How to cope with the constant pain.

[Kaiser0771]

Advice welcome.

For the last 3 months Fibromyalgia has taken over my life. How do you cope with the constant body pains. I have an intolerance to tablets. Please can anyone give me some advice.

Many thanks

Dave

[Sorebones]

Ask your doctor to refer you for a pain management programme. It won't make your pain go, but it will teach you how to cope with it. In the meantime it might be a good idea to look up pain management on the web 🐸

[Kaiser0771 in reply to Sorebones]

Many thanks

[BlueMermaid3]

Hello there

First off I just wanted to wish you a warm welcome to the forum 😊

I'm so sorry that you are suffering so badly.

Please could I just mention that for Internet safety reasons we do recommend that people lock their posts. I have given you a link of how to lock posts that have already been posted or new ones.

You will usually find that more people will reply to a locked post. Unlocked posts are open to anyone on the Internet to see whereas locked posts are kept within our community.

healthunlocked.com/fibromya...

If you take a look at our mother site hopefully you will find some useful information there fmauk.org

I have had Fibro for 34 years and my pain is constant and severe even though I take strong pain killing medication.

Are you able to cope with steroid injections? The only other thing I can think to suggest is creams that you rub into the skin, heat pads, hot water bottles and warm baths.

Have you ever had a course of CBT or been on a Pain Management Course?

Hopefully my fellow Fibromites will come up with other useful ideas.

Wishing you less pain and more peace

Lu xx

Volunteer Administrator

[Kaiser0771 in reply to BlueMermaid3]

Will do, many thanks.

[Heat1386]

Welcome Dave, I'm newly diagnosed and like everyone on this site we understand your pain and suffering. There's no easy answer, what works for me may not help you. Like BlueMermaid suggests, hot baths with Epsom salts or creams. I've just started taking Magnesium Citrate which seems to be helping me a bit. I also try and do gentle excercising which can be benificial if you can manage it. Good luck and gentle man hugs! 😌

[Kaiser0771 in reply to Heat1386]

Many thanks

[TheAuthor]

Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read that you are suffering and struggling so much with your Fibro and I sincerely hope that you can find something to help with your pain. I personally use a TENS Machine when my pain becomes too much for me. As the others have said it may help to talk to your doctor about pain management.

All my hopes and dreams for you

Ken

[Fibroman]

Fibromyalgia does take over your life. Like many here I have suffered for 12 years. The early years are the worst because you try and fight the condition. Sleep and stress are key to controlling our condition. One day you will accept it and find a level of medication that works for you. For many years I refused to take Amitriptyline because the 10mg didn't seem to do anything but make me feel more tired throughout the day. One day I was reading this website and saw people taking a much higher dose. So last few years I have taken 50mg every night and no longer suffer from lack of sleep. My stress levels have dropped and so have my flare ups. I also take Mirtazapine which is another antidepressant but its also great for nerve pain. Hope you find an answer much sooner than I did.

[Kaiser0771 in reply to Fibroman]

Many thanks for the info.

Tablets make me either sick or spaced out, neither of which I like. Trying patches, which are not working that well. Seeing specialist on the 30th.

Many thanks again

Dave

[Hidden]

Welcome to the forum.

You may wish to discuss alternative ways of administering medication with your Doctor. For example, patches enable the skin to absorb the medication.

Good luck.

Best wishes.

Dave

[Kaiser0771 in reply to Hidden]

Thanks for the info. Just been given pathes 5 mg. Dont know why, but I feel worse. I think its the dizziness and the spaced out feelings which I dont like. Seeing Specialist on the 30th.

Many thanks

Davr

[Hidden in reply to Kaiser0771]

The side effects are always worse when you first start the patches or when the dosage increases. Side effects vs effectiveness is a game that has to be played when living with constant pain.

Good luck when you see the Specialist.

[Kaiser0771]

Thanks for the info! I am trying relaxation and meditation as an alternative. I really hope it helps a little bit.

Best wishes

Dave.