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Hi All.

Thank you for adding me to this group. I've officially had Fibromyalgia for about 18 months but I think I've had it longer. I've had trouble with my joints especially my knees since I was 14, I'm now 42. I'm on Gabapentin and Amitriptyline. About 6 or 7 years ago I had an accident at work and I was told by the hospital that it was a prolapsed disc, which flares up every 18 months to 2 years and I'm currently in one of these episodes. When I went to the hospital, they asked how I knew it was a prolapse as I'd never had a MRI scan which I am now waiting for. I'm unable to work as I can't sit or stand for too long, which is frustrating as trying to live a normal life is difficult when you can't do anything for yourself and I've been like this since Boxing Day. I'm also on cocodamol and naproxen for the pain which doesn't seem to really work. The hospital gave me diazapam which I can't have now as they are a restricted drug and the morphine sent me funny. Can anyone give me any advice on anything I could try, or anything I can say to explain this to work as I'm not sure if they truly understand what Fibromyalgia is. Sorry for going on....

Thank you in advance

3 Replies

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  • Hello there

    Welcome to the forum :)

    If you would like to have a look at our mother site fmauk.org you will hopefully find some useful information.

    Do you mind me asking what dose of Gabapentin you are taking? I was wondering whether you might be able to ask your GP to up your dose.

    Trying to get people in general, to understand Fibromyalgia, is something many of us on the forum struggle with.

    Because it is an invisible illness and our insides hurt so much we want to cry, how do we manage to look so well on the outside? This is the question that non Fibro sufferers do not seem to be able to get past.

    Other than finding information on the link I have given you, or running off information from the Internet I am at a loss to help you.

    You say that you dont feel that the Gabapentin is helping, you could discuss with your GP switching to Pregabalin. Also have you tried the Brutrans patches? Perhaps you could have a conversation about those too.

    I have had Fibromyalgia, Chronic Fatigue, Hypermobility, etc for over 30 years. Because I get on with life, as I don't have any other choice my family don't take my illness seriously.

    I wish you all the luck in the world and hope that someone can come up with a much better reply than mine!

    Wishing you wellness and peace

    Lu xx

  • Sorry you are suffering so badly. I had to give up work as it was impossible for me to sit on an office chair for more than 15 minutes without being in agony still the same so you have my sympathy.

    I do hope that the MRI scan will show exactly what is wrong with your back and fingers crossed it is something they can help you with.

    Like Lou I was wondering about Pregablin as it has certainly helped me with the neurpathic side of my pain in my back and the terrible burning, electrical feeling pains I was getting constantly.

    Heated pads can sometimes help I am sitting here with a heated back wrap around me as the pain is unbearable today if I don't wear it. Hope you can find something to help.x

  • Hi raeob

    Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read that you are suffering and struggling so much and I sincerely hope that you can find some resolution and relief to these issues.

    Like your other respondents, I was also thinking about Pregabalin as it is a medication that I am personally taking. If you were also thinking of something extra besides drugs, I was wondering what you thought of some kind of physiotherapy such as swimming or hydrotherapy? It may be something to discuss with your GP?

    I want to genuinely and sincerely wish you all the best of luck.

    All my hopes and dreams for you

    Ken

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