I have foam collars that I use at times. The rigid ones are too uncomfortable so counteract any good. I could do with putting my head in traction lol. I have 2 pairs of trapped nerves, or at least that was it 7 years ago. There could well be more in my neck. An MRI on the lower spine a couple of years later showed every nerve root was affected but only one pair compressed. The rest will catch up. The neurosurgeon explained to me that the body tries to protect the spinal colum so spiny growths grow up and down from the vertebrae. The point is to interlink and make the joint rigid, but it doesn't work! So the spikes bits rub and grate every time you move. But it's the growth towards the spinal cord that squashes to nerve root.
I hope you get some help with it soon. I paid for a private consultation as I wanted it seen to so I could go back to work. It made a big difference seeing a consultant straight off. He realised I'd made the appointment out of desperation so added me to his NHS list and I continued to see him at the local hospital. I was discharged back into my gps care until I need the surgery 🐸
It is mad snappy1 I had splints for both of my hands and to be honest my hands ached a lot more wearing them...not to sure about a collar might have to try one for a short while and see if this helps even if it's for a short time just to relieve the pain..my Mri was my second one Tommy first one that I had I was only in my early 20's and showed degeneration of the one disc and was then told I had spondylitis...my second scan has revealed that a further two discs have degenerated plus I have arthritis of the spine and trapped nerves...I hope that you can find some relief and good luck at the doctors when you go back in two weeks...☺️
Thank you sore bones for your reply I'm sorry to hear that you to are in so much pain...yeah I do feel as if my head a lot of the time feels like a lead balloon just sitting there weighing on my shoulders.. It's such a niggly annoying pain that just won't go away..I also hold my head a lot in my hands trying to ease the pain as much as I possibly can until my wrist and hand start to ache😔... I had one of those heat pads that I've put around my neck as you say the warmth seems to take the edge off ..I've got a mass of arthritis around the spine to which is adding to the pain that I'm in...my mom also has spondylitis but it's at the bottom and it's so bad that they couldn't administer the injection for her to try as her spine has crumbled so much when they started to put the needle in it kept hitting the pieces of crumbled spine and my mom was in to much pain that they had to stop...she's also on all kinds of tablets to try and cope somewhat...when she knew what my Mri results were one of the first things she said was "Lisa I'm sorry but you will just have to get on with it,mind over matter.." I honestly wish I could do what she said but right now the pain over ways everything else...thank you so much if I do find that magic wand hunk you and my mom will be the first to know...☺️
You and me both! My mum said more or less the same. And yes, you've guessed it, she is riddled with arthritis too. I'm sure it's hereditary although they say it's not. I was first diagnosed with OA at 32. You can't tell me that it's 'just wear and tear' at that age.
Your poor mum. It's bad enough with the pain that OA brings but not to be able to get much needed help because of bits of broken off bone is terrible.
Anyhoo. I'm not going to moan any more today. If we get the promised increase in temperature the weather forecasters have been talking about we might get some relief. Hope you manage to catch a bit of relief today 🐸
I was told by my doctor it can be hereditary and yes wear and tear to I was told the same at the age of 24..I know it's stupid really... And I suppose over the years it's just got worse and more unbearable to cope with....she's been suffering such a long time bless her but there's nothing more that they can do its as if now she's older she's put on a scrap heap..and just given lots of drugs..yeah suppose to be lovely as from this afternoon might even see temperatures reaching in its 20s 😉🌞👙 well hopefully lol...fingers crossed for all of us that it helps..and same for you to Hun..and thank you once again..☺️
I went private for my last mri, the consultant thought all my issues were due to my neck. I had the cortisone injection into where they thought the problem lay, but it did nothing for me. I don't want to go down the op route, that was a suggestion if the injection didn't help. I'll wait and see where gp wants me to go next but tbh I don't think there is anywhere else to go. Chin up and ever upwards with a smile on my face to hide the fact i hurt. My feet are playing up again feel like walking on broken glass, I walk around work in my socks, just from my desk to copier about 15/20 steps ( just waiting for the H&S lecture)
I know it's hard trying to cope with this pain we are in...I can't work at the moment as my job is in a day nursery and there's a lot of bending and lifting involved...I will have to see if the doctor mentions the injection to me next time I go and see her...I know also to well about pains in your feet I get pins and needles all the time sometimes they are so sore...I also have arthritis in my knee caps which at the moment has flared up might be the weather though as it has been rather damp out there ☺️ I hope you find some relief Hun I really do....
You have taken the words right out of my mouth. I don't think there is anywhere else to go either. Surgery is a last resort. Like you I stick my chin up, paint a smile on my face and carry on, hoping that nobody looks in my eyes, you can't hide the pain that shows in your eyes. A painful spine can't be hidden well 🐸
Awwww I know exactly where your coming from that's all we can do..it certainly can't Hun I don't like the thought of surgery either and that would be last choice to id rather try and manage the pain and try all the things I can before I go under the knife again..☺️
You have been offered some good advise...best wishes! !! Peck.😊
Hi Mightymaggot
I am so gneuinely sorry to read this, and I sincerely want to wish you all the best of luck. As Lu says, a referral to pain management may help? Please take care of yourself my friend.
