Dla and work

[crissy]

Does anyone get full dla and work?

[sloth]

I want to get DLA and a mobility car but also want to know if I can get this as I do still work.

[crissy]

Me 2

[Brujah81]

From what i understand you can get DLA and work but not above middle rate care. High rate care is for those who require carers all the time and are unable to work and are unable to "look after themselves" because of their condition.

I have known people who have had DLA and worked although i personally dont.

[crissy]

Its hard enough to grt low rate y dnt they realise we need as much care as anyone else! X

[Hidden]

you can have dla and work infact its encoraged

[sloth]

I will have to look into it, it would help a lot. Then I can think about reducing my hours. Don't ask me how but I work 50 hours a week... its sucks what little energy I have and when I get home I just have to recover and do it all over again. I'm too tired to look after myself, no longer care what I look like, should probably shower more and never eat. Too tired. I never go out or socialize any more, my time off is rest time.

Because of this the house is always a mess and it upsets my partner that I have no life, cant help out around the house etc etc.

Problem is I cant just leave my job because I have bills to pay, and if I left I don't think I'd be given a chance to get as good as a position I am in now again, or even get offered a job at all. It took me four years for me to get to were I am now, I'm not giving up. I'm not giving my employers the satisfaction either, they've been making working for them more and more difficult since I was diagnosed. Don't want me.

I want to continue to work for as long as possible.

DLA would really help I think, maybe to get in a cleaner, aid, and an automatic car would help big time. My osteoarthritis in both knees as well as Fibro make driving a royal pain in the bum!

Will have to look into getting a blue badge too. I cant walk for long and being parked closer to shops might encourage me to get out more and see my friends. I've lost a lot of them over time because they all thought I was lazy and cancelled on them a lot due to not wanting to move from the sofa.

[fedupofpain in reply to sloth]

adult social service can help with cleaners i managed to go to them and get 3 hours a week where the give me money and i get the cleaner im tryin to claim dla but got turned down so ive appeal to get turned down again now im taking my appeal to a truibral got a statment off my own doctor who states my mobility in 2 years have reduced by 80% ive a degree of the conidtion where ppl down leave the house and a few of things so i will have to wait and see but there is help

[tiggerfan]

I have had Dla for several years but up until two years ago the amounts always fluctuated wildly for no apparent reason.At one point I had high mobility and middle care and on the next application was refused completely...I phoned them up and asked if they thought I'd found a miracle cure! It seems to me its Pot luck what you get especially since there has been no change in my fibro for over ten years.

I now have high rate mobility for indefinate period but no care component (akthiough dressing bathing cooking and house work are practically impossible due to the exertion and time it takes me)......and I work.

I dont have a partner so I get a very small amount of working tax credits as I work relief work (when I am less sore I work more shifts when I am bad I work less.)

[Sarah-Jane]

Yes you can work and get DLA, but it appears to be pot luck as to how much. DLA is not based on your income, its based on your quality of life - can you feed and dress yourself? Can you walk far? No idea how far but what you tell them makes an awful lot of difference.

Lay it on thick, tell them everything you need help with usually/worst day senario, get someone else to add what they know about what you have to deal with, get a doctors letter, take your time filling in the paper work and check it thoroughly. I am not asking or suggesting you lie, but we do tend to make out that we can cope!

I suppose I am one of the lucky ones reading this. I presumed it was the same all over the country and fear what the next review will show. I have the maximum for mobility which allows me to have a mobility scooter - I could have gone for a car but assumed I would get better and then you have to hand it back - we could not afford a replacement. It costs me £25 a week out of my DLA and leaves me enough to have a cleaner or have a few taxis.

I also contacted Access to Work and told them I wanted to return to work but could not get there alone. My husband works shifts so could manage one route, so they pay for the other. I have a taxi pick me up and drop me off and I reclaim the money after a few weeks.

They also assessed my workplace and discussed what I needed with them. Ramps have been improved as have the Fire Doors and I now have an electric chair to get me around the school site. However I could not use it in the snow. The school had to pay the first £1,000 and they paid for the rest.

I use a wheelchair from the local hospital wheelchair service. Apparently if you ask your doctor it can be arranged that you have a wheelchair loaned to you. I have put on weight and needed a replacement for the one I had bought. I use it in the corridors and have a computer chair with an eggshell type cushion to sit on in class. I do walk about, but find I am very tired by the time I get home.

Currently I am lucky and do not suffer very much compared to others, but believe I have arthritus in my hips which constantly irritate my FM meaning the trouble is around that area.

I hope some of my information is of use to you and I am really sorry to learn not everyone has received the helpful treatment I have. I had to ask on line to find out about the wheelchair service, I had to go onto the govt web site and check out disability to find out about the rest.

Good luck and best wishes to you all.

Soft hugs too

[Sarah-Jane]

Sorry, I forgot to add having DLA also allows you to apply for a Blue Badge.

[PaulHeyes]

Ive been turned down twicw for DLA> Im afraid i sounded off to a manager last week. She askred what my diagnosis what and when I said Fibromyalgia she repeated Oh Fibromyalgia in a tone that seemed she was in the hypochondria school. Try to get some advice on the best way to fill in the form.