Fibromyalgia Action UK
38,669 members50,929 posts



Hello community

Hope today finds you all better than yesterday . Regarding pain

I've had fybromyalgia since 2004 and I'm always in chronic pain ,chronic fatigue digestive disorders and put on weight 😁😁😁due to meds and that I can't move around

Like I used to . I had to spot working because the pain got so bad , it affected me emotionally .

I have 5 children all grown up now . At first they didn't understand me and sd I was making it up but as the years went by . They researched it and now they all help out

And are wonderful and helpful .infact my younger daughter who is 20 became my carer 3years ago ..... She an angel . I've been looking for people with the same illness

To speak with as some days I get very low . But I always think positive now . At one point in my life I wanted to end it as the pain was overpowering my mind . But my GP is excellent and has supported me over the years and refused me to appropriate doctors .

👍🏼🙋🏻🙋🏻🙋🏻🙋🏻⛈⛈⛈⛈⛈there many storms in my mind as the migraines are bad .but I take step by step .

23 Replies

Hello and welcome 😊 I'm so glad that you have found us.

I just wanted to welcome you to our wonderful forum. If you would like to take a look at our mother site, on the following link, you will find lots of information that you can read up on

Many of us suffer with Migraines and low mood on top of all of our Fibro symptoms. We are a compassionate, kind caring bunch who all look out for each other.

Look out for Pic of the Day to start your day with a smile! Hopefully you will find that you will make many new friends here.

I look forward to seeing you around the forum.

Wishing you wellness and peace

Lu xx

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Hello sweety what a beautiful welcome Thankyou

God bless for your kindness . For years I was wanting to find many friend

Who have been suffering with this horrible illness . Each one of us suffers all

In different ways . But we all suffer ...... This evening I'm in so much pain

In my legs and feet .and feal like a ballon ...😁😌but it's ok .

How are you ?

. Have a good nights rest . May be we talk soon ok sweety . Thankyou very much for making me welcome .

I appreciate it ....

God bless us all .... 🌹🌹🌹🌹🌹🌹

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Hello and welcome, Im 62 and had fibro for about 30 yrs. mine didnt suddenly appear but gradually crept up on me a bit at a time so i wasnt diagnosed until about 4 yrs ago.

I love this site and everyone on it, they keep me sane ish.

The link to our mother Is.

Look forward to seeing you around.

Sue :)

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Good evening sweety . It's so sad many illness that interfere with our normal life .

And the way we used to be . But as years go on we learn to balance out . Thinks .

Like we now when we're getting a flare up . Or severe pain . Depression gut problems .

Yuk . Yes it's good to talk especially to a beautiful group of people who can understand

And really give suggestions .... And share ideas ....m

I'm off to bed now Thankyou for making me feal welcome .

God bless you .👍🏼🙏🏽🌺🙏🏽🌺🙏🏽🌺🙏🏽🙋🏻🙋🏻🙋🏻🙋🏻🙋🏻


Hi Agapelove77

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I can see that my colleague, PainfulPixie has given you the link to our mother site, which hosts lots of useful Fibro information on the site.

I am so genuinely sorry to read of your struggling and suffering with Fibro but i am sincerely delighted to read that you have a wonderful support network with your family. I want to genuinely wish you all the best of luck.

All my hopes and dreams for you



Good morning my dear friend ,Thankyou for your message ad making e feal welcome . Yes for years I struggled with so much pain ad also now .

And no one really understood me . They kept saying ELISA you look so well .

Ad yet I'd say I'm in so much pain " what you "? Yes . I'd explain I ave FM

But they sd " take a pain killer ! Well wish it was that simple . .

My GP been excellent ad sent me to the write people for help .

Dear . I could never understand why I was sent to a phyciatrist .for many years coz of my fybromyalgia ......

It baffles me ...

My GP sd I had many horrible traumas over the years and when I'm stressed. I get flare ups So may be just to talk about my traumas . Well I thank him for sending me to the people that are able to help .and it's good to talk .... With the write people that understand .hope you are well

Ad have a pleasant day .......

God bless .

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Thank you, I think it is wonderful when you have a good GP as so many members on the forum have GPs who know nothing about Fibro! Please take care of yourself

All my hopes and dreams for you



Good evening Ken yes it's so important to have a good GP

He is a very understanding docter , and everyone is registered with him . Because he really cares for people needs .

And it's so important when a GP looks deep into an illness

As my GP explainers why and how and how to try and help .

But soon I will be moving to Italy . But I will come and go . To see my children . They are so helpful now . As we looked up fybro together and what symptoms are . And they felt sad that I had to go threw so much pain .

But dear Ken I'm a positive person I always turn a negative into a positive and I love helping others also . We all need encouragement and understanding and also a shoulder to cry on sometimes . Thankyou . Do you have FM Ken dear? .

I wish you a pleasant night rest .

Focusesd positive balanced .

And meds 😁😁🙋🏻🙋🏻🙋🏻🙋🏻🙋🏻night night


Yes, I have Fibro among other medical conditions, thank you for asking. I genuinely hope that you have a wonderful and pain free time when you move it Italy :)


I'm sorry you have to suffer also with this painful illness . Thankyou regarding my move to Italy .ive become so anxious but it will be ok .im making a leap of faith into the unknown . But it's to help the community out there in the village . They are all poor

And are in need of spiritual guidance .

We are all in need of that . I believe if we have spiritual guidance . And pray and meditate on helping other s it takes our mind of our worries .