All my hopes and dreams for you
Ken
Hiya TheAuthor thank you so much for your reply and best wishes...I will certainly suggest it to my doctor...I will let you know how I get on...
Once again thank you so much
Just want to say a big thank you to everyone who has replied and given me all this advice I will certainly take it on board and I will be phoning tomorrow and making that appointment to see my doctor again and ask her about pain management...☺️
I do hope you dont think by the end that this post is crazy! I will post it anyway...
To try and qualify myself to you to even comment on such matters, I will briefly say that I also have degenerative disc disease, and have had a decompression to alleviate stenosis, a 2nd op to implant a soft fusion, and currently am awaiting 3rd surgery to decompress the foramina both sides.
Mine however are lumbar vertebrae-but the effects are much the same of course as your cervical disc probs.
I have had both caudal and foraminal epidurals- the latter didnt work as good as caudals mind, and was diagnostic more than treatment. I take -or took- so much pain relieving meds..
My first comment would relate to the docs insistence that you got to physio.. this happened to me as a first NHS (cheap) resort when my problems first started 15 years ago. And the surgeon ultimately commented 2 years down the line, that this was in fact very much against the treatment needed.The worst thing that they could have done. The encouraged movement and mobilising of the affected area merely serves to inflame the impinged nerve even more! I did in fact experience a degeneration and much pain following the physio and no way would I entertain the idea again..
I have 2 areas I think I might be able to help.
The first depends upon your financial position unfortunately- and that is to consult a chiropractor. OMG these people are absolute genius`s as they specialise ONLY on the spine. The manipulation of vertebrae and muscles is incredibly relieving and helpful and many many people just go for maintenance sessions with them as an alternative to surgery-it really is that good. Generally they cost around £60 for an initial consultation and treatment and around £30/£40 a treatment thereafter...worth every penny IF you have the funds....
My second recommendation costs buttons....and although as I said, sounds crazy you would not believe the effect it had for me! I would like to point out that I am NOT a new age, alternative therapy tree hugger type lol. Far from it. I assure you that nobody was more taken aback when I tried this ridiculous sounding treatment- and be taken from crawling upstairs on all fours state- to suddenly be able to walk properly and have a good 80% drop in my pain levels in just THREE DAYS! I swear thats true- and thats how fast it worked..and as sudden as that yes.
And the remedy?? Taking Golden Paste...the active ingredient of which is turmeric spice! See? told you it would sound ridiculous. I cant believe it even now. But a simple cheap spice cooked up with water and then some coconut oil and ground black pepper can indeed take you from a shaking bundle of painful nerve endings to almost felling cured.
I will not dwell upon how to make it, etc, as the info is very very well set out in a Facebook Group called: Turmeric Users GB Try joining and speak to the 30,000 +members who will all tell you what a remarkable miracle this stuff is. If however you dont want to seek out that info on there and prefer I tell you more then please let me know.
I hope- like me- you will take the attitude of "what is there to lose"? (as desperate people do) and for the few pence it costs to make and take this stuff you could do no worse than at least give it a try for say a week???
Hoping this has been of some use! And the very best of luck!
I do hope you dont think by the end that this post is crazy! I will post it anyway...
To try and qualify myself to you to even comment on such matters, I will briefly say that I also have degenerative disc disease, and have had a decompression to alleviate stenosis, a 2nd op to implant a soft fusion, and currently am awaiting 3rd surgery to decompress the foramina both sides.
Mine however are lumbar vertebrae-but the effects are much the same of course as your cervical disc probs.
I have had both caudal and foraminal epidurals- the latter didnt work as good as caudals mind, and was diagnostic more than treatment. I take -or took- so much pain relieving meds..
My first comment would relate to the docs insistence that you got to physio.. this happened to me as a first NHS (cheap) resort when my problems first started 15 years ago. And the surgeon ultimately commented 2 years down the line, that this was in fact very much against the treatment needed.The worst thing that they could have done. The encouraged movement and mobilising of the affected area merely serves to inflame the impinged nerve even more! I did in fact experience a degeneration and much pain following the physio and no way would I entertain the idea again..
I have 2 areas I think I might be able to help.
The first depends upon your financial position unfortunately- and that is to consult a chiropractor. OMG these people are absolute genius`s as they specialise ONLY on the spine. The manipulation of vertebrae and muscles is incredibly relieving and helpful and many many people just go for maintenance sessions with them as an alternative to surgery-it really is that good. Generally they cost around £60 for an initial consultation and treatment and around £30/£40 a treatment thereafter...worth every penny IF you have the funds....
