Fibro and DLA

[sadoldred]

Hi everyone. Right want to ask this as its playing on me mind a bit! Someone has told me I am wasting my time and money trying to claim DLA, as even though I am so bad with it. They have told me that because I only have fibro and costo I will never get anything higher than low rate care! Is anybody else the same?

[Hidden]

I have fibro chostochondritis ibs and arthritis. And all I get is low rate care ... I just look on it as a bonus as so many on here and other sites get nothing .. I don't understand how it will cost you money .. I just got the forms filled them in and got low rate care indefinitely .. I think I do need some mobilty care but I don't get get it.. So I take my low care rate gratefully... If you haven't applied for dla please do so ... Low rate care is better than nothing

Hope that helps

VG x

[sadoldred in reply to Hidden]

The term wasting money means by photo copying forms and paying for recorded delivery of all the forms, also phone calls, fuel to get where ever and parking!

[KimLH]

I have Fibro and get higher rate for mobility and lower for care, it is always worth fighting for, as the more people with Fibro fight for these benefits the higher chance that this condition will be taken seriously, so keep fighting xxx

[aura2]

You must include a list of symptoms and how they effect you with your application , two of the things VG mentions come with fibro and sadly types of arthritis can follow . I have osteoarthritis plus 49 from a list of 50 symptoms . Most articles in the papers or on the TV only mention fibro as all over pain grrr . It is no wonder nonfibro people take us on pain only . I take every opportunity to send a list of symptoms to all sorts of people .Ricard Little -John of the Daily Mail is my latest target

Following his article on the guy with fibro who was found innocent of benefits fraud. Again all he mentioned was pain. Keep fighting it is hard work but the more we fight the more people will understand.

[Mdaisy]

Hello Sadoldred,

FibroAction can provide you with the Benefits & Work guides for free which will help you understand DLA & has guidance to help fill in the forms. If you would like to email [e-mail] then I would be happy to send them to you.

Here is a link to the Benefits & Work website

benefitsandwork.co.uk/

Hope this helps

Emma

[rosaann52]

After the 8th April DLA will start to be replaced by PIP....any one making a new claim or reporting a change in condition will also be assessed for PIP . Even if you have been awarded DLA indefinately at some time in the near future it will be changed to PIP and you (and me)will have to be re-assessed)...another hill to climb....more forms more medicals and no doubt more appeals to make....this goverment is in my opionion , trying to take all our financial help away from disabled and sick people and reduce all social care to such a limit people will just fade away with illness and depression.....are they perhaps trying to make a 'perfect' society, by 'default' as the sick and elderly just simply cannot servive these trails by fire they are set on making us endure........

[Mdaisy in reply to rosaann52]

Rosaann52,

I understand how you feel and I expect many feel the same. If you need a guide to help you understand PIP, email: [e-mail] we can send it straight out to you

Hope this will help

Emma

[rosaann52 in reply to Mdaisy]

Thanks Emma , I have already been doing some on line research about PIP,but if I get stuck I'll be in touch ...Thanks again

[Sharolina]

If you feel you are entitled, claim it! Though the process may be a lengthy one, and it may cause more distress and angst along the way, but do not give up.

[Sharolina]

If you feel you are entitled, claim it! Though the process may be a lengthy one, and it may cause more distress and angst along the way, but do not give up.

[Hidden]

The last thing I heard about PIP was that it had already been delayed by 3 months so carry getting those claims in for dla

[sadoldred]

Thanks everyone for the help x

[wall1409 in reply to sadoldred]

I was turned down for DLA, last June, I Applied again in October and was turned down again, I looked at the reasons for refusal and to me they were talking about someone else so I asked them to look at the decision again. A doctor from DLA came to visit me at home in February and I was awarded High rate Mobility and High rate personal care all backdated to October, only got it until Oct 2014 then I will be reviewed on PIP but I did suceed so please keep going at this.

[sue32]

I have fibro, osteo, vasculitis, lymphoedema, costo, T2 diabetes, vasculitis and a degree in -itis and opathy!! I get high rate mobility and middle rate care. I was first awarded low rate care and appealed. Thankfully I was upgraded, but it did take a home visit from a GP to get it. XX

[cjw064]

absolute Rubbish!

“ The Department of Work and Pensions (DWP) has restated that they recognise Fibro as a potentially significantly disabling condition. This isn't the first time they have officially stated this, but up-to-date reiterations of this can't hurt when people with Fibro are still being led to believe that Fibro "doesn't count" when considering eligibility for benefits.

David Morris MP (Morecambe and Lunesdale, Conservative) asked the question:

"To ask the Secretary of State for Work and Pensions whether he has considered recognising fibromyalgia in the benefits system."

Maria Miller MP (Parliamentary Under Secretary of State (Disabled People), Work and Pensions; Basingstoke, Conservative) responded on 18 June with:

"The Department recognises fibromyalgia as a potentially significantly disabling condition.

Where a clinical diagnosis of fibromyalgia has been made, full account will be taken of its disabling effects in determining eligibility for benefits."

Hope that helps

Liam Carter

Case Manager

My Benefit Claim

Manchester