That personal thought . I do lots of meditation .and relaxation . Always with balance .as when I'm fealing really over stressed .i detress . Like take time out

To speak with God . And he's been really good to me over the years .... Helped me cope . With my situation ....and I pray for others of my sons is a missionary and together with his with go to Uganda to help people out there .and to Poland and he's always on the phone asking if I'm in need

Sometimes he says mum tell how ur night has been ! Or how are you today ! Is there anything we can do

So just this alone helpers me threw

Anyway sweety today is another day yesterday's pains gone vanished . And I hope today brings less pain for you and all those beautiful people who suffer FM .

You are kind stay focusesd positive . Grazie as we say in Italy . 👍🏼🙋🏻🙏🏽🙋🏻🙏🏽🙋🏻🌺🌺🌺🌺

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Hi Elisa, first I must say, I know Caleb and Sophia!!! Haha, I teach my 5 year old granddaughter with all the videos now, what wonderful tools to "inculcate" good values..... well nice to meet you, I live on the east coast of Australia and I myself am really suffering with Fibro. I was diagnosed 20 years ago but since September last year I've been quite bad. I've lost my mobility and have been on crutches ever since so my life has changed a lot. I've had to adjust to a different way of doing things but it's a mater of having to not wanting too.

Please keep in touch, I know how you feel. We can help each other.

Love Anita xxx


Hello my daughter Anita how wonderful to have met you . I'm glad you know caleb and Sophia . Yes I'm one of Jehovah's witnesses for many years

And the sisters have really helped me . When someone in oir congregation is ill , the elders make a rotor every day for someone to come and either do shopping clean up help out and do studying together .

I'm so sorry you've become so I'll with this horrible illness . Keep positive

Stay focusesd . God has promised a new world were there will be no more illness and suffering and pain .

Gods promises never fail . My 5children help out so much . I'm moving to Italy the end of February to get remarried . . I hope the weather will help out a little with the pain . And I will be tranquil out there so how are you this morning .... My daughter is my carer so she is coming to shower me as I'm so still and in so pain can't even move ...... Anita . Love you sweety .

Keep in touch beautiful friend

May Jehovah bless you . Kiss to kids as they are a blessing .👍🏼🙏🏽🙋🏻🙏🏽🙋🏻🌹🌹🌹🌹🌹🌹

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Elisa, I'm in Byron Bay cong here in Australia xx


Hello a girl sweety . Please to meet you .do you suffer a lot with your fybromyalgia ????? How does it affect you sweety ??????

I'm hear if you want to talk affects me all over my body I've had it since 2004 and my mobility is terrible ....... .

I hope you have a good day ........ What meds are you on to help the pain ? If you don't mind me asking ..... 🌹👍🏼🌹👍🏼🌹👍🏼🙏🏽🙋🏻🙋🏻🙋🏻

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I've inboxed you xx


Ok my lovely that's good . Sisterly love to your family .


Hello sweety yes I'm in Manton heights in bedfordshore near London .

It's a lovely congregation .

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hello I am sarah, it is nice to meet you x


Hello Sarah sweety nice to meet you too you have all been so welcoming how very kind of you all . Sarah how long have you had fybro . Is it really bad do you suffer a lot . ???????

God bless you sweety .


Hi Agapelove77,

I've had Fybro about 30yrs now and feel as you describe most days. I have 3 daughters and live with my youngest who looks after me also.

I have only recently joined the site a couple of weeks ago and don't know where it's been hiding all these years lol.

It's great to share experiences with other Fibro sufferers and compare notes lol. It's great to be understood & everyone is lovely & there is always someone wanting to make you smile. Best medice ever.

Welcome to the house of fun hehe

Luv Jan xx


Hello Jan sweety . Yes I joined a day ago . We're was it before ?????? It's a wonderful sight , as we can all relate and understand the pain and suffering were all going threw . Sad you've been suffering also for so many years .

But it's great when family can look into it and help . Great your family are helping too ...........

How are you this evening ????????? 🙋🏻🌺🌺🌺🌺🌺🌺🌺🌺flowers for you

For being brave and positive . Have a good evening sweet heart .

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Your very welcome honey. Yes im not to bad tonight as it goes..probably best day ive had for a while really but dont want to speak to soon lol..had a few twinges, pins & needles in my hand & woke up in pain this morning but ok now so all good.

Ive had an actipatch on back all wk and it run out this eve so im dreading if my back pain comes back and I get new one tomow hopefully so should be ok. Its only thing thats ever took my back pain.

Anyway im ok at mo so not complaining.

Dont feel the slightest bit tired though lol

🌞🌞🌞🌞🌞🌞🌞🌞 sunshine 4 u xx



Janet you are so lovely and it makes me feal good that today your having an ok day !!!!!!!!!! . It's so hard sometimes ...... I get days when I have to stay in bed fir 2days 😁🐣I feal like a little chick so delicate . And years ago I used to work 3jobs have 5 looked after my parents for years as dad had alkhzimas and mum was so poorly she passed away 4years ago . That can shock the systems so much that we can get many flare up . ......I've had a very traumatic life . But I'm positive . Sometimes I cry lots 😭😭but then I pray and meditate and somehow I feal much better 🕊🕊🕊🕊🕊🕊👌🏼sending you flowers 💐💐💐🌺💐🌺💐🌺💐🌺💐because your so brave

Well done sweety .

Stay focusesd it's not easy . I understand . I'm hear if you're like to talk .

Stay sweet . 🙋🏻🙋🏻🙋🏻🙋🏻🙋🏻🙏🏽🙏🏽🙏🏽🙏🏽ciao

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