Hi everyone. I have just signed up to this support group (should of done it years ago) anyway, I'm looking for some advice, help, anything about fibromyalgia! I'm 25 and I was diagnosed with fibromyalgia and ME (CFS) 3 years ago after "I should of died" type of event. Over the last three years I remained in work as a mental health bank nurse in so ure wards and in the community. Not really knowing anything about fibromyalgia and the flare ups I juggled work a 2 year old moving house the lot. I have spoken To a lot of DR'S and a rheumatologist who first prescribed me 75mg pregablin and duloxotine. The duloxotine made me sick and the pregablin wasn't enough. So over the years I have tried everything, different meds different doses and nothing. I. Been having severe flare ups the last 10 months when I'm in to much pain to move or bed bound from exhaustion. I felt that all the DR'S iv seen don't really get it or even care until recently. My DR now genuinely wants to help and after weeks of titrating meds I am now on MST. The MST worked fab but doesn't touch the sides when I'm having a flare up,so we were Considering oramorph as PRN (when needed) as fibromyalgia pain is bad enough andto top it off i have sciatica. He is now on long term leave and the DR i have now is refusing to let me try because she goes by trials tests and sadistics, she doesn't look at me as 1 patient. My point is what doesn't work for you may work for me. Is any one benefiting from pain relief from morphine, codeine. I just don't want to be in pain anymore.
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