My second recommendation costs buttons....and although as I said, sounds crazy you would not believe the effect it had for me! I would like to point out that I am NOT a new age, alternative therapy tree hugger type lol. Far from it. I assure you that nobody was more taken aback when I tried this ridiculous sounding treatment- and be taken from crawling upstairs on all fours state- to suddenly be able to walk properly and have a good 80% drop in my pain levels in just THREE DAYS! I swear thats true- and thats how fast it worked..and as sudden as that yes.
And the remedy?? Taking Golden Paste...the active ingredient of which is turmeric spice! See? told you it would sound ridiculous. I cant believe it even now. But a simple cheap spice cooked up with water and then some coconut oil and ground black pepper can indeed take you from a shaking bundle of painful nerve endings to almost felling cured.
I will not dwell upon how to make it, -unless an interest is shown and I can advise further? Please let me know and I will set it all out for you
I hope- like me- you will take the attitude of "what is there to lose"? (as desperate people do) and for the few pence it costs to make and take this stuff you could do no worse than at least give it a try for say a week???
Hoping this has been of some use! And the very best of luck!
Hiya broski thank you so much for your reply...sorry to hear that you have also suffered and suffering from this condition....I would like to know a little more please about how to make and take turmeric spice that you've mentioned at the moment I am a little financially stretched as I'm a single parent with a mortgage etc and not working due to the pain I'm in...thank you once again I look forward to hearing more about the remedy I'll try anything☺️
Ok MM...I totally understand as have been in that very same situation!
There is SO much info to offer on this subject and I cant offer you a facebook link of course because of the site policy...but if you wanted to im me or email me I could help more...but I think if you google Golden Paste you will be amaze at the info out there on this one.
Basically, you mix a packet of turmeric powder from the supermarket- costs 79pence- get the litttle packets not the glass jars... and then put it in a saucepan and add enough water to make a thin paste and bring it to the boil and simmer for 5 minutes stirring all the time on a very low heat. Add more water if it thickens and dries up too much.
Take off the heat then grind up some black pepper corns-enough for about a tablespoon full. Stir in.
Get some coconut oil- from Home Bargain or Aldi is best- it costs £2.99 for a jarful that will do you for 3 of these "cooks". Add about a cupful of the unmelted oil, or 1/2 cup melted.
Thats it! Put in a jar and stick in the fridge-will be enough for about 2/3 weeks. The above volumes are not critical- as long as they are in there. The oil and the pepper contain elements that help the curcumin (the active ingredient in the turmeric) to absorb in the bloodstream and are critical for the recipe.
As regards taking it....you simple CANNOT overdose on this stuff-its a food. The ONLY side effect might be that you get the runs if you go too fast too soon with the dose. Having said that I was desperate enough to start off with a heaped tablespoon 3 times a day-and never suffered one jot for it- but was probably the reason I had such an incredible result so quickly! It felt like winning the Lotto when I woke that 3rd morning honest.
Ok..HOW to take it?? Most say start with half tsp twice a day (unless you want to go kamikazi like me lol) and many take it direct off the spoon. BUT ...it dont taste great I warn you. Not honking vomit time..just not pleasant. But now I have found THE perfect way for me to take it and thats to warm 1/4 cup milk for 30 secs in the micro and then stir in the spoonful of paste. It melts very easily as it has low melting point. Swoosh round and neck in one go!
You will be surprised to find that it doesnt taste of spice at all!!-but instead the taste of the coconut comes through and after a while it becomes a taste that you actually like. In fact people make milky drinks with it this way-often adding a tsp honey and its lovely.
Ok thats it,,,the very basics -you are away at that. Did I mention that its VERY much a proven cancer preventative? Oh and anti Altzheimers? And rheumatic and arthritic remedy? An anti inflamatory thats stronger than ibuprofen?? OMG- I forgot the anti depression..its been chemically proven to be stronger than Prozac too! And this is before I tell you that if you have an arthritic dog it can be restored back to total mobility in days as its perfectly ok to give it to dogs (oh yes -and horses)
LOL..NOW you think Im crazy eh?? lol. But I challenge you- read up some on it, and then prepare and take some...THEN please come back and tell me how you went on??
The VERY best of luck with it and I just hope above hope that it has something approaching the impact it had upon me after 3 days!
Lmao I don't think your crazy at all☺️ I will have to try it Hun and I will report back to you and let you know how it goes...☺️ Thank you so much x
Whilst surgery is a daunting prospect and most prefer not to even think about it- I would just like to say that massive advancements have been made now in the area of prosthetic discs where they literally replace he whole thing with a new intervertebral prosthetic disc.
This technology started with cervical vertebrae only but lately they have even progressed them so they can do lumbar ones too. And the replacement surgery can be done from an anterior approach and with minimally invasive procedures!
The operations are there on YouTube if you can bear to look at them (myself I find them fascinating!)-or even just the graphics of how the insertion is made.
We are all different of course, but for me I wouldnt hesitate if these were offered to me- the recovery time is short, the benefits massive and the final success rates are soaring. I shall be asking to have my lumbar ones replaced in due course,
Wow thank you I will certainly have a look into the procedure hehe I'm not at all tickled stomached..so will find it fascinating to watch.. X
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