Hey all you amazing people, my neurologist diagnosed me with Fibromyalgia, I was attending him for neurofibromatosis type 1, "NF1 short" am the pain I am in is not related to nf type pain. My late mother had fibromyalgia and a connective tissue disorder can say the name but for the life of me can't spell it.
Anyways I'm here to get any information I can, I've been on amitripliene eh spelling again, lyrics an decided just to stick with tylex for pain. The side effects of the medication is too much for me I'd prefer my sanity an be in pain than be spaced out all day.
Pain almost daily, does anyone else have water retention, and shortness of breath when walking upstairs and doing light housework?? I live in south of Ireland 🇮🇪 so hope someone can share details and information.
Gentle hugs to you all
Hope you have a minimal pain free day 💚💙