Jackie: Hi am new to this so please... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Jackie

Brora56 profile image
11 Replies

Hi am new to this so please bare with me am not a good speller so hope can understand ok. I was told I had Fibo after going back and four for two and a half years it is the worsted pain I have ever felt and I've had seven major ops can anyone tell me what really works for pain that I have every day thank u

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Brora56 profile image
Brora56
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11 Replies
peck profile image
peck

Good morning Jackie and welcome to our forum. I was diagnosed in 1999 after a year of Drs. appts. monthly .I dealt with the pain for several years but as I got older the pain got worse (along with other problems).You have had you share of surgery which I would think contributes to your pain. I live in the US and I go to a pain clinic for treatment From what I understand it's a little different as to where you live.I suggest talking with Dr. that diagnosed you about treatment.Welcome again to the forum!!!! ✌

VonnyM profile image
VonnyM

It me 15 years to get a diagnosis, before then a rheumatologist, old man, said I was neurotic. So did my gp. I started going to a different practice and was sent to a different rheumatologist who dx fibromyalgia. It can take years to get dx confirmed, esp if you're a woman

BlueMermaid3 profile image
BlueMermaid3

Hi Jackie

Welcome to our wonderful forum 😊 I am so sorry to hear that you have been diagnosed with Fibromyalgia, but am very happy that you have found us.

We are a kind, caring compassionate bunch who all look out for each other.

If you'd like to take a look at our mother site on fmauk.org you may find some useful information.

Unfortunately finding what works for you medication wise is something that you really need to discuss with your GP. Would you mind me asking who diagnosed you? Have you seen a Rheumatologist? If not, it might be a good idea to ask your GP to refer you to one.

There are lots of other things that your GP can refer you for. For instance CBT (Cognitive Behavioural Therapy), Pain Management Clinic and Physio.

Swimming is probably the best exercise you can do, if you can manage it.

Finally I would just like to mention locking your post. I will put below instructions on how to do this. If you scroll down a few posts you will find one from me explaining the importance of locking posts and why you should lock them.

I look forward to seeing you around the forum.

Wishing you calmness and peace

Lu xx

PS. Please don't worry about spelling. We do not judge on spelling or gramma xx

Brora56 profile image
Brora56 in reply to BlueMermaid3

My GP diagnosed I take strong medication help for a little time. Just waiting to c physio. But how painful will that b. Got a lot of other health problems

BlueMermaid3 profile image
BlueMermaid3 in reply to Brora56

Hi

You are not alone in having lots of other health conditions. I have approximately 27 other symptoms which make up my Fibro.

The physio should not be painful. It is quite possible that initially you will be given some very very gentle exercises to start with.

Lu xx

BlueMermaid3 profile image
BlueMermaid3

Hi again

As promised here are instructions on how to lock your posts. If you would like me to lock your post for you, I would be more than happy to do it for you.

Please see below some (hopefully!) clear instructions on how to lock your posts:

If you have any other queries please let me know and I will be happy to try to help 😊

To lock a post when you've finished writing it scroll down to the bottom of the blue box and you'll see on the left hand side two options:

o Everyone

o Community

If you click on the Community option, this will then lock your post.

If you want to lock a post that you have already put up onto the forum, find your post and again scroll to the bottom of the blue box. You'll see a small downward arrow (v). Click on that and you will get an Edit option. Click on edit and then select the Community button as above.

Wishing you all peace

Lu xx

Brora56 profile image
Brora56 in reply to BlueMermaid3

Can c blue box

BlueMermaid3 profile image
BlueMermaid3 in reply to Brora56

Sorry I don't understand? Lu xx

Brora56 profile image
Brora56

It's ok found how to o it thank you.

BlueMermaid3 profile image
BlueMermaid3 in reply to Brora56

So sorry to have confused you. The box is blue when you are writing in it. When you have finished your post or reply, and submitted it on to the forum it turns into a light grey box.

I'm glad you found it. Lu xx

TheAuthor profile image
TheAuthor

Hi Brora56

Welcome to the forum and it is wonderful to make your acquaintance. It may help to discuss with your doctor exactly how you are feeling and ask them if they have any stronger pain killers that may help you? Pain is very difficult to describe to a doctor and so they may not understand how bad things are for you? I want to genuinely wish you all the best of luck.

All my hopes and dreams for you

Ken